To the parents of Uc children

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Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/11/2008 12:41 PM (GMT -6)   
Other then the obvious symptoms of Uc, was there anything else that led you to think that something else was wrong with your child?  Did they have "tummy" troubles before being diagnose and before the obvious?  What prompted you to finally take them to a specialist?
 
I'm seriously thinking about taking my daughter into a specialist because she has been having off and on "tummy" pain.  She's 12 years old and can't quite pinpoint where the pain is.  Plus she has just told me that almost every morning she has D.  She's a bit confusing lol but these are her words - I get diarrhea every morning but not every morning  eyes   She isn't bleeding but off and on for the past few years, she would get D - I wouldn't say all the time but more frequent then she should.  It could also be that her gut is sensitive to her hormones because she started her period when she was 10.  So I'm not quite sure if this would warrant a trip to the GI or not.  My husband says I'm worrying for nothing because it's probably something she ate.  But of course, as any Uc parent we worry for our children getting this horrible disease.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 3/11/2008 12:58 PM (GMT -6)   
I worry all the time. I have gotten in this habit of saving 'suspicious' poopy diapers for my hubby to inspect when he gets home. You can just imagine she loves that!

Could she maybe have IBS? I swear I had an upset tummy throughout high school. Just school in general...the classes & tests, boys, keeping up w/ my friends (who was mad at who, etc). Yikes it is giving me a tummy ache just thinking about it!

Have you ran it by her pediatrician? I had horrible, horrible periods when I was young too. I had a lot of diarhea and pain associated w/ those as well.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 3/11/2008 1:57 PM (GMT -6)   
With my daughter, I was able to just take her to her regular pediatrician and, she ordered blood work and stool tests. The blood work came back very suspicious and because of family history she referred us to a Ped. GI. Both of my kiddos had blood. Son had d flecked with blood, daughter didn't have d, but mucus and blood.

Blood work is a simple way to see if maybe something is going on. See if you could get it scheduled for a day when you know she has had issues that morning. My kids get CBC, CMP, CRP and ESR. You could also look into getting the Prometheus IBD 7 Step run. Getting insurance to cover it can be an issue and it runs about $450, but it might give you answers.

Could she be lactose intolerant? Or maybe probiotics would help regulate her system.

I so hope she does not have IBD. Please keep us posted. I will add her to my prayers!!!
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 3/11/2008 2:06 PM (GMT -6)   
I have 2 kids as well, unfortunately about 2 months ago my daughter (18 yrs old) was DX with IBS, the Dr. said that of course she'll have to be scoped in the future if her symptoms change (get worse) or develops symptoms that are more related to IBD...with myself having CD and IBS and my mom having UC and one of my sisters having IBS I just pray my daughter doesn't develop IBD as well.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/11/2008 2:10 PM (GMT -6)   
Oh she's got a lot going on in school too! No I haven't ran it across her doc yet. Her primary is my primary and fortunately she is never hardly sick so I never really had a reason to make any doc appts for her. But if it keeps up then I might go ahead and make one. Tab, you know the history of my daughter - do you suppose her stress could be causing it? Btw, she's been seeing a therapist regularly now.

Julie, she did have a problem with dairy when she was younger and as far as I know she stays away from most dairy products still. For some reason she has problems with chocolate ice cream but not vanilla so she avoids the chocolate - but she doesn't have any issues with plain chocolate candies. I hope it's something as simple as a food allergy. If it comes down to me taking her in for testing, I'm not worried about the Prometheus. My insurance covered mine 95% and all I had to pay was $60.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 3/11/2008 2:21 PM (GMT -6)   
Sherry....I would definitely run it by the doc. That being said...I don't think it would be uncommon to have tummy ailments going along w/ everything else. The good news is she is seeing a therapist:)

If it is only in the mornings maybe it truly is a nervous about school situation. Does she have a yearly checkup coming up soon? Or you could even call the nurse and see if she in concerned about it.

I'm glad she is telling you.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Co-Moderator UC Forum


Bennie
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Date Joined Nov 2006
Total Posts : 552
   Posted 3/11/2008 2:33 PM (GMT -6)   

I never thought my kids had any real tummy troubles. We are not the best of eaters in our family (too much fast food and snacks) and once in awhile, all of us (hubby, me, and 3 kids) would/will get looser bowel movements (not quite diarrhea). My oldest son (the one just diagnosed) has always been the worst eater in terms of a balanced diet. He has used the bathroom 3-5 a day forever but mostly normal movements.
Bratcat's illness seems to have come on suddenly. It is weird that she flared both times in September just after school started. Honestly, she has more stress at this time of the year (concerts, musical, music competition, extracurricular activities, etc) than at the beginning of the school year. Next September is already in the back of our minds.
Her older brother had the abcess. Until it got big, he never complained (never complains about anything--he is very low-key, low-maintenance). When the doctor mentioned that it looked like there were scars from previous abcesses, he said he "thinks" he had some issues down there in the past! As soon as Bratcat was diagnosed, I began asking about the usual symptoms--diarrhea, pain, blood, mucous. He said he had none of those symptoms (a small amount of blood once when he wiped, chalked it up to pushing too hard).
None of my kids were really ever sick. They usually got perfect attendance in school for years. Their younger brother has asthma that seems to be getting better. He has always been the biggest complainer of the family when he doesn't feel well. Must be a youngest child thing (I was the same). As he gets older, he doesn't complain as much about the little things.

Hope your daughter is feeling better soon.

 


--Mom of bratcat (16 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


Beth75
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Date Joined Jul 2007
Total Posts : 2148
   Posted 3/11/2008 2:57 PM (GMT -6)   
I'd call the GI, better safe than sorry and who knows it could just be her period but that will give you both peace of mind. I used to get D when I got my period, I would have horrible cramps and very heavy period, it was terrible! Now my period is all messed up, I went off the pill in Oct and have only had 3 periods (I know it's messed up b/c of the meds and stuff, plus I was on it for about 8 straight years.
Beth, 32
Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/11/2008 7:00 PM (GMT -6)   
Ya, that's true, even healthy women/girls that get their periods are affected with their BM behavior that don't even have GI issues.

Let's keep our fingers crossed it's something more along the lines of that.

It was heartbreaking for me to hear my daughter being DX with IBS (for now), but the reality is we have to be strong for our kids and make sure they learn how to find their own strength so they too can take charge of illness rather than letting it take control of them.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/12/2008 6:05 AM (GMT -6)   
What IS the typical amount to go to the bathroom a day for a healthy person anyway? Just curious.

Pb, I'm sorry that your daughter got the IBS diagnoses - that is not an easy thing to handle either. I have a good friend that has that and it gives her so much grief. And I have no doubt that I will have the strength for my daughter if in the event she ever gets diagnosed with IBD or any other gut issue - but it will kill me on the inside if you know what I mean.

Tab, she just had her physical but I didn't know about the D. But you know - Now that I think back on it. When she was younger, she would complain of tummy aches before school and a couple times I had to go pick her up because of the "tummy" pains. I later found out that she had a bully at school. After that was settled, things calmed down. Now that she is in junior high, things are even more crazier. I know that she has 3 girls that pick on her and her friends. A lot of drama there but she tells me all about it so I can help her with it (along with her therapist). So I definately believe that she carries much of her stress in her gut. So maybe thats it.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/12/2008 7:47 AM (GMT -6)   
Red, "normal" healthy people vary a lot too. I'd say anything from every other day to twice a day would be considered "normal." Less than every other day, and it's good to check the fiber and fluid intake. More than twice a day makes it a good idea to check things out. Plus, some people have no regular "schedule" at all. They may not go for a day or two, then go three times the next day.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/12/2008 11:06 AM (GMT -6)   
I never really thought about poops before UC, now I am super curious about it all. I asked my husband the other day what his “normal” was and he gave me a very strange face!! He did ‘fess up to twice a day. I have one friend whose normal is once every two or three days.

Another friend of mine has two children that are both celiacs. She started her family on the SCD to help them heal. She found that since she has been doing the diet, her usual tummy aches are gone. She realized that maybe she has been celiac all of these years since she had tummy aches since she was a child.

Maybe have your daughter chart her bms… It would give you a better idea and some info to take to the doc when it is time.

Hugs!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
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