pain on my left side...

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billo
Veteran Member


Date Joined Mar 2006
Total Posts : 558
   Posted 3/9/2008 4:50 PM (GMT -6)   
I havent been taking my meds for a while (sulfasalize) not pred!
in the last month, maybe 10 days out of 30
but the pain seems to come around the same time (not every night) i just started a few days ago and got it again last night (usually starts at 8 pm), (2times), on my left side underneath my rib cage. When I'm experiencing the pain its VERY hard to take a deep breath.

also I just had a bm, and had some blood but it wasnt painful, curious what you think.... YEAH i know, 'take the meds', but I hate the idea of living my life around meds etc..

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/9/2008 7:19 PM (GMT -6)   
Billo, it does seem sometimes we have a choice of living our lives either around the meds or around the bathroom, doesn't it?

Do you know what part of you colon is involved in your UC? Rectal meds will help with proctosigmoiditis, but nothing much higher than that. I'm sure others will have ideas for you, but all I can say is "take the meds." In addition to helping control the bleeding, D. and pain of a flare (which it sounds as if you are headed for), they help protect from colon cancer.

If you take your sulfasalize now, perhaps you can avoid having to go on Pred.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


billo
Veteran Member


Date Joined Mar 2006
Total Posts : 558
   Posted 3/9/2008 10:28 PM (GMT -6)   
yeah i went back on the meds tonight, just to be on the safe side, but the pain felt more like a chest pain, but just under my rib cage on the left side...

* 1/3 of my colon has U.C., (descending), i heard ascending is worse, is that true?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30384
   Posted 3/10/2008 12:46 AM (GMT -6)   
sounds as though it could be gas.....especially since you're flaring.

Rectal meds....is that in your future?

You have a choice to either use meds or not....seems to be unnecessary suffering if you choose not to.

Regarding your question about ascending being worse...if UC is into the ascending colon, that would mean the whole colon is involved...called ulcerative pancolitis.

I don't think you can compare, for some with limited have more difficulty in controlling symptoms than some who have pancolitis.

One thing you might not know is that UC can spread....and some who haven't been compliant with taking meds have had that happen...much to their shock.

When was your last c-scope?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


billo
Veteran Member


Date Joined Mar 2006
Total Posts : 558
   Posted 3/11/2008 7:47 PM (GMT -6)   
i've only had 1 cscope in november of 05.... wow i knew that it could spread but didnt think that taking meds helped w/ that... i figured it will spread or wont regardless of meds and that the meds only treate the symptoms....

quincy
Elite Member


Date Joined May 2003
Total Posts : 30384
   Posted 3/12/2008 1:14 AM (GMT -6)   
Well, I can say it doesn't hold true for everyone, but not everyone which it's happened was compliant with their meds. As well...symptoms don't always match what's going on in our bodies. Some UCers with pancolitis have less symptoms than others who have UP. Some UCers with obvious inflammation visually (as seen with a c-scope or s-scope) claim they feel great. Others with visual low inflammation have more extreme symptoms than what the expections of it would be.

One med that won't prevent the spread (from MY perspective) is prednisone.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 3/13/2008 6:52 PM (GMT -6)   
That pain on left-side below ribs sounds (to me) like inflammation brewing in the left colon. I agree with Judilyn that you should not go off your meds. If sulfasalazine seems to disagree with you, there are other 5-ASA options like Colazal or Lialda you could ask your gastro about. Take care! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)
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