Remission question

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/6/2008 10:08 AM (GMT -6)   
I should probably know this but, well maybe not.....I am coming out of my 2nd major flare, first was when I was dx'd 8 yrs ago this month (happy uc anniversary.... not!).  Have had a few small flares in between from not taking meds as I was supposed to but nothing like what I went through, anyhow...... my bm's have gone from diarreah back in Oct to stringy in Nov/Dec and since then have been getting fuller and more back to normal looking, even lately, in the past week, they are almost looking like they used to, but still every now and then will have stringy or mushy (it breaks apart in the bowl).   Also, I have 1 to 2 bm's per day.
 
My question is: do I still have a long way to go before I am in 'remission' or am I in it now?  Also, is it normal after a huge flare for it to take a long time to get the pre-flare bm's?
 
TIA!
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 3/6/2008 10:27 AM (GMT -6)   
I have had my colitis undercontrol since November 2007 and even though I had one formed BM per day without blood or mucus since then, I would not call it remission. Now that I am the same and off prednisone I can say my remission BMs are still very soft and somewhat thinner than they used to be. (I would always declare my remissions when I got off steroids completely) I can barely remember what they used to look like. lol. The last normal BM i saw was from my friends toddler like a over a year ago and my current doesn't even compare to his. Oh well... I'm curious if anyone has had a normal BM after this DX.
                                                                                         
28/M/TX
Severe Colitis (pancolitis) since January 9, 2005
currently:  I must say Under Control, 1 formed BM/day
RX/day:  Tapered Prednisone completely January 2008. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
(believe me I know my body and do not recommend doing this!!!)
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it. For Lent I gave up peanuts, sweets, and fried foods...
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/6/2008 11:25 AM (GMT -6)   
Everybody has their own term for remission. Sometimes we may never go back to normal bm wise and we have to adjust to our new "normal". The looser stools you see can be something you ate that didn't agree with you. I would say, if you are only having occasional bouts of loose stool with no bleeding, mucous, pain, or D then that can be your new "normal" but of course it's always wise to keep an eye on it and if it becomes a regular thing, it could mean you are heading for another flare.
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damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 3/6/2008 12:33 PM (GMT -6)   
I suffer from both UC and IBS and to me it seems it is IBS that has the biggest impact on the quality my day-to-day BM. Don't get me wrong, when my UC hits then my BMs are violent and aggressive. But on the whole I seem to recover pretty quickly. But what I find is that in remission the quality of my BMs are poor due to the functional problem that is IBS, moreso than any damage done to my colon by UC. I can still perform a perfect BM (i know its in there somewhere) but on an anverage basis my colon isnt spasming as it should be.

I've no doubt my IBS and UC are related but to me its the IBS that has the most lasting effect on the quality of my BMs.

I'd be interested in others thoughts on IBS v UC with regrd to quality of BM
400-800 mg Asacol a day
Iron supplment,Probioitcs
Balanced Diet (...ish!!), Reduced Stress
 
"There are only about a half dozen things that make 80% of the difference in any area of our lives."
 
 
 
 
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/6/2008 12:39 PM (GMT -6)   
thanks everyone. I wonder about IBS too, somtimes my colon feels shaky.....(may not be the best description) how do you know if you have that in conjunction with UC?

I'm still on the pred for my kidneys so I am not sure yet if the Aza is working for me or if it's the pred.

Also, I am scheduled for a colonoscopy April 14th I am cant wait to see the results from that.
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/6/2008 5:09 PM (GMT -6)   
IBS commonly has you alternating between constipation and diarrhea. I was often bloated and crampy and felt uncomfortable after a large meal. Sometimes I'd feel like I was starving, but after eating just a few bites, I'd feel full and suddenly have no appetite.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 

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