New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

oceanberryb
New Member


Date Joined Feb 2008
Total Posts : 9
   Posted 3/6/2008 10:59 AM (GMT -6)   
 
 
I have been having a flare I would say for the past month and a couple of weeks.  I am literally exhausted!  GI put me on entocort ec...I stayed with that for about a week and a half....it was doing nothing.  Blood, diarreha( can u believe i do not how to spell diarreha)!!!  I was going to to bathroom at least 20 times a day.  Lost weight of course....So I took it upon my self to go into my "stash" of pred...only started at 20mg and am now at 10mg.  It's getting better(i guess) but what is up with these mornings!  I am so sick in the morning...I mean I have to keep getting out of the shower!!  I have blood, mucous, diarhea, then I feel nauseous.  I am barely sleeping through the night( does pred give you insomnia)....I am just at a loss... Just called my DOC he is going to call in some Rowasa.....Great that ought to be fun...my butt is so sore!!!  I really hope treating it from both ends will help....Sorry, I am rattling I am just really over it and exhausted today....Does this drama ever stop?
 
 
Diagnosed-  Ulcerative colitis 2005
Curently taking- lialda, 20mg pred(tapering),folic acid, mercaptupurine, foli acid,multi-vitamins
Have had three colonoscopy's
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/6/2008 11:28 AM (GMT -6)   
First, don't worry about spelling errors! :) We just use the term "D" when referring to diarrhea - it's much easier. Second, yes pred can cause insomnia. Third, mornings are usually tough on all of us. While you are sleeping so is your colon so when you get up in the morning, it's sort of an alarm clock for your colon. Mornings are hard on me too and I'm in remission! Yes the drama stops but usually only when you can calm your colon down unfortunately :(
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


oceanberryb
New Member


Date Joined Feb 2008
Total Posts : 9
   Posted 3/6/2008 11:46 AM (GMT -6)   
great I will use the slang..."D" that is much easier! Thanks for the words about the mornings....I thought is was just me! Hopefully, the remission wil come soon enough.
 
 
Diagnosed-  Ulcerative colitis 2005
Curently taking- lialda, 20mg pred(tapering),folic acid, mercaptupurine, foli acid,multi-vitamins
Have had three colonoscopy's
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/6/2008 12:41 PM (GMT -6)   
I will cross my fingers and hope that the Rowasa can get you back on the right track. It is so miserable to be in a flare and nothing we do can help us instantly - though I wish it was so! Hang in there!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/6/2008 12:46 PM (GMT -6)   
I believe the hydrocortisone e's really helped me prev. also the rowasa did wonder for me too.
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Moo
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 3/7/2008 12:35 AM (GMT -6)   
Posted by Red_34: First, don't worry about spelling errors! :) We just use the term "D" when referring to diarrhea - it's much easier. Second, yes pred can cause insomnia. yeah Third, mornings are usually tough on all of us. While you are sleeping so is your colon so when you get up in the morning, it's sort of an alarm clock for your colon. Mornings are hard on me too and I'm in remission! yeah Yes the drama stops but usually only when you can calm your colon down unfortunately :(

Red_34 - This is the best explanation I have ever heard about morning difficulties!

I have been reading on this forum for a while and finally registered tonight. I first developed UC back in 1980 and have been been lucky enough to stay in remission for the most part through the years, but have always had rough mornings. I found this forum after having a minor flare recently due to work-related stress.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/7/2008 6:00 AM (GMT -6)   
Welcome Moo! :) Gotta love those mornings eh? ugh!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


legalsec
Regular Member


Date Joined Feb 2007
Total Posts : 30
   Posted 3/7/2008 6:31 AM (GMT -6)   
eyes  I am having such a horrible mornng/night. I am in so much pain with D every 20 - 30 minutes. Can't we get something for pain? I have an appt. at 10 this morning. It's only 4:30, so I still have a way to go.

Pancolitis - dx December 2006

Colazal 750 mg - 9/day (generic)

soon to start prednisone 60 mg & 6-MP

Canasa 1000mg 1/day (???)

Women's One-A-Day Multi-Vitamin

Calcium +D 500 mg - 3/day

Coumadin 2.5 mg/day (for DVT, dx 2/13/07)

Asacol (bad reaction); mesalamine enemas (bad reaction); Seasonale (birth control) caused DVT; cranberry pill - 300 mg  3x/day (urinary tract infec.) can't take with Coumadin;

Lovenox injec. 2x/day (for DVT); Folic Acid - 400 mcg x2/day


oceanberryb
New Member


Date Joined Feb 2008
Total Posts : 9
   Posted 3/7/2008 7:39 AM (GMT -6)   
Gosh, I feel your pain...I am just getting off of the D every 20-30 minutes myself. It is exhausting and painful! You know I never asked about anything for pain I am always so concerned with trying to stop the bleeding/inflammation....I don't see why your doc wouldn't give you something. Try taking a couple tylenol or advil in the meantime.....It's almost ten...hang in there.
 
 
Diagnosed-  Ulcerative colitis 2005
Curently taking- lialda, 20mg pred(tapering),folic acid, mercaptupurine, foli acid,multi-vitamins
Have had three colonoscopy's
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/7/2008 8:06 AM (GMT -6)   
Yes, talk to your doc about the pain. I think pain makes it harder to heal.

NO NSAIDS!!!! NSAIDS are ibuprofen, naproxen, aspirin... They may cause GI bleeding - which we don't need.

Tylenol (acetominephine sp?) is safe.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 5:40 PM (GMT -6)
There are a total of 2,973,382 posts in 326,086 threads.
View Active Threads


Who's Online
This forum has 160961 registered members. Please welcome our newest member, kmomof6.
453 Guest(s), 5 Registered Member(s) are currently online.  Details
imagardener2, countess18, Girlie, Alexandros96, njs