To take prednisone or not to take prednisone

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Moonbubbles
Regular Member


Date Joined Jul 2006
Total Posts : 38
   Posted 3/9/2008 1:07 AM (GMT -6)   
My colitis is being weird. I haven't had solid BMs much in the past month and a half or so. Once in a blue moon that happens where things are normal. Now, I'm not having urgency, but when I do go it's very little and loose and there's blood. I know it's not good, but it keeps going up and down. I was bad, then good, then bad again with the BMs. I've been off and on prednisone; I'll be on it for 2 months, then good for a month and a half, then back on prednisone again. My eyelashes are falling out easily and my hair is thinning. Don't know if that was the prednisone or lack of some vitamins...(?).

Problem is...right now I don't have insurance. Good news is I'm going to have it May 1st. For now, I have to pay full price for a doctor's visit, and he's a general doctor :P.

And the only other meds I've taken are 6mp which made me nauseous 24/7. If the 6mp is better for your body than prednisone, I'll do it. I'm a little scared of enemas :P

Any advice is definitely appreciated.
UC since 2002 towards the end of senior year in high school, meds Asacol 4pills 3xday, Prednisone - now @ 60mg tapering to 40mg next week if all goes well.


Moonbubbles
Regular Member


Date Joined Jul 2006
Total Posts : 38
   Posted 3/9/2008 1:10 AM (GMT -6)   
had to change my signature. i guess last time i was on here i was on pred. i'm not right now though. and i'm only going to the bathroom once a day
UC since 2002 towards the end of senior year in high school, meds Asacol 4pills 3xday, Prednisone - now @ 60mg tapering to 40mg next week if all goes well.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/9/2008 1:35 AM (GMT -6)   
For most people, 6MP has less side effects than Prednisone. But if you're nauseated all the time, It may not be better for you. Since you're going to have insurance in less than two months, Pred might keep you under control until then. When your insurance takes effect, try to get back on 5-ASA's and do consider rectal meds also.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Moonbubbles
Regular Member


Date Joined Jul 2006
Total Posts : 38
   Posted 3/9/2008 1:43 AM (GMT -6)   
Is asacol 5-asa?
UC since 2002 towards the end of senior year in high school, meds Asacol 4pills 3xday, Prednisone - deciding to take or not


JerryGarcia
Regular Member


Date Joined Feb 2008
Total Posts : 68
   Posted 3/9/2008 4:23 AM (GMT -6)   
Hi!

Firstly, your symptoms seem to mild so far to be considering Pred, you don't want to end up steroid dependent so early on. You should try rectal meds first, I was scared of them too but the 10% steroid foam stopped my bleeding within 10 days and it's a doddle to administer (takes 15 secs before bed).

How quickly has Pred worked for you in the past? Is it instant or does it take a while to kick in?
DX with UC Jan 07
Currently taking Colazide (allergic to Asacol and Pentasa) 6 a day
Also taking VSL3 X1 a day


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/9/2008 9:19 AM (GMT -6)   
Moonbubbles said...
Is asacol 5-asa?

5-ASA's include Sulfasalazine, Asacol, Colazal (Balsalazide) and Pentasa. They are also available as rectal meds - enemas and suppositories. They can be very effective, but if your budget is limited, they're a bit pricier than either Imuran or Pred. But many fewer side effects.
 
I did miss in your signature that you're taking Asacol, sorry. Do consider the rectal meds, though.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30835
   Posted 3/9/2008 10:58 AM (GMT -6)   
Yep...rectal meds...start with at least the Rowasa (or generic), which is a 5ASA retention enema.

Can't stress rectal meds enough.....

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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