waiting for colonoscopy results. Cruelty

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UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/10/2008 1:58 PM (GMT -6)   
I had a colonoscopy last week. I was told to call this morning for the biopsy results. I called about 9:00 AM The uncaring phone-answerer said a nurse would have to call and they were all busy. It is now almost 3:00. I am still pacing the floor in agony waiting to hear. I called again and another uncaring individual said they got my message this AM and will call when they are ready. I asked her if she had ever been in the situation of waiting for test results to see if you have cancer or not. She didn't say anything. Then she said they may not even call today if they are too busy. I am worried that since it seems only a NURSE can call, they might have found cancer. I have been up all night worrying, I am worried sick, and they treat me like I am bothering them.
 
Some of you have seen my recent posts about the GI himself and said I should get another. But here, they are all in big groups. I had bad luck with the other big group so I can't go to any of them. The man wanted to cut my colon out and I have never even been on any drugs yet. He was also going to taper my pred from 40 to 10 and that is after I talked him into tapering in the first place since my symptoms were long since gone. I noticed he is not with that group anymore.
 
Why can't they just call?
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/10/2008 2:55 PM (GMT -6)   
No medical office I've ever known lets receptionists or office staff give test results. All of my doctor's offices return calls between 4 and 5 in the afternoon, after they finish seeing patients.

I know it's hard to wait, but try to relax. The odds are overwhelmingly in favor of a negative result.

Hugs.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/10/2008 3:10 PM (GMT -6)   
it's very hard to wait!! After my Kidney biopsy, I had to wait another 5 days after when I thought I would. The Dr. was nice, he was the one that called me to tell me the results were going to be delayed. I cried my eyes out when I got off the phone but it does happen and it is torture to wait.

I also have to wait month to month to find out if my kidney's are getting better and it is awful, I feel like I am living month to month, just waiting to find out about my test results.

Please let us know how it goes!
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/10/2008 3:46 PM (GMT -6)   
Oh I HATE that feeling! Of being on pins and needles waiting for the nurses or docs to call. Excruciating! Luckily, all my docs and staff are caring enough and don't treat me poorly. Sometimes my GI will call himself if I having a rather rough time. Hang in there, I know it's tough...
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/11/2008 9:28 AM (GMT -6)   

I finally got my results. Negative.

The report also lists remission,  as he told my son in the waiting room. My son said the other doctors went up to the families and talked to them. Mine just came to the doorway raised his hand from across the room and said "Everything's fine. Shes in remission. See you in two years." and left. I don't know where he gets remission. I missed the first chance I ever had to go to a hockey game Saturday night because of all day D and I have been bleeding and having D daily since early December.

The report also listed "stay on Asacol." When I went in to set up the colonoscopy only two days before it, The GI and I had a discussion about that. I told him my insurance would not let me have Asacol. He said "we'll just give you Azulfadene. That's cheap." I told him I had tried it in 1983 and just one pill had cause  uncontrollable vomiting and then he became "Dr Backing Out The Door." I can't believe he did not remember that and put "stay on Asacol" on my report. I don't think he even knows who I am or cares.

I have moved a lot. Past GI's have said scope every one year. This guy says two. I was glad about that. I thought they must have found new research or something that says two years is often enough. ( I have pancolitis x32 years) But now I wonder if it is just because his practice is so very big and he has just too many patients. He does seem to have an awful lot of staff. He is also on TV sometimes and give a lot of seminars and talks.

I wish I could take the advice some of you have given me and get another GI, but I looked on my insurance website and I have to go to this guy.

Thanks for reading my posts. Hopefully all is over for 2 years.

Thank you

 

 

 

 


Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/11/2008 11:33 AM (GMT -6)   
I'm glad at least it was negative. And I'm sorry that you are stuck with "that kind" of doctor. It gets so frustrating to deal with a doctor that doesn't take the time. I can understand that doctors don't remember the specifics of a case because that would be virtually impossible, but if you had a bad reaction to one medication then it should be in your chart in which all they have to do is take a look. Does this doc have any other partners that you can see instead of him? Or is it set in stone that HE is the doc you have to see?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/11/2008 1:27 PM (GMT -6)   
I don't know, but even if I was allowed to see one of his partners, I would feel "funny" passing him in the hall at the office or seeing him at the hospital or something. On the other hand, the way he is, he probably wouldn't even recogzine me!
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/11/2008 3:02 PM (GMT -6)   
Who cares what he thinks! This is your health..not his. I had to switch GIs b/c my first was awful. My primary had set me up w/ him. I saw him for about a year before I realized I was getting bad advice and not being taken seriously.

Hang in there!!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 3/11/2008 5:48 PM (GMT -6)   
I get so sick of hearing about these un-caring Drs and dealing with them.Couldn't even spare one moment to speak to your family. The nerve of that guy.If you must stay with him,you will have to get bossier. Ask him if he would like someone in his family to be treated that way. I know that sounds harsh. But like Tabitha said,it's YOUR health and YOUR life. And you're right.......he wouldn't recognize your face,he sees butts all day,lol.

  1. Colostomy May07/UC
  2. Rectum removal and hernia repair Oct 07

             


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/11/2008 7:36 PM (GMT -6)   
Sees butts all day!!!!! I'm cheered up.
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4061
   Posted 3/11/2008 7:36 PM (GMT -6)   
UC since'76 said...

I told him I had tried it in 1983 and just one pill had cause  uncontrollable vomiting and then he became "Dr Backing Out The Door."


Lol! Love that line. It's not funny really, (it's obviously really crappy and stressful that you had to deal with such a prick), I just liked your choice of words and I so know what you mean, when they become "Dr. Backing Out The Door."

Is there any way you can get a new doctor? This guy sounds like a total incompetent jerk, and you deserve so much better. I am switching to my 3rd GI next week. The first two sucked. They were both in the same practice and at first I worried a little if it would be awkward seeing my 1st in the hallway after switching to the 2nd guy, but I never even ended up seeing him, and even if I had I know it wouldn't have been a big deal. Plus, like others have said, it's your health and your body! You really have no need to worry about his feelings. And, he probably has so many patients he wouldn't even recognize you just passing by.

Some doctors will give their patients samples of Asacol or other meds if they can't afford them. How come your insurance won't cover Asacol? You may also want to check with the Asacol manufacturer to see if they have any assistance programs for people who can't afford the meds.


24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 3/11/2008 10:15 PM (GMT -6)   
If you like that, you wil probably like "dancing around the doctor's ego." It is when you know your body, your health, your disease, what you need, and you have to make him think it was his idea.

They will cover Asacol. It's just that they give me a strict yearly dollar amount on prescription drugs. Asacol is so expensive that when you add it to the other stuff I have to take I don't have much "leeway". If I get sick late in the year, I will have used up all my drug benefits. I have to "budget." If I knew for a fact I would not get any illnesses all year I could probably afford the Asacol. It is nerve-wracking trying to decide what to do.

Also, I have always had symptoms that don't bother me too much but Asacol made them a little worse and made me feel bad all over. It's just that I think I heard it decreases your chance of getting cancer.

I just had a bad thought. What if my doctor reads this forum and figures out it's me? Or recognizes himself! lol
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 3/12/2008 10:02 AM (GMT -6)   
Wow... you've been thru alot in the last few days... the best thing to do when waitting for results is not to panic tho.. I've learned that panicing can only make things <pain> worse. :O( So glad you got your results and are ok!
I am with Manulife and they cover Asacol without a drug cap. I consider myself very lucky after reading your story. I had been in remission using Asacol pretty much since I was diagnosed and prescribed it. Only a week ago Monday I have had a flare up that seems very presistant. I am doubling the Asacol to see what happens.

LOL, and I hope your Doctor DOES recognized himself on here.. lol will be a good laugh for us and maybe and eye opener for him.
Ulcertive Colitis Diagnosed May 2004
Asacol 400mg 3 times per day
currently experiancing a flare up... increased Asacol to 6 times per day and may possibly add ENTOCORT 3 taken 3 times per day


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/12/2008 10:13 AM (GMT -6)   
Have you checked with the makers of Asacol about a discount program? I know we've posted about it in the past. I'll try to dig up the post...

I hope things get better!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate

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