Hi everyone! I found this site a few weeks ago and it has been soo very helpful. I will try to keep this as short as possible. I've been in an active and severe flair since the end of Dec07. I have a few questions I hope I could get some help on. First I have Pancolitus but I also have severe pancreatic disease. My GI has been very hesitant in the past to steroid treatment as it can be very damaging to my pancreas. I have been using asacol 400x12 and salfalk supp x2since most recent flairup. I have had no improvement. Currently going about 10-20 times per day with an awful lot of blood,clots and mucus not significant amts of stool. I have read how many people find probiotics to be a great help but my GI has now told me that these can prove fatal in people with my type of pancreas disease. I will be seeing GI on 20/03/08 for a scope to see if disease is bad enough to warrant trying steroids. Is there any meds out there that are nonsteroidal but still effective in bringing on a remission? I also wondered about how much blood is too much--every flair is always accom by blood but this time 5-6 times a day toilet is wine red & filled with clots? Normal? I was told to go to er if I began hemmoraging! ant get hubby to look as sight of blood causes him to actually pass out!!! I generally do well with my colitus and have most of my problems, hospitalizations due to pancreas. I am amazed at how supportive of each other you all are.
Thank you for any help or advice you could provide.
PS- Question on another link asked about handedness--Im a leftie.