I went through my last infusion and it didn't work. A bad flare to say the worst. They put me on pred ( I held off as long as I could). Had another infusion last week-- doubled the dose. I haven't noticed alot of changes as before..........it worked right away and then it was like I didn't have it. Now it's like it's taking it's time if it's working at all. The bleeding has been hit and miss as welll as the cramping. The next step they tell me is double dose ever 6 weeks, then if that doesn't work try for HUmira. It takes an appeal process because in PA it's not covered for UC.
I'm not real thrilled n getting surgery as I've talked to alot of people that have had it and have had real problems. One lady had UC for 20 yrs and had the j pouch. she regrets it cauxe she goes more now than before UC and has pouchitis alot.
Lots of luck to ya! And prayers with you!!!!
Remicade- 7th infusion Jan 10,2008
Dx with UC In Mar 2004. Mainly Left sided, at times has skipped through the whole colon. Also have IBS.
50mgs of Imuran, Asacol 3/3x's day, Bentyl as needed
Holistic approach- supplements- fish oil, probotics, gut repair, allergy enzyme, paleofiber