Recent, bold UC flareup/on Medi-cal

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marguerite
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/10/2008 3:54 AM (GMT -6)   
Hi, I am new here.

I have had ton's of flareups in the past 20 years, am now 45. I have waived alot of them off by taking Primal defence (by garden of life), a very potent, strong probiotic formula.

To make a long story short, I went into a full swing flare-up...running to the bathroom, scared to even read to daughters class during handwork, scared to even shop unless I've starved myself. I have medi-cal, touched bases with my primary doctor, got immediate referral for local GI I've (unfortunately) known for the past 12 years who lets me come to their office even though they don't take medical patients. He is a great older GI doctor and we have a good relationship.

His office took 5 business days to respond to my request for an appt., explaining clearly how he always was encouraging me set up an appt and come straight in should I have a flare up. The 5 business days were that many more days of distress (as you all know reading this), loss of blood, loss of control of by bowels, loss of energy. There is so much I want to ask for feedback but will try to stick to my story. So I saw this GI in his office this past Thursday. He recommended Asocol (sp? close enough) for beginning stages, if gets worse will add on higher dosages and or prednezone. This past Friday I went to my pharmacist with the prescription, super looking forward to starting the drug. The next day he said he couldn't process as a tarf (medi-cal term I don't totally understand) would take 1 1/2 to 2 weeks to process before I could get the drug.

All of you here I assume understand that is too long. With diahrreah, blood loss, etc., that is just extremely unhealthy. The pharmasist mentioned twice "it would have helped if the office had responded sooner" which I did not understand as it was only one day after...but apparantly as they didn't act on my appt they didn't act on this.

My question is, what do I do?! This is affecting my work which is super physical (massage and hard housecleaning for money), plus I am a single mom with my daughters big 9 bday this Sunday and Easter break soon after...

I am a little freaked and sorry for the long post...I partly wanted to get on a support group site just to help deal so that part is good. Any advice?? Marguerite

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 3/22/2008 4:07 PM (GMT -6)   
Hi, Marguerite. I just happened to see your post. Sorry, I don't know what "tarf" means, but the 1-2 week wait for Asacol Rx via Medi-Cal probably owes to the fact that no generic is available for this med. Did you ever have a colonoscopy to find out the extent of your inflammation? / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/22/2008 4:47 PM (GMT -6)   
Welcome to HealingWell, Margeurite. I've never worked with MediCal, so don't know what to say about that. My only suggestion is to contact the Gi and ask if he can provide you with enough samples of Asacol to hold you until your prescription is filled. I'm assuming that Asacol is not on the formulary Medical uses, so they have to have a justification from the doctor and then do the approval process. Since the GI doesn't normally take MediCal patients, he probably didn't know the procedure and this slowed things down.

Call him and see if he has samples you can take.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 3/22/2008 11:02 PM (GMT -6)   
I'm assuming since you have Medi-Cal you may be going to a county hospital or clinic. Try to find out if the place you're going to has medical social workers (not a Medi-Cal SW, but a professional social worker that works in the medical feild). I know a social worker that works in medicine and the stuff she knows and what she can get done is amazing.
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