2nd Abatacept Trial Infusion

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Regular Member

Date Joined Jan 2006
Total Posts : 479
   Posted 3/6/2008 8:43 AM (GMT -6)   
Hi all
I had my 2nd Abatacept infusion on Tuesday (Induction period, so could be placebo)
Firstly, I did feel good today.  Better than after my first infusion.  I had 2 BMs today with no blood.  There seems to be a pattern here.  2 days after my first infusion I only had 2 BMs and then after that I was back up to 6.  So, I will see what happens tomorrow!
No back ache this time unlike last time.  Although I got severe pains in my arm while I was getting it. Could have been just vein irritation though.
I get my next one in 2 weeks and after that its every month.  I will report back of course.
Back on Pred - 7mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg
Predfoam Enema
EPA Fish Oils, Various Homeopathic meds
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic

Veteran Member

Date Joined Dec 2005
Total Posts : 3238
   Posted 3/6/2008 9:04 AM (GMT -6)   
Thanks for the update!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

Co-Moderator UC Forum

Paul L
Veteran Member

Date Joined Dec 2005
Total Posts : 647
   Posted 3/6/2008 12:30 PM (GMT -6)   
Thanks for the update KSU. Just be patient, these things take time. I just recently posted about my 4th Abatacept open label infusion and I’m still not convinced it is working for me. Don’t be discouraged.
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision

Elite Member

Date Joined May 2003
Total Posts : 30998
   Posted 3/6/2008 2:28 PM (GMT -6)   
KSU....great to hear there is some improvement and that this infusion went better than the last one.

Updates are always appreciated!
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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