canasa question

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lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/7/2008 8:05 PM (GMT -7)   
I'm just coming out of a Flare and tapering off Entocort.  I also take Asacol and Canasa.  I take Asacol every day and usually take the Canasa during a flare with the Entocort.  I flare so often.  Last time I was only able to go  eleven days when I flared again.  The time before that I was able to go 3 weeks before I had another flare.  My question is, does anyone take Canasa every day, even when not flaring.   Maybe taking it every day would help me.   Thanks for being there.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/7/2008 8:08 PM (GMT -7)   
I've never taken Canasa every single day for long term use but my GI has said that he has patients that use Canasa every day for years as maintanence. So yeah, it's possible but this is something you should discuss with your doc.
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/7/2008 8:13 PM (GMT -7)   
Thanks Red_34, Will give my doc a call on Monday. I just feel that what I'm on isn't working for me. If only we could all go into remission. What a wonderful thought.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/7/2008 8:17 PM (GMT -7)   
I recently posted something like this, too. I had been using Canasa each time I noticed pain or some blood and then within a day--two at the most, everything was fine and I'd go off the Canasa. However, every two weeks I am doing this! It was suggested to me that I stay on the Canasa longer and taper less quickly. I am trying that, now. My plan: two a day for a few days and then decreasing to one a day for a few days and we'll see if I can get past the every two weeks using Canasa for a day or two. I am going to call the GI nurse and just let her know what's been going on since I saw she and the GI doc in January. At that time, I was bleeding a lot more and finally got the Canasa script. Sorry to ramble!! Hope this helps and others will share--I'll be looking to see the responses, too!
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/7/2008 8:56 PM (GMT -7)   
AlabamaBabs sounds like you flare up as often as I do. I'm going to taper off Canasa a little slower until I talk to doc during the week. Just trying to find the magic potion that will work and have all this gone out of my life. Thanks for the info.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30076
   Posted 3/8/2008 12:52 AM (GMT -7)   
Hi...it's not that you flare that often, it's that you go off the meds (rectal) too quickly. They are to be tapered as well.

I'm wondering why you're not using a stronger rectal med such as Rowasa (retention enema)? It will treat the rectum AND the sigmoid...please consider to try them.
 
Is your UC throughout your colon?  You could also be taking the Asacol twice a day instead of thrice.  Possibly upping it to 8 daily 4 x twice daily.
 
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/8/2008 5:57 PM (GMT -7)   
Quincy--just a quick question--does the retention enema go up higher and/or stay in the rectum area longer? When I call the GI nurse Monday, I want to tell her about my 'hit and miss' trials with Canasa. I wonder if GI doc would prescribe Rowasa?
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/8/2008 8:20 PM (GMT -7)   
Hi quincy, Thanks for the info. I see now that I stop everything too quickly..I'll taper off the Canasa this time and see if it makes a difference. When I had a colonoscopy 6 months ago the doc didn't see uc but he says I have all the symptoms. I have about 20 bm's a day with the blood and mucus when I flare, so he's treating it as uc. Thanks again.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30076
   Posted 3/8/2008 11:32 PM (GMT -7)   
AlabamaBobs....the liquid goes higher..it's meant to treat up to and into the sigmoid...it probably goes a bit past, but at least the most difficult areas to treat will be dealt with.

For some, they're difficult to retain...some cannot at all, I've used them for over 19 years without a problem.

You should request the Rowasa...not wait for the doc to prescribe them.

Don't fall for the "you have pancolitis and it won't treat the whole colon" bs if you're given it. Since UC starts at the rectum, it'll need all the help it can get.

The dosage of Rowasa is 2 grams or 4 grams of mesalamine in a 60 ml amount once it's shaken. The 4 gram dosage is what's mostly prescribed. Canasa s 1 gram (1000mg)...you can already see the difference in concentration of medicine directly to the area.

Canasa is good for tapering or even for maintenance...it's not really a good enough amount for treatment..although it's better than nothing and can be used up to 3 times a day.

Let me know if you get them...don't wait. Better to know if you can use them...best to get with an effective treatment option that's only been around for over 20 years. They're expensive, and come in a box of 7 enemas. You may have to use them for a while, but the pay-off is huge if you can use them.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30076
   Posted 3/8/2008 11:35 PM (GMT -7)   
lenie....the goal shouldn't be to taper off the Canasa...it should be to taper to a maintenance dosage. With Canasa, I would say twice a week nightly would be good while in remission....and as soon as any symptoms become consistent for more than a few days, start them daily/nightly again.

Did the doc do biopsies during your colonoscopy? What was the report?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


tipoil
Regular Member


Date Joined Feb 2008
Total Posts : 21
   Posted 3/8/2008 11:54 PM (GMT -7)   

Hi Quincy;

 

When you say you have used the enema for over 19 years, I don't supose you mean daily for the whole period ??  What is the longest period you have used them for ?

Also for those who have a problem retaining them, this may be of interest.  I was prescribed the ememas 21 years ago when I was first diagnosed with UC and as much as I tried, I could never retain them.  I was given the supository form instead.  Now 2 years ago, it got so bad that I decided to try the enemas again.  I cannot give you the reason why, but I have no problem at all retaining them now, but I only use them at bedtime. This would be the only positive difference I have noticed while aging tho.....lol


male Dx = UC 1987


Rousel
New Member


Date Joined Mar 2008
Total Posts : 11
   Posted 3/9/2008 12:13 AM (GMT -7)   

Hi

Just started using Canasa again to beat back a flare up.  The plan is to continue using it as a maintenance drug two to three times a week once the flare up is controlled.  My last G.I. has several patients using Rowasa as a maintenance drug, I opted for the Canasa it's a little less of a hassle than the Rowasa.

Currently taking  150mg Imuran, just stopped the Asacol.  So far so good.  Does anyone out there have problems with tender foot soles.  I can hardley walk when I first get out of bed or get up from sitting for awhile.  It gets better as I walk around.  Just wondering if this is another part of the disease or a side effect of the drugs.

thanks

 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/9/2008 7:23 AM (GMT -7)   
I am in remission - and I am currently taking Canasa daily.   Along with all my other meds of course.  I restarted them a few weeks ago after being off for almost 2 years because I had a little bump in the road - tiny amount of blood in the toilet.  Didn't want to let it get out of control - and the blood was bright red so I knew it wasn't from further up the colon.  Stayed on them 2x daily until I saw no blood for a week straight - then went down to 1x daily at bedtime.  Have been doing 1x daily for about 2 weeks now and am considering dropping to every other day.  The key to getting off these things is a very slow taper.  Go too quickly and all the symptoms come right back.
KTM


quincy
Elite Member


Date Joined May 2003
Total Posts : 30076
   Posted 3/9/2008 9:05 AM (GMT -7)   
Correct KTM....the thing is that it's easy for us to want to hurry things up. Not that it's bad...but there's a psychological component that sometimescan interfere...meds are bad...which isn't true. Some are meant to be used for treatment and maintenance. I admit they're a hassle and I grumble sometimes when I have to use the enemas..still.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30076
   Posted 3/9/2008 9:09 AM (GMT -7)   
tipoil....as my signature states....increased for treat, tapered to maintain...it's a process. I'm at one every 4 nights...and won't go past every 5 nights anymore. Spring is a stressful time for me (although hopefully not this year).

The longest I've used them nightly is for 4 months. Very bad time for me...

I tapered off them in the first few years.....alas, not worth it for me.

It's great you can retain them.....to me, the 5ASA retention enemas are a miracle med. My flares have never been worse than the first years...and my last c-scope was awesome...happily.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/9/2008 10:49 AM (GMT -7)   
Hi, what are the 5ASA retention enemas? Is that the same thing as Rowasa? A miracle sounds good! LB

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 3/9/2008 11:45 AM (GMT -7)   
ColitisIsTheWorst - yes, the 5ASA retention enemas are Rowasa (or the generic is called Mesalamine rectal suspension).
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/9/2008 12:11 PM (GMT -7)   
Sara--Thanks! We have a very similar history, but i've never tried metamucil, does it help? Lb

lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/9/2008 1:51 PM (GMT -7)   
quincy...Thanks for the info. Instead of stopping the Canasa I will try it for 3 X a week and then go to 2 X a week and maybe this will help me. If this works, Bless You. Well even if it doesn't work, Bless You. I notice reading all the posts that everyone knows so much about their colon. I feel pretty ignorant when it comes to that. Next visit to the doc I will find out more. Thanks
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 3/9/2008 2:09 PM (GMT -7)   
if you try the rowasa enemas and at first you cannot retain it. Keep trying. I couldn't hold it for the first week or so, then got better and better at it.
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission
 
asacol 400 mg 3 tabs 3x a day, didn't work
was on prednisone, doc took me off.  Asacol didn't help.
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid,mesalamine enema every other night, Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/9/2008 2:18 PM (GMT -7)   
Lenie - starting at 3 sounds fine if you are bleeding pretty badly.  However, I would not drop down to 2 or 1 until you are seeing no blood for at least 1 week straight.  If you drop down the dose too quickly the bleeding will come right back.  And if it at any time during your taper you see bleeding again - jump back up a level - meaning if you dropped from 3 to 2 and saw blood again go back to 3, dropped from 2 to 1 and saw blood, go back to 2, etc.  And start the cycle again.  Good luck!



KTM


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/9/2008 5:01 PM (GMT -7)   
KTM...so much good information. I was just telling my husband I've gotten so much good info from this forum. What you say makes sense. Thanks a bunch for taking your time to share this.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30076
   Posted 3/9/2008 11:41 PM (GMT -7)   
lenie...can you clarify how you're going to do the canasa again?

If I read yours correctly, you mean to use them 3 times a week?
If that's what you say.....it's not enough.

Do them at least twice daily...one at night, one in the morning until you have absolutely NO symptoms. Then continue for another week....

You could maybe go every second then third day of the morning ones but stay on the night ones for at least a month...then work on tapering them.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/10/2008 8:35 AM (GMT -7)   

Good catch there Quincy.  I understood it to mean 3X daily for a week and then 2X daily for a week.

Lenie - 3x a week is certainly not enough.  You should be on at least 2X daily at the beginning - even 3X daily - before beginning to taper.


KTM


Rousel
New Member


Date Joined Mar 2008
Total Posts : 11
   Posted 3/10/2008 8:59 AM (GMT -7)   

Regarding the Canasa, do you realize they come in 500mg and 1000mg.  You need to be careful about doing too much, just like any med.  I do 1000mg 2 times a day during flare ups. I'm not sure if it's ok to do 1000mg three times a day.

 


Imuran 150mg daily  5yrs
4800mg Asacol daily until last week  for 10yrs
2 1000mg Canasa daily started last week to replace Asacol
goal is to taper to maintenance 1 1000mg every other day

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