Update on our Bob...

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tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/12/2008 12:52 PM (GMT -6)   
Hey guys. I finally got an email back from Bob today. I've been so worried about him. I hope it is okay w/ him...I'm posting his text here. Everyone be thinking about him. He is having major, major surgery.

Here it is.....

I am finished with all preliminary hospital work and tests, and have given the body time to remove the remicade and 6mp from my body. Sadly I am starting to flare because of that. I enter the hospital again next Wednesday for the big surgery - both legs from the chins down - with most of the diseased bone being removed - and the tailored replacements of metal and plastic being inserted. Thursday is the left leg - the worst one, and then Easter Monday the right leg. They estimate the surgery to last 8 - 10 hours. If the surgery is successful they will place an exoskeleton on each leg to secure the artificial bones. I can't walk now really, but I can hobble to the bathroom. Starting next week, I will be bed ridden for 2 months, followed by wheel chair for the next 4 -5 months...perhaps forever. There is also a 20% chance of amputation if the surgery fails or infection sets in.

I will be in the hospital for 12 days after surgery, followed by 6 weeks in a rehab hospital (not for rehabilitation - just a place to stick me freeing up a bed at the surgical hospital). Then 3-5 months in a nursing home.

Please tell the UC newbies to learn a lesson from me. Steroids cannot be used as long as I used them (8 years) without serious consequences. Although diabetes is a co-factor in this disease - they feel the osteoporosis is so severe because of the steroid damage to my bones. My hips are also in bad shape and will need replacement (I will wait on that of course).

I am sorry for not being terribly upbeat, but my apprehension and sorrow for turning my wife's life now into a living hell is almost too much to bear. I am also sorry for not participating in HW right now, as it all seems too much...even though I love those people. Please wish them well for me - and ask them to say a little prayer for my wife...she truly is the victim of this crime.

Love,
bob
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/12/2008 1:01 PM (GMT -6)   
Awww poor Bob :( It truly breaks my heart that his going thru so much. He is such a great guy that he doesn't deserve this. I find it awesome that he is still thinking about others at a time like this. If he comes here I just want him to know that he and his wife are in my thoughts and prayers.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 3/12/2008 1:17 PM (GMT -6)   
Please Bob, if you come here and read this, know that there isn't a day that I haven't thought about you and your wife, and wondered how you were both fairing. From what you've told us of your lovely wife, she sounds like a trooper and will stand by you to protect and love you through your surgeries. Take care my friend, and know that on the day you have your surgery.....every good vibe and all my strength will be sent your way for you and your wife. ps.....we love you too!

Carol

Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/12/2008 3:14 PM (GMT -6)   
Please let Bob know that our love and our prayers are with him, and that there's no blame attached to him for his condition. We have a bad set of options to choose from sometimes in dealing with this DD, and sometimes our choices work out better than others. It's a roll of the dice. I'll be praying for a successful surgery and recovery for him.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 3/12/2008 3:49 PM (GMT -6)   
Yes, please let Bob know that I am thinking of him everyday, and I will be praying for him and his family. He is such a great guy and my love goes out to him

Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 3/12/2008 5:16 PM (GMT -6)   
Bob and his wife are both in my prayers. best of luck to you and hope all goes well.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 3/12/2008 6:44 PM (GMT -6)   
My heart just breaks for Bob and his family.  As if UC wasn't enough, now this as a "side effect" of the steroids.  I will keep him and his family in my daily prayers.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5169
   Posted 3/12/2008 7:05 PM (GMT -6)   
Very sad to read this because he is definitely between a rock and a hard place, but thank you, tjf, for keeping us posted. Now we have the 1st critical dates on the calendar. Phew! A grueling process, at best ... / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/12/2008 8:17 PM (GMT -6)   
Aww man! My heart breaks for him and his wife. It brings me to tears to think of the agony he is in. Such a wonderful guy doesn't deserve such trials. My thoughts and prayers are with them!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/13/2008 4:24 AM (GMT -6)   
For any of the new members that read this and have no idea who Bob is. Bob (shrekchewbaccahunk) is one of our moderators that has a huge heart of gold. He has helped many people on here and is a gem among gentlemen. He's a compassionate soul that puts his wife on a pedestal :) Not to mention, he usually has a great sense of humor.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 3/13/2008 12:41 PM (GMT -6)   
Healing thoughts and prayers sent to Bob and his wife! They are definitely genuine and loving people. It breaks my heart to hear what Bob is having to go through yet another time. He is truly blessed to have the strong support of his wife, but I can understand his concern for her having to endure his continual pain.

Heather xx


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 3/13/2008 6:08:07 PM (GMT-6)


shoegrl2
Veteran Member


Date Joined Nov 2005
Total Posts : 675
   Posted 3/13/2008 3:42 PM (GMT -6)   
Like all of you, I wish Bob and his lovely wife only the best. He is such a wonderful caring person, his vibes have always come through on his posts. My thoughts and prayers on top of prayers will be with them. I look forward to when he can be back with us.
Debbie
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005. www.myspace.com/dmbarris
 
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1190
   Posted 3/13/2008 4:06 PM (GMT -6)   
Heartbreaking.. Please God heal the ill. Amen.

Diagnosis in October 2007: Non Specific Colitis (Mild inflammation on Rectum, Plus some patchy inflammation on Right and Left side of Colon). Symptoms started after a bout of anti-biotics.                                 

Medication Prescribed: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: One or sometimes two BM's a day often linked to anxiety and stress (IBS). In remission since October - after 4 days of meds. Stool colour often light in colour but well formed and urine often dark or yellow.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/13/2008 7:51 PM (GMT -6)   
Bob, I'm keeping my fingers crossed for you and your wife that all will go well and you will have a full and speedy recovery from this horrible ordeal...my heart goes out to you both and the rest of your family...sending warmest wishes and positive thoughts for you all.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Katie Rose
New Member


Date Joined Dec 2007
Total Posts : 17
   Posted 3/13/2008 10:26 PM (GMT -6)   
I don't know Bob, but am sending he and his family my thoughts and prayers. Godspeed.
PC

Female 45 years old.
Diagnosed with UC since 1994 Lower left side
Currently taking a multi vitamin and Asacol 3 tabs 3 x's a day.
Tried: Probiotics, Fish oil, Prednisone, Rowasa & Hydrocortisone Enemas, Sulfasalazine


philly-fan
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 3/16/2008 7:59 PM (GMT -6)   
Bob, my 6 year old daughter and I pray every night for you. Starting tonight (in about 10 minutes) we will add your wife to our list. I so much pray all ends up well for you.
 
Your PA mate, Steve. 
Steve


Asacol 1200mg-3x a day

Probiotic=metagenics ultra flora plus DF

Hydrocortizone when needed

Off the prednesone since September 8th (omg)


Heart meds

Lipitor,Toprol, aspirin 81

synthroid


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/17/2008 9:41 AM (GMT -6)   
Bob, I wish you and your wife all my best and the strength to get through it all. It sounds like you have already overcome so much, you can do it!
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 40mg 1xday (taper 5mg a week = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.

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