Anyone in the UK getting benefits for UC?

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Regular Member

Date Joined Mar 2008
Total Posts : 20
   Posted 3/15/2008 6:28 PM (GMT -6)   
hi all... can anybody tell me does anybody receive any sort of financal benefits to help them with their uc?
Memmie - I took the liberty of inserting a more specific subject, perhaps your fellow members in the UK will respond. :-)

Post Edited By Moderator (Judilyn) : 3/16/2008 6:14:29 AM (GMT-6)

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 3/15/2008 7:54 PM (GMT -6)   
Welcome to HealingWell, memmie. If you post where you're located it may help, as we have people posting from all over the US and the world. Benefits vary from country to country and even state to state.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Silent Lucidity
Veteran Member

Date Joined Nov 2007
Total Posts : 625
   Posted 3/15/2008 8:14 PM (GMT -6)   
Please forgive me from "piggy backing" on this topic.I'm living in the UK,any answers related to my geographic disposure would be appreciated!
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;Pred,6 week tapered dose,starting at 40mg.Pentasa 2 x 500mg 4 x daily.
Got Ryche?

Regular Member

Date Joined Mar 2008
Total Posts : 20
   Posted 3/16/2008 4:51 AM (GMT -6)   
oops sorry, i am from the uk.

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 3/16/2008 8:04 AM (GMT -6)   
I applied around 5 years ago when my UC was pretty bad and i was turned down because they didn't recognise UC as seriously debilatating illneSS!! although i do believe that things have changed and that if you have chronic UC and have an ongoing period of chronic flares you may be considered for Disability Living Allowance paid at the lower rate.
I have recieved idisability benefit for a year from the Irish Government health board when i became really ill 2 years ago.This was because i worked in the Republic Of Ireland when i became ill and i was paying PAYE for 5 years.Although my payyments stopped after a year because that is the maximum time they pay disability benefit.
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


Regular Member

Date Joined Jan 2008
Total Posts : 90
   Posted 3/16/2008 1:24 PM (GMT -6)   
i am in uk and i have been turned down also foa a blue badge which was not very pleasing as you all know that to be able to stop anywhere would be ace, i do have a radar key for the disabled toilet whicg is a help x im also from uk

Regular Member

Date Joined Jan 2006
Total Posts : 478
   Posted 3/16/2008 4:24 PM (GMT -6)   
I was also turned down.  I did get the blue badge however but only thanks to my GP.
I recently took part in the Blue badge review consultation which the dept for transport is currently conducting. I made a VERY strong argument for UC sufferers to be allowed a badge. 
The consultation is still open.  Please complete it and email it back to the DFT. Each case they hear in our favour will have an impact!
The response forms and background info is here:
Take care
Abatacept Trial since Feb 2008 (Induction Period)
Back on Pred - 5mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg
Predfoam Enema - Had to stop as not allowed during trial
EPA Fish Oils, Various Homeopathic meds
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic

Yorkshire Lass
New Member

Date Joined Apr 2008
Total Posts : 18
   Posted 4/24/2008 3:43 PM (GMT -6)   
Hi Memmie
I read recently of a successful claim for Incapacity Benefit for a UC sufferer.  From what I remember, it is decided on a points system, eg urgency wouldn't score as highly as incontinence.  You would need a supportive GP but it may be worth exploring if you are unable to work.
Good luck!

Regular Member

Date Joined Apr 2008
Total Posts : 128
   Posted 4/25/2008 4:11 AM (GMT -6)   
Hi, I am looking into this at the moment. If you go to the NACC website you can get information sent to you which gives help and tips on completing the disability living allowance application form, I'm going to try it's worth a shot.
32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 50mg started 4/08
Steroids 40mg per day

Regular Member

Date Joined Jan 2007
Total Posts : 45
   Posted 4/27/2008 3:43 PM (GMT -6)   

Hi Memmie, although I have not tried to receive benefits for UC, when my work referred me to Occupational Health, the consultant wrote in the report that the 'Disability Discrimination Act' applies to me.  He explained that this is because without my medication, I would not be able to function normally. Having this in the report is helpful in case you have more than usual absence from work.  Good Luck.

pancolitis diagnosed 1986 aged 14
just changed from mesalazine to sulfalazine - back to mesalazine!!

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