Posted 3/10/2008 3:54 AM (GMT -6)
Hi, I am new here.
I have had ton's of flareups in the past 20 years, am now 45. I have waived alot of them off by taking Primal defence (by garden of life), a very potent, strong probiotic formula.
To make a long story short, I went into a full swing flare-up...running to the bathroom, scared to even read to daughters class during handwork, scared to even shop unless I've starved myself. I have medi-cal, touched bases with my primary doctor, got immediate referral for local GI I've (unfortunately) known for the past 12 years who lets me come to their office even though they don't take medical patients. He is a great older GI doctor and we have a good relationship.
His office took 5 business days to respond to my request for an appt., explaining clearly how he always was encouraging me set up an appt and come straight in should I have a flare up. The 5 business days were that many more days of distress (as you all know reading this), loss of blood, loss of control of by bowels, loss of energy. There is so much I want to ask for feedback but will try to stick to my story. So I saw this GI in his office this past Thursday. He recommended Asocol (sp? close enough) for beginning stages, if gets worse will add on higher dosages and or prednezone. This past Friday I went to my pharmacist with the prescription, super looking forward to starting the drug. The next day he said he couldn't process as a tarf (medi-cal term I don't totally understand) would take 1 1/2 to 2 weeks to process before I could get the drug.
All of you here I assume understand that is too long. With diahrreah, blood loss, etc., that is just extremely unhealthy. The pharmasist mentioned twice "it would have helped if the office had responded sooner" which I did not understand as it was only one day after...but apparantly as they didn't act on my appt they didn't act on this.
My question is, what do I do?! This is affecting my work which is super physical (massage and hard housecleaning for money), plus I am a single mom with my daughters big 9 bday this Sunday and Easter break soon after...
I am a little freaked and sorry for the long post...I partly wanted to get on a support group site just to help deal so that part is good. Any advice?? Marguerite