Hey guys. I finally got an email back from Bob today. I've been so worried about
him. I hope it is okay w/ him...I'm posting his text here. Everyone be thinking about
him. He is having major, major surgery.
Here it is.....
I am finished with all preliminary hospital work and tests, and have given the body time to remove the remicade and 6mp from my body. Sadly I am starting to flare because of that. I enter the hospital again next Wednesday for the big surgery - both legs from the chins down - with most of the diseased bone being removed - and the tailored replacements of metal and plastic being inserted. Thursday is the left leg - the worst one, and then Easter Monday the right leg. They estimate the surgery to last 8 - 10 hours. If the surgery is successful they will place an exoskeleton on each leg to secure the artificial bones. I can't walk now really, but I can hobble to the bathroom. Starting next week, I will be bed ridden for 2 months, followed by wheel chair for the next 4 -5 months...perhaps forever. There is also a 20% chance of amputation if the surgery fails or infection sets in.
I will be in the hospital for 12 days after surgery, followed by 6 weeks in a rehab hospital (not for rehabilitation - just a place to stick me freeing up a bed at the surgical hospital). Then 3-5 months in a nursing home.
Please tell the UC newbies to learn a lesson from me. Steroids cannot be used as long as I used them (8 years) without serious consequences. Although diabetes is a co-factor in this disease - they feel the osteoporosis is so severe because of the steroid damage to my bones. My hips are also in bad shape and will need replacement (I will wait on that of course).
I am sorry for not being terribly upbeat, but my apprehension and sorrow for turning my wife's life now into a living hell is almost too much to bear. I am also sorry for not participating in HW right now, as it all seems too much...even though I love those people. Please wish them well for me - and ask them to say a little prayer for my wife...she truly is the victim of this crime.
100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexiumhttp://www.healingwell.com/donateCo-Moderator UC Forum