This is so frustrating! (UC related)

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iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 3/12/2008 4:26 PM (GMT -7)   
I've had UC for the past 10 years and its just getting worse! I woke up yesterday morning with pain in my hands and wrists as well as pain in my shoulders, etc. I thought I pulled a muscle in my neck or something. My chiropractor said to me after my appt that it might be the arthritis flaring up. As soon as he said that, I realized that I must be having a flare. I was moving my bowels wonderfully but also started Weight Watchers last week. I went from eating lousy, high fat, soda, etc. to eating veggies, lots of salads, water, etc. After a week, I noticed it was difficult to move my bowels. Its so frustrating! I want to eat healthy and lose the 80-90 pounds I need to lose for my health but all of the healthy foods can irritate my colon.
 
I apologize if this is a long vent. I am just very frustrated. After calling the RH (arthritis) doctor, he put me on a 9 days worth of prednisone. I can feel the mood swings starting already. I almost started bawling in the bathroom at work today.
 
Currently, I am taking 6-MP, Colozal, Canasa suppositories, and Remicade. I will be honest when I say that I don't take 6-mp and Colazal everday. I know this is SO bad since it will help not harm me. Sometimes when I take other medications for my headaches with the uc medications, it makes me throw up or nauseous.
 
So what does everyone eat that does not cause a flare but help you move your bowels and still lose weight?? I am a teacher and been taking so many days off this year for health related reasons. I hate not feeling well enough to teach.
 
Thanks for listening to me vent. Sometimes its so frustrating to have this chronic disease.
 
Heather

tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 3/12/2008 6:18 PM (GMT -7)   
Sorry for your frustration, Heather.

Weight Watchers' program rewards you for eating foods high in fiber and low in calories. I used it with great success before I was diagnosed with UC. It's not the best weight loss program for a person with UC though, because even in remission, high quantities of fiber can really tear you up. I have found that I constantly go over my alloted points now, just because I'm avoiding high-fiber foods. I'm still able to maintain a healthy weight following UC and my own, lower-fiber version of weight watchers, but it did take a lot of playing around with different kinds of foods.

Go easy on the salads, as the raw vegetables can really irritate you. Fear not, you can still lose weight and eat healthily, but it does take a bit of research and trial and error! Here are some food options that are healthy, but that don't bother my gut, maybe they will give you some ideas:
BKFst:
-banana and yogurt
-skim milk and cheerio's (though if you have problems w/ dairy this may not be a good fit-luckily dairy doesn't bother me much)
-english muffin topped with honey or jam
Lunch:
-"smart ones" weight watchers microwave meals usually work fine for me-all the veggies are cooked in these and therefore easier to digest
-chicken noodle soup and crackers
-toasted white bread, deli meat and cheese sandwich
Dinner:
-baked potato with light butter, bacon bits, chives, etc
-chicken and veggie stir fry with white rice
-fish filet, poached, baked, or steamed

I hope these foods give you some ideas. You may want to talk to your doctor or find a dietician to help you create a UC-friendly diet that promotes weight loss. I think Weight Watchers is a wonderful diet plan, as far as diet plans go, but it's really not designed for patients who have to limit their fiber.

Best of luck! -Erica
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 3/12/2008 6:20 PM (GMT -7)   
Aw, Heather....you know this is the place to come and vent! :-) Yep, I get that darned pain too; same places. Since I don't have any other symptoms, I know this is when I'm flaring, and it's always change of diet or stress. You'll even out after eating well on WW's. Trust me you will. Try and limit your sugar right now -- it always makes me feel worse. The best thing I can eat to loosen my bowels is apples; don't ask me why, but if I have an apple a day it seems to work. When I stop, I get constipated. Another member suggested using Milk of Magnesia, and I might try that next time I get stopped up. That happens too when I travel; even though I try to eat well.....ya' know it always comes back to bite you! Take care my friend, and hope things get better. Hey, remember...vent away anytime!
Carol

Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 3/13/2008 3:11 AM (GMT -7)   
Thanks for your advice (both of you). :-D I am feeling okay so far this morning but have to go to work in less than an hour. I will see my doctor next week and tell him the situation regarding my diet and the pains I am having. I never knew you can get an arthritis flare just from changing your diet! It makes sense though. I've been eating horribly for a few years and then I drastically eat healthy in a week's time, I start to feel lousy. Right now, I cannot stomach a lot of foods due to the arthritis, UC, and headaches. So I am sticking with grains, and just eating whatever I can keep down. I am limiting my fruits and veggies for a few days. I know it will make me constipated. Thanks for the advice regarding the apples Lonelylane. Do you keep the skin on the apples or remove before eating? Have a great day!
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/15/2008 10:10 AM (GMT -7)   
I did the weight watchers thing too. It does push lots of fiber (low points...gotta love em). I put myself back on ww recently. I can't do the raw veggies, salad thing. But when I was first diagnosed, my dr suggested that I steer clear of salad and raw veggies. He said to also cut way back on veggies with tough skins. AND he said to cook veggies (steam 'em, microwave 'em etc) until they are mooshy enough to eat with a fork. That seems to have done the trick!

Progresso now makes some weight watchers low point soups. Betcha you could mimic these easy enough in your kitchen. I'm pretty lazy, so I guess for me, if I went down this path I would make big batches then freeze 'em. For now, I just buy the cans, even though it can get sorta expensive.
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 3/15/2008 10:45 AM (GMT -7)   
The thing we UC'ers need is SOLUBLE fibre,not INSOLUBLE.Insoluble fibre is things like bran,it rips straight through,without binding to food.Soluble fibre binds to food,hence cleaning you out,while acting as a bulking agent.The best form of soluble fibre is oats,such as porridge.Here in the UK we have something called "Oats So Simple",which is in microwave sachets and comes in various yummy flavours!

I very often eat this,to keep things regular and well formed.I would very much recommend that you give something like that a try.Hope ypu feel better soon.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;Pred,6 week tapered dose,starting at 40mg.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 3/15/2008 5:48 PM (GMT -7)   
I think the USA's version of Oats So Simple is Quaker Oatmeal. Porridge...I wish we used that term here, it makes the mush actually sound appealing and rustic. In the US it's sadly relegated to nursery rhymes. Sigh.
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics


quincy
Elite Member


Date Joined May 2003
Total Posts : 30089
   Posted 3/16/2008 12:55 AM (GMT -7)   
We need both insoluble and soluble fibre...both absorb and bulk. Psyllium is a perfect examble of both. Not all insoluble fibres are equal...just know what foods have the right fibres that are OK for one's specific needs/condition/discomfort..etc.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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