Lew, you've heard some negative news, but really, there are many who have benefitted from the Remicade and are not posting here because of their success. My late husband was also having the same problem as your son, but after much discussion on this forum about
rectal meds, I begged him to try them. The doc gave him Rowasa, and he went into Remi remission with his infusions every six weeks and rectal meds. He was able to stop the rectal meds after a few months -- after he got over the hump. This may or may not work for your son, but it's something you can try. And for what it's worth -- my nephew had a liver transplant at 13 years old, and has to take several meds just to keep functioning....I look as that as a life saver. He's 26, 6'3, and doing very well.
Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum