Confused - need some insight please......

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Red_34
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   Posted 3/10/2008 5:49 AM (GMT -6)   
I don't even know how to go about asking this so I apologize if this doesn't make much sense! lol Little Uc background: I'm in remission, going only once or twice a day with solid bms (almost full caliber - yay!).  Some nerve damage background: I found out just last year that I have nerve damage on the right side of my body.  Don't know the extent of it just yet but I'm persuing the matter.  I am now having nerve damage symptoms on the left.  Tingling feet, shooting pains down my leg, muscle weakness (not sure if this is related to the nerve thingy or not).  I also have sacroiliitis, had a couple epidural injections - not sure if it is related to what I'm experiencing.
 
So here is the question/problem: For the past 2 months or so, I would go to the bathroom (to urinate) and I would wipe only to realize that some stool has come out.  I'm not talking alot but more of the "skidmark" variety :).  Never ever in all my years of having Uc have I ever had that happen.  Sure, I've had a couple accidents but I was flaring at the time.  I also know that the "skidmark" is not from farting because for example - I can just come out of the shower - not have any "activity", go to pee and find it there.  I don't even feel anything when it happens so I don't know when it happens.  I can usually tell after the fact because I start itching down there because it irritates the skin. 
 
Does this sound like a Uc thing or a nerve damage thing?  I just need opinions because I'm seeing my primary today and my pain doc on Wednesday and I'm wondering which doc to bring this up to (my primary, my pain doc or my GI).  It just disturbs me because I have no feeling down there (even when I have a bm - it's almost numb).
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 3/10/2008 6:02 AM (GMT -6)   
hey red,
sorry to hear you are having so much trouble! no having experienced this, i am tempted to say nerve damage--but that is solely anecdotal. to be safe, i would suggest talking to both doctors about it. if nothing else, it always helps to have a second opinion. let us know how it goes and how you are feeling!
take care,
~k
katie; 23
diagnosed with cecal volvulus, 2006; two colon resections in the same year; diagnosed with colitis 2007; malrotated colon; no cecal valve, removed during surgery; gastritis
Amitriptyline to slow gastric emptying; Forvia; Compazine; 2 TSP of apple cider vinegar before meals (weird, but so far I am a believer in it).


jujub
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Date Joined Mar 2003
Total Posts : 10407
   Posted 3/10/2008 6:59 AM (GMT -6)   
Sounds neurological to me. The bowel and bladder are served by nerves from the lowest level of the spinal cord, even below the legs. If you're having those leg symptoms, it doesn't surprise me that you're having some B/B problems. Any leakage of urine?

At any rate, if you haven't had a lumbosacral MRI, sounds like that may be in order. Sometimes your lower spinal cord can be impinged on by shifting vertebrae or bone growth as you mature, and that can cause this type of symptom.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 3/10/2008 7:04 AM (GMT -6)   
I would ask my Dr about Pelvic Floor Dysfunction and the anal sphincter.

  1. Colostomy May07
  2. Rectum removal and hernia repair Oct 07


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 3/10/2008 8:03 AM (GMT -6)   
I will also have this happen at times. I'm not sure what causes it. Hasn't happened recently though. My body is slowly being put back together! I've seen my chiropractor about 12 times in the last three weeks. My lower back was/is a mess (along with the rest of my back and neck) - which I've found contributes to some of my bowel and nerve issues. I've slept so much better too! So, something in there - or a combination of it all - is making my gut behave better as well.

Have you considered checking with a chiro for your issues - for another opinion?

With the numbness you're experiencing, how you you "know" when you have to go??? Do you still feel the pressure? Sorry, curiousity killed the cat...
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
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Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/10/2008 8:18 AM (GMT -6)   
No, no urine leakage however I have to consciously make an effort to get it all out. It's like it stops after going for so long-I can still feel like I have some in there so I have to push to get the rest out and I'm surprised that I still have quite a bit in there. This doesn't happen all the time but it's getting more frequent.

Dawn, lol I'm glad cats have 9 lives :) Yes, I still know when I have to go. It's almost as if only the last 3" (maybe less) of my rectum is numb.

I was sort of afraid that it might be neurological in nature. I've been in denial about that to tell the truth. I've been having some other neurological issues for the past few years but nothing major and not for extended periods of time. More of a sporadic thing. But the leg muscle weakness is starting to get to me. It's gotten to a point that as soon as I wake up, go up the stairs to the kitchen (my bedroom is in the basement), my legs feel as if I ran a marathon. But I was hoping that I could blame the fecal leakage on my Uc! lol
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/10/2008 11:26 AM (GMT -6)   
Just an update from the docs office. She took 6 vials of blood and is testing me for all these weird things such as scleroderma (sp?), lupus and some other things (can't remember) as well as B12 and B6 deficiencies. Plus, I'm going in on Saturday for an MRI to check for MS. Has anyone had an MRI before? I haven't so I don't know what to expect. I am having one of my brain (with contrast) and one of my lower spine.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/10/2008 11:43 AM (GMT -6)   

I had an MRI a few months ago and it wasn't too bad. Just be prepared that the shot for the contrast is a big needle and it makes your whole body warm when it goes in. I don't know if they will need for you to clean your bowels out, but as I am sure you know, that is never fun...

Good luck! Lb


Asacol, 4 pills 4 X a Day
Rowasa at Night
Canasa in the Day
Prednisone 40 mg--I'm flairing right now.
VSL #3
Kariva (birth control)


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 3/10/2008 11:57 AM (GMT -6)   
I had an MRI (brain) in May of '07, I think. Wasn't bad at all. I just laid very still and tried to count the clicking noises. (the engineering part of my brain never shuts off...)
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


hekela
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Date Joined Nov 2006
Total Posts : 731
   Posted 3/10/2008 12:03 PM (GMT -6)   
i'm glad they are taking this seriously for you sherry! at least they're not blowing it off like it just must be related to UC.
hope you have a skid-mark-free day!! :p
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


jujub
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Date Joined Mar 2003
Total Posts : 10407
   Posted 3/10/2008 12:52 PM (GMT -6)   
I'm glad you followed up, Sherry. There's a good chance this is something that can be stopped or reversed since you followed up early. Based on your symptoms, my first thought was pressure on the lumbosacral spinal cord from something.

I've had several MRI's to check the Pred damage in my shoulders. There's no discomfort, quite a bit of noise, but it's muffled by the earphones they give you. My difficulty is that I get severely claustrophobic. Last time (even after a healthy dose of Xanax) I almost went into a panic attack, and they had to pull me out to give me a break. But if you don't have issues with claustrophobia it should be a breeze for you.

One thing - the first time, I forgot to take my watch off when I changed, so laid it off on a table in the MRI room. After the MRI, the battery was completely dead. Don't wear metal jewelry, etc. because you'll have to take it off for the test.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 3/10/2008 12:55 PM (GMT -6)   
Sherry...it could be a combo of nerve-related/sphincter and stool consistency related. Even though yours are of the formed calibre variety (lol), there could easily be some stool that is hurried more quickly through or depending on what you ate, some that the consistency is much more soft and easily not felt by the rectum and is expelled during pushing while urinating.

I've had that happen to me on occasion, more when I'm flaring.

When the stool is more soft, for me..I've been eating more fruit and using digestive enzymes which could be part of why the stool might be softer). I think taking a fibre supplement could be helpful as well (which I'm going to consider what's one more thing.lol)...just enough to bulk things up a bit more.

Scary for all the things you're going through at this time...it's good the doc is getting you tested for a host of things.

The MRI is very noisy, and you'll be in a small area for a lwhile. Hope you're not claustrophobic...if you are, a xanax can help as well as keeping your eyes closed.

I've had both head and abdomen done. The head one was loudest. The abdomen one...my head was closer to the end of the "tunnel" and it wasn't bad at all. As well, I had to do breathing successions on command, so didn't have time to feel anxious.

You'll be fine with it.

Keep us posted as to how you're doing.
quincyxx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/10/2008 3:42 PM (GMT -6)   
Thanks for the reassurance about the MRI. I'm slightly claustrophobic but nothing that I'm sure I can't handle. I had to change my appt for the MRI to Monday because I forgot that I had a bday party to go to at the same time as the appt. Wasn't exactly sure how I was going to react to the contrast so I thought better not take the chance. I seen my gma go thru MRI's - well not actually SEEN it but I was with her after the contrast and it gave her D. Did the contrast do that to anyone else?

Yes, I LOVE my primary. She's very thorough with everything and leaves nothing to chance. I also love that she seems to know alot about Uc and is intuitive when it comes to doing what needs to be done.

Thanks everyone :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/10/2008 4:58 PM (GMT -6)   
Hi Sherry. The MRI is a great tool to see if there are disc issues in your spine, and it can help zero in on what is really going on. I am a bit claustrophobic and didn't have any Xanax when I had my spinal MRI done. It wasn't bad, but wouldve been more fun with drugs..haha. Best of luck and let us know how it goes!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.

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