colitis medications

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dancing D
New Member


Date Joined Mar 2008
Total Posts : 10
   Posted 3/15/2008 5:08 PM (GMT -6)   
   Hi:
    I am new to this site and have ulcerative colitis and diversion colits:
    Currently I take 9 colazal a day and 75 mg of Imuran. 
    I was using the canasa suppositories for the diversion colits. But those were stopped by my gastro. 
    I have my blood tested every three months due to the Imuran.
    Am  currently borderline anemic .
    Has anyone out there decreased the 9 colazal pills a day to about 4 to 6 a day with satisfactory results.
    My doctor won't let me stop them and I feel as if how will I ever know if the Imuran alone is doing the job and
    I don't need the other, colazal.
    Recently read where in two years colazal will be available in a once a day pill dosage.  
    Was on prednisone in the beginning my gastro took me off of this.    Wow  what a med:  I painted the basement
    floor while on this:  energy to the limits. 
    Look forward to discussing this illness with members
 
    Dancing D 

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/15/2008 5:12 PM (GMT -6)   
Hi and Welcome! I increase and decrease my Colazal dosage based on my symptoms. The least I take is 6 and the most is 9. We are basically on the same meds. I too am borderline anemic though my last bloodwork showed things were turning around.

I've never heard of diversion colitis. Want to explain?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/16/2008 1:41 AM (GMT -6)   

Hi dancingD..welcome to the forum.

I've never heard of diversion colitis before..found this link for others who will want to know as well.

http://gut.bmj.com/cgi/content/abstract/32/9/1020

Did you have UC before the DC?   Why the surgery and when? 

If you are wanting to lower the Colazal dosage, you should taper...one pill a week at lthe very least.  Why are you wanting to taper?

If you have inflammation in the rectum, I'm wondering why your GI stopped the Canasa...was it helping?

How are you doing at this time?

Welcome again...

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dancing D
New Member


Date Joined Mar 2008
Total Posts : 10
   Posted 3/16/2008 12:23 PM (GMT -6)   
    To TJF and Quincy:
    And memebers
 
    Well, first of all diversion colitis is a complication of colostomy surgery. It is an inflammation in the       defunctionalized
    colon:  My doctor said it is sort of rare.
    I had surgery for diverticulitis and different sections of my colon were removed:   I had what they call a Hartmann's
    procedure.  But also was a mess inside and peritonitis had set in.   I was not in a too good a shape to say the least.
    A reversal was the ultimate plan but the diversion colitis set in and the gastro doctor proceeded to treat this with
    canasa suppositories, a presciption med.   In the meantime a colonscope revealed that this med had worked and the
    doctor dedcided they were no longer needed.  
    Over time diversion colitis can cure on its own:  but it can act like real bad case of colitis thus the need for the supp
    I still have flares with this which can cause anemia.  
.
    I feel as if trying to taper off the colozal might reveal that the high dosage is not needed.  To me it is worth the
    experiment.  My doctor did say if anything went wrong with this theory that it would take two weeks to restore
    previous condtitions. Meanwhile I research.
 
    Two months after the divertic. surgery I had a pulmonary embolism:  blood clots let loose from the leg and went to
    the lungs.  Remedy for this was  warafin(coumadin).  However colitis and coumadin do not get along and I eneded
    up with internal bleeding in the colon and had to be taken off of warafin stat and a vena a cava filter was put into
    this main vein. This is to catch any future blood clots that decide to travel. 
    The prednisone, given at this time at the hospital stay,  was to help calm the ""upper colitis"" 
   
    about a month after this a viral infection that resulted in a cracked cornea: Fortunately I live a short distance from
    Harvard Medical School and am currently being seen by a cornea specialist from there 
    at the best eye and ear hospital in the world.
 
    Needless to say I exist under the assumption of the domino effect. .
  
    Hope this helps with some information. I don't profess to know everything about this disease and am still learning.
    It is an auto immune disease and from what I have learned once you have one you are more likely to have others.
 
    Like I will always say it could be worse.
      
      Till later   dancing D  
       
   
    

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/16/2008 3:00 PM (GMT -6)   
Hi DD...you're definitely in a situation that is quite complicated. It must've been very scary to go through all you have.
Totally sucks having autoimmune disease...they never like to be alone..lol!

Your experience will definitely be an asset to many who have encountered such complications. Your term domino effect is perfect...I usually use snowball effect...but the domino effect is good as it sometimes things don't necessarily get worse or bigger in the process even though it takes another down with it.

As comforting as it is for most of us to say that it could be worse....one never knows...I personally don't use the term. Learning how to treat and deal at any level is what we have to do. We're all set up for the worst to happen. Although it is good to keep things in perspective, sometimes the littlest things can be the most difficult to deal with.

Regarding the Colazal....decreasing by one pill a week or every two weeks will get you to a maintenance level. There's no reason it isn't possible...your body/colon will tell you what you need. At least there's room for increasing as you need it.

So, you were diganosed or not diagnosed with UC....? Not clear on that.

If the Canasa worked for you...why are you not still on it for maintenance at least? If you have UC...it will have the rectum involvement...just something to think about.

Welcome again.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/16/2008 3:10 PM (GMT -6)   
Wow! Thanks for sharing. I am so sorry you have been through so much. You hang in there!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/17/2008 5:12 AM (GMT -6)   
Hi, welcome to Healingwell DancingD :) Wow indeed! You've have had quite the ride haven't you? I never heard of diversion colitis either until now. It doesn't sound pleasant - but then again, anything wrong with the intestines is never pleasant anyway! I don't have any other words of wisdom because Quincy has covered it. But yes we do have some members here that have reduced their Colazal consumption with no ill effects. But of course they are in remission when they taper down. I agree with Quincy's statement is that your body will tell you if you can or can not tolerate a lower dose.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dancing D
New Member


Date Joined Mar 2008
Total Posts : 10
   Posted 3/19/2008 3:16 PM (GMT -6)   
  Hello,
   
   Yes Quincy, I was diagnosed with acute chronic colitis along with acute cryptitis: and a bunch of other long names I
   cannot spell or even pronounce.   Processing all the information with this can make one giddy.
 
   I am assuming, which one should not do, that the canasa suppositories had taken care of the diverson colitis since the
   gastroentonologist said to stop them after a second scope revealed they had done the job.
 
   I am not so sure this is the case and the only way I am going to have that enlightned upon is to have another scope. UGH
  
   My CBC is done every three months so he will be able to tell what needs to be done based on the hct and hemogl levels
   or just pull me off to the side of road from this merry go round for another scope.  I  dread the day he says maybe it is time for
   reversal. Then I will really be giddy. L O L
 
   Think he did say one thing might be cured but the other maybe not with a reversal.  Meanwhile I am a bag person.
 
   Yes, one can get confused with this situation, since we are talking about two orifices, one supposedly  a functioning one
   and the other non functioning each with its own set of  rules and  demands..
  
   My viewpoint "on it could be worse" is simply the fact that if one can get up every morning and put their two feet on the
   floor, walk and go about their day then one is  fortunate indeed.  It all depends how you play the cards you are dealt. 
  
   There is a book out titled:   Breaking the Vicious Cycle by Elaine Gottschall  Diets for Chrohn's  UC  Divertic. Celiac.  Have
   heard many people say it is informative. 
 
   www.treatment-optons.com/article.cfm?Pubid=GA04-3-2-02 explains diversion colitis quite well
   
  
   Hope this  helps.
 
   Dancing D
 
     
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 5:46 AM (GMT -6)
There are a total of 2,974,919 posts in 326,226 threads.
View Active Threads


Who's Online
This forum has 161317 registered members. Please welcome our newest member, chris fletcher.
342 Guest(s), 4 Registered Member(s) are currently online.  Details
Noluck, sandyfeet, JNF, Abilene