Fistulas? Anyone have any experience?

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Regular Member

Date Joined Dec 2007
Total Posts : 96
   Posted 3/15/2008 8:24 PM (GMT -6)   
Hi, I am so convinced that I could have something else going one besides or instead of UC now. I started this "flare" with constipation due to taking condine cough syrup - when I finally had a BM it was very painful and hard and I had some blood. When it continued I went to the doc that had done my colonoscopy a year and a half earlier. At that testing he found everything clear, no polyps, etc. and told me to wait for 5 yrs. Anyway, when I went a couple months ago he immediatlely scheduled me for a colonoscopy and said not much had changed but started me on asacol. I then started having some loose stools and more bleeding (which I now believe was caused by the test) then he upped the asacol to 3 - 3 x a day and added 20 mg. Prednisone. I have had normal BM's in the mornings with some blood after so I talked him into Cansas and last week added Cortifoam. I was reading about fistulas (which I actually had some removed when I was in college in 1969) and it seems like what I have now. More of an oozing with blood and a fowl smell. I am going to another Gastro on Tues. for a second opinion but wanted to see others experiences along this line. Sorry for the length!

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 3/15/2008 10:45 PM (GMT -6)   
BTC, fistulas aren't common in UC; they're a more normal feature of Crohn's. You might get more information by posting your question on the Crohn's board here.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Elite Member

Date Joined May 2003
Total Posts : 30998
   Posted 3/16/2008 4:00 AM (GMT -6)   
Fistulas can happen with UC but it's definitely not common.
Since you have a history with them...get yourself back to the GI asap and get it checked out rather than worrying about it. It could be a flare...some of the odours created by flares can set off the smoke!

Let us know the outcome.

*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Bum Deal
Regular Member

Date Joined Jan 2008
Total Posts : 34
   Posted 3/16/2008 7:51 AM (GMT -6)   
A fistula typically is the result of an abscess forming under the skin, and the infection it causes "tunnels" its way outwards. If you have an anal fistula, you will have a hole close to the anus which will discharge pus and blood. If the discharge you are having is still coming out the "normal" route, it may not be a fistula, but could possibly be an abscess or infection (if you have a tear inside, the pus would exit from it into your bowel). Other signs of an abscess in that area would be painful lumps under the skin, and pain sitting down.
Definitely run it past your GI on Tuesday. My GP (not my usual one) misdiagnosed what would have been a treatable abscess a few months ago, and i've just had to have surgery to treat the fistula it eventually became.
Abscesses and fistulae aren't dangerous so much as troublesome, but as with most things, the earlier they're diagnosed and treated, the better.
Hope this helps. Good luck with your appointment!

Male 30 Years Old.

Diagnosed Pancolitis June 2007

Currently 20mg Prednisolone, 12 tablets Asacol, 50mg Imuran (started Dec 07).

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