Remicade Flair

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tamtam10
Regular Member


Date Joined Aug 2007
Total Posts : 78
   Posted 3/11/2008 9:52 AM (GMT -6)   
Hi guys,
I have been in Remission since starting Remicade last august. about 2 weeks ago I started to flair. Ive got it all except for the abdomen pain. I have my next infusion tomorrow.
Has anyone flaired while on remicade? will the next IV help to get it back in control? Or do you normally have to get back on other rectal meds? Remicade is the only med i am on right now. I have been off of the rest since about November without any problem.
 
Help!!!!
TamTam10
 
Diagnosed with Pan Colitis 2004 (age 23).
Asacol 12 per day
Prednisone, off 2006
6mp 75mg per day (got off becuase I am starting Remicade)
Canasa when needed
Remicade second infusion Aug 21st


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/11/2008 3:23 PM (GMT -6)   
I haven't flared since the Remi, but I'm also taking a maintenance dose of Colazal. I hope the next infusion helps, but if it's going to be a while, you might consider calling your GI before things get too bad.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 3/11/2008 3:37 PM (GMT -6)   
I needed to get on a more frequent infusion schedule and that seems to be doing the trick. I am still on a bunch of other meds though and trying to get off the Prednisone. See how tomorrow goes with your infusion, and if you get back into remission but it doesn't quite last until your next infusion again, then maybe talk to your GI about a more frequent schedule.

Meesh
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, down to 15/10 mg alternating daily. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums
12/1 - 12/29/07 weekly Venofer (iron) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal; Bad reactions: Imuran (2/07)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/11/2008 3:44 PM (GMT -6)   
One of our other members had the same problem and got over the "hump" with rectal meds. Hope this helps.
Carol

Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


tamtam10
Regular Member


Date Joined Aug 2007
Total Posts : 78
   Posted 3/11/2008 4:04 PM (GMT -6)   
Thank you all for your responses. I hope this infusion helps. My infusion site is at my doctors office so i will be able to speak wiht her about it briefly tomorrow. it is either that or wait 30 days to get an appt.
TamTam10
 
Diagnosed with Pan Colitis 2004 (age 23).
Asacol 12 per day
Prednisone, off 2006
6mp 75mg per day (got off becuase I am starting Remicade)
Canasa when needed
Remicade second infusion Aug 21st


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 3/11/2008 8:29 PM (GMT -6)   
I used to start flaring when I was getting close to my next infusion. I would be fine after getting my infusion.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had almost recto-vaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil,  Tylenol pm, Lyrica started 1/17/08


heen
Regular Member


Date Joined Apr 2004
Total Posts : 256
   Posted 3/11/2008 9:27 PM (GMT -6)   
I went through my last infusion and it didn't work.  A bad flare to say the worst.  They put me on pred ( I held off as long as I could).  Had another infusion last week-- doubled the dose.  I haven't noticed alot of changes as before..........it worked right away and then it was like I didn't have it.   Now it's like it's taking it's time if it's working at all.  The bleeding has been hit and miss as welll as the cramping.  The next step they tell me is double dose ever 6 weeks, then if that doesn't work try for HUmira.  It takes an appeal process because in PA it's not covered for UC.
 
I'm not real thrilled n getting surgery as I've talked to alot of people that have had it and have had real problems.  One lady had UC for 20 yrs and had the j pouch. she regrets it cauxe she goes more now than before UC and has pouchitis alot.
 
Lots of luck to ya! And prayers with you!!!!
 
 
 
 
 
Remicade- 7th infusion Jan 10,2008
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
50mgs of Imuran, Asacol 3/3x's day, Bentyl as needed
Holistic approach- supplements- fish oil, probotics, gut repair, allergy enzyme, paleofiber
 
 
 


tamtam10
Regular Member


Date Joined Aug 2007
Total Posts : 78
   Posted 3/12/2008 8:02 AM (GMT -6)   
princess colon thank you. I was hoping it could work that way. I am going to talk to my GI today so hopefully we can steer clear of the pred.

nhmm: i am so sorry you are not doing well right now. i hope you do not have to do the surgery. i have heard mixed reviews on it. good luck with the insurance. I hate dealing with that stuff. Hope things turn around soon for you
TamTam10
 
Diagnosed with Pan Colitis 2004 (age 23).
Asacol 12 per day
Prednisone, off 2006
6mp 75mg per day (got off becuase I am starting Remicade)
Canasa when needed
Remicade second infusion Aug 21st


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 3/12/2008 10:40 AM (GMT -6)   
I have not started remicade yet but my doctor does plan to keep me on asacol even after I start.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/12/2008 10:46 AM (GMT -6)   
It's been awhile, but I too remember that when I initially began my infusions, I would get some slight symptoms such as looser stools, a bit of urgency, and tiredness right before my next infusion. I don't get it much anymore, but last month I did have the tiredness.

Carol

Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 21, 2018 11:06 AM (GMT -6)
There are a total of 2,995,099 posts in 328,194 threads.
View Active Threads


Who's Online
This forum has 161316 registered members. Please welcome our newest member, Donna_S.
308 Guest(s), 10 Registered Member(s) are currently online.  Details
tickbite666, Wilderness, Jo-nock, Julie Mariah, Tudpock18, pantherman59, LauraBB, sunny days, mamabear18, Tall Allen