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pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/14/2008 3:35 PM (GMT -6)   
I have started this probiotic called VSL#3 my second day today. Has any one else used it and how successful is it? Besides the bloating is there anything else I need to watch out for.
Thanks
Have had colitis for the past 5 years doctors label it a moderate pan colitis.The bowel movements don't scare me but the blood does. Worry about getting cancer all the time.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/14/2008 11:34 PM (GMT -6)   

Here, read this...

 

http://www.cbc.ca/health/story/2006/10/12/probiotics.html#skip300x250

 

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/15/2008 10:57 AM (GMT -6)   
Vets already use it for colitis in cats : )

I guess colitis is cats is very close to that in humans and most of the treatments are the same.

No one else in my family has IBD...except my cat. Go figure.
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 3/15/2008 12:27 PM (GMT -6)   
A few years ago I tried 3 packets per day of VSL#3 for 5 weeks. I notice absolutely no difference with it. It was a total waste of money. Different people have different results. You may have better luck than me. Good luck with it.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Currently in Abatacept trial - waiting for remision
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/15/2008 2:09 PM (GMT -6)   
Yes, it's true about cats, dogs can also get IBD, either crohns or colitis...strange but true...cows get johnes disease which is also similar, inflammation of the intestines...would suck for cows since they have like 4 stomachs, must be a real pain in the gutS for them eh.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 3/17/2008 9:06 PM (GMT -6)   

Hi!  I tried it for 2 or 3 months and I can't say anything conclusive about it.  In general I was doing better with all the different probiotics, I'm sure, but not sure definitively with this brand.  However, VSL3 has some of the best studies out there specifically for UC: something like 50-70% remission or at least a major improvement.  What I remember is that the duration was 2-3 months and the dose was about double the amount they say to take on their website (3 trillion microbes or 8 packets, if I recall).  I think the "medical food" form of this is basically this high in number, but the price is about the same as getting the equivalent of the OTC version, if I recall.  I could probably dig up the abstract, if you like.  It is also good to supplement with a good prebiotic, which helps the good bacteria to grow and the form is usually soluble fiber (FOS, inulin, pectin, etc).

The gas is normal as your body adjusts to the new microbial balance.  I know it is expensive, but I did talk with my flexible spending provider and they said I could write it off if I got a note from my doctor saying it was needed.  I'd love to know the boundries of that!  There are a lot of supplements I would enjoy tax free.


Pancolitis '04
Yet to ever go into remission: maintaining at the moment
Taking Rowasa, Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron, Oregano Oil


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/17/2008 9:15 PM (GMT -6)   
Hey--I've been on it for 2 months, and besides a flair I've felt pretty good--but then again, i'm on a lot of drugs! I recommend starting at the lowest dosage and working your way up. I started with two at once and got cramps, went down to one in the morning and am now at one in the morning and one at night. My GI highly recommended it. Good luck.
Asacol, 4 pills 4 X a Day
Rowasa at Night
Canasa in the Day
Prednisone 40 mg--I'm flairing right now.
VSL #3
Kariva (birth control)


pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/24/2008 3:21 PM (GMT -6)   
Thanks all those who responded to  the use of probiotics. pb4 the web connection was use ful. I am having no side effects with the probiotics and am feeling fine since i started. had a flair up last month but  am fine now.

Have had UC for the past 5 years. Diagnosed as Moderate Pan Colitis. Have psorisis along with UC and back pain.


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 3/24/2008 5:29 PM (GMT -6)   
I started it in February 2007 and started with 3 a day. My frequent BM's disappeared and for almost a year no flares. For some reason I am predisposed to a flare in Feb! so I am dealing with one now. Good luck to you!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


pinkyb
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 3/24/2008 6:02 PM (GMT -6)   
Mellie keep a note of what you eat in the month of February because that used to happen to me in November ( took many milk product sweets) ever since i have put a check on that it has helped.

Have had UC for the past 5 years. Diagnosed as Moderate Pan Colitis. Have psorisis along with UC and back pain.

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