Hi. I am so happy your daughter is able to get back to school. My daughter missed 9 weeks last year (October/November) and again about 9 weeks this year (almost the same time of year).
We have a 504 plan in place with the school district. It lists her "disability". It describes how the disability limits activity. In her 504 plan it says she is often absent based on symptoms and medication adjustments. It gives an accommodation plan. For her it has--unlimited access to restroom, no penalties for lateness due to use of restroom, allowed to drink fluids or have snacks as needed, separate location for testing as needed, 50% extended time for test settings, self-limit activities and excuse from Phys. Ed. as needed.
My daughter was 15 when she was diagnosed. We worked with her guidance counselor (who was the intermediary between us and the school). I think we needed to get a note from the doctor (the guidance counselor told us what he should write).
My daughter rarely uses these accommodations. They are in place "just in case". She has never had any trouble with any of her teachers. When she was out, she tried to keep up with as much work as possible. When she returned, most of the teachers worked with her to allow her time to make up some of the work. Her guidance counselor has been a godsend and has been there every step of the way. My daughter is an honors student through it all.
Each year we have to renew/update the 504 plan. We needed to get a new doctor's note (said the same thing as last year). We sign, the school signs, that's it.
We also registered for accommodations with College Board (for Regents) and will do the same for ACT testing. Again, it is a one-time registration. It also gives her 50% extra time if needed. If nothing else, the extra time gives her peace of mind and let's her concentrate on the test not the illness.
Besides the 504 plan, I would get in touch with the teacher, the nurse, and the principal. I have found that if I am up front with everyone, it works fine.
If you need any help, let me know.
--Mom of bratcat (16 years old)--
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.