weedlewub... how are you?

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hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/10/2008 1:01 PM (GMT -6)   
are things going any better for you yet?
how did the holistic doc visit go?

i was just wondering how you are doing and also wondering if you saw my reply that you can definitely nurse while taking asacol and pred? i know it is far from ideal, but at least you wouldn't have to wean!!

hope you are having a good day!
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/10/2008 8:56 PM (GMT -6)   
bump
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/11/2008 1:44 PM (GMT -6)   
one more time
:)
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/11/2008 9:52 PM (GMT -6)   
okay, last try...
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.


weedlewub
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 3/12/2008 1:42 PM (GMT -6)   

Sorry.  I haven't been on the computer in a while.

I am doing a little better.  I went back to my holistic doc and he adjusted my supplements (I need to adjust my signature) and I have been feeling a little better since.  I also went to my family doctor on Friday, who referred me to a new GI doc, but he can't see me until the beginning of April.  I just want to discuss my options with him at this point.

Weaning isn't an option at this point.  My son has an allergy to something in the formula (we have tried three different kinds).  He swells up and breaks out in hives.  I tried a new kind last Friday and had the same result.  Our alternative at this point is to buy the really expensive lactose and dairy free kind and try that, but there is no way we are going to pay $60 a week in formula right now.

I keep losing weight, and I am slightly worried about that, but my family doctor assured me that my son is getting enough from the breastmilk so long as I am taking my prenatal and eating well.  He seems to be thriving.

I think I'll start getting better when I get some sleep.  Four hours a night really can't be helping the healing process at this point.  I just need to be patient and know that if the supplements are going to work it will take longer than traditional meds, and eventually he will sleep through the night.

Thank you so much for your concern.  I am going to discuss nursing and meds with the GI doc in April.  I keep thinking maybe I could take the meds to end this flare-up and then try to maintain remission with the supplements.  Who knows at this point......

 


Diagnosed with UC in Jan 2006
took Asacol and  2 pred tapers
pregnant in Jan 2007 - went off meds
flare during pregnancy - went back on Asacol and pred taper
stopped drugs for nursing and now taking a holistic approach
 
Currently taking congaplex, zymex, multizyme, l-glutamine, calsol, protefood, colechol II and homeopathic "intestinal distress" drops.


weedlewub
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 3/12/2008 1:42 PM (GMT -6)   
By the way, congrats on your pregnancy!!  Are you having any complications with your UC and the pregnancy?  I was a mess with mine :)

Diagnosed with UC in Jan 2006
took Asacol and  2 pred tapers
pregnant in Jan 2007 - went off meds
flare during pregnancy - went back on Asacol and pred taper
stopped drugs for nursing and now taking a holistic approach
 
Currently taking congaplex, zymex, multizyme, l-glutamine, calsol, protefood, colechol II and homeopathic "intestinal distress" drops.


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/12/2008 11:20 PM (GMT -6)   
well i do hope you start feeling well soon!! it is very scary to be losing weight and nursing and just wanting to be well!!
i was down to 94lbs at one point before the meds kicked in for me. and once they did i felt much better and gained some weight back. hopefully you will get there soon with whatever route you choose.

and yes, sleep helps the healing so much. maybe you can nap a little during the day? i never really could...

so far my pregnancy is going fine! :) i'm so thankful for that.
my 2.5 year old just quit nursing about a month ago so i was being careful in case that hormone change did something to me. but i think i'm in the clear.
28, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Asacol, probiotics, ground psyllium husk, fish oil, prenatal

may you live all the days of your life.

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