Fighting an early flair before it gets worse

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genergy
Regular Member


Date Joined Feb 2005
Total Posts : 32
   Posted 3/7/2008 2:44 PM (GMT -6)   
Hello all,
 
I'm looking for advice on how to aggressively fight a flair just as it's beginning, in the hopes of keeping it from getting worse and, ideally, turning it around. about a year ago I was on the verge of having j-pouch surgery when all of a sudden I went into remission, and I've been happily enjoying normal once-a-day BMs ever since (which has been amazing). But in the last month or so, things have started to gradually deteriorate. BMs have become more frequent and less formed. I've been feeling little twinges of pain in my gut, and today there was blood on the toilet paper. This was very disheartening after a year of feeling pretty good, so I wanna address it immediately. I was thinking that it might be prudent to go on enemas or start eating really plainly, but I'm wondering if anyone has any other suggestions. I really want to throw everything I can at this now while it might still be easy to reverse.
 
Thanks is advance for any suggestions!

Genevieve
____________________________________________
Dianosed December 2004
6 Asacol once per day
100mg 6mp
Remicade every 6 weeks
MultiVitamin, Calcium, Iron, Fish Oil, Acidopholus, Green Tea extract, acupuncture...
 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/7/2008 4:22 PM (GMT -6)   

definitely go on the enemas right away!!  If you want to be extra aggressive - you can add a Canasa suppository in the morning too.

Hope it doesn't progress further.


KTM


quincy
Elite Member


Date Joined May 2003
Total Posts : 30828
   Posted 3/8/2008 3:12 AM (GMT -6)   
Definitely rectal meds...which really should have been considered at least 3 weeks ago. But.it's a learning process to recognise symptoms earlier and earlier with each flare (unfortunately it's the best teacher).

By tapering them, you will find a maintenance dosage of which you should remain.....until you get familiar symptoms and up them again.

So....have you ever been on rectal meds? If so, which ones?
If not...why?

hope you can get things back on track.....it can take a while, however.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 3/8/2008 5:26 AM (GMT -6)   
Good luck, Gen! I'm right there with you. I say the rectal meds too- heck, they may not do a darn thing, but at least it's a shot. You could opt for the steroid enemas instead of the 5ASA ones. I totally feel for you- I'm in the exact same place- had surgery scheduled, got better, then it all fell apart! Ah well, what are you gonna do? Or you could do a short course of pred, if you don't hate it too much.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Iron supplement
Culturelle
 


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/9/2008 12:54 AM (GMT -6)   
I also vote for rectal meds.

I, also, definitely go bland with the foods. I go on a pretty strict diet of soy products, chicken, potatoes and white bread. Also, and this is the hardest for me, no tea or coffee. I'm not sure that it actually fights flairs, but it lets me get through the day.

Question, what drug combo finally sent you into remission? Jealous...

Good luck!

genergy
Regular Member


Date Joined Feb 2005
Total Posts : 32
   Posted 3/9/2008 6:06 PM (GMT -6)   
Thanks for everyone's advice. I have steroid enemas from a previous flare - would you all recommend those, or 5-ASA ones? I haven't used rectal meds very much previously so I'm still learning what works, what order to try them in, etc.

The combination of drugs that finally worked is the list in my signature. I'd been on Remicade for awhile before I started feeling better, and oddly enough the only change in my regiment that coincided with my improvement was acupuncture.
Genevieve
____________________________________________
Dianosed December 2004
6 Asacol once per day
100mg 6mp
Remicade every 6 weeks
MultiVitamin, Calcium, Iron, Fish Oil, Acidopholus, Green Tea extract, acupuncture...
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30828
   Posted 3/10/2008 1:25 AM (GMT -6)   
Start the enemas asap rather than thinking about it.  The steroid ones have a definite following....I'm more encouraging of the 5ASA enemas because that's all I've used and have had  long term success with them.  

How many do you have....do you have a repeat on the prescription?

q


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 3/10/2008 12:28:02 AM (GMT-6)


AshNH
Regular Member


Date Joined Jul 2007
Total Posts : 208
   Posted 3/10/2008 11:17 AM (GMT -6)   
I would also recommend Rowasa. I believe it is same meds as Asacol. They really seemed to put an end to my flare-up. As with this disease, it could have been combination of many things..
Ash 39 NH, vegetarian
Current meds: Asacol 12/day, Imuran 150mg
L-glutamine, Coconut Water, Rowasa(as needed)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/10/2008 1:18 PM (GMT -6)   
I agree - enemas when you first start feeling "off". E's at night and sup's during the day - hit it full force! I usually suggest starting with the 5ASAs and only using steroids when necessary.
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 3/11/2008 1:48 AM (GMT -6)   
In a flare right now. It just started a day ago, but I am using Rowasa on top of my oral meds. I am always making sure I have rectal meds in hands reach. Just hit it early, the second you see diarrhea its game on. Good luck.
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Left Sided UC*
Lialda - 2.4mg 2x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 2x Day 10Mg


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/11/2008 11:51 AM (GMT -6)   
I just want to second the mention of accupuncture. I'm flairing right now, have been for the last five days and I am hitting it with pred, rowasa, canasa and my reg high dose of asacol (16 pills a day) and that all def. helps, but lying in accupuncture yesterday was the first time that I could actually feel my pain disipating. I was also able to sleep for 6 hrs last night, which is rare for me on pred.
Asacol, 4 pills 4 X a Day
Rowasa at Night
Canasa in the Day
Prednisone 40 mg--I'm flairing right now.
VSL #3
Kariva (birth control)

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