Hello, I have been on remicade now since my hospitalization in Nov. I have had great results. For one thing, I have been flare free since starting it. I was in the process of considering surgery, but now have determined that the remicade has been so helpful, we are putting hold on those surgery plans. yay! Also, have no real bad side effects,. I have some joint aches and fatigue, but that has always been there, and I attribute it now to just the disease itself and perhaps age. I am ok with living with it as long as the bowel symptoms are in check. I have even encountered a few gastroenteritis symptoms (the stomach bug), and in the past any stomach bugs would cause me to go straight into a flare, but now since remicade, once the bug worked its way out, I was "normal" again. I was on high steroids in the hospital and had all the bad side effects especially the moon face! And now no moon face, and no extra weight gain. Even been working out again and losing weight. I agree with the others at having a pleasurable time with getting the infusions. for whatever reason, I always to get a bit nervous before an infustion, but once I'm there it is quite relaxing to lay there and be waited upon, and take a nap, watch tv, listen to mp3 player or read. Its the time I can relax without feeling guilty like I should be doing something else. Good luck on receiving your first remicade!! I highly recommend it! :o)
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo). Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 6-MP 100mg daily, Pentasa 500mg twice a day,
prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 25 20 units daily, Novolog 10 8 5 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily, and pro-biotics daily.