Help cannot sleep on Prednisone

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Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/17/2008 4:27 AM (GMT -6)   
On 35 mg with a 5 mg weekly taper schedule. Just started it over one week ago. This is my first experience with UC and prednisone. I cannot sleep more than 3 hours. I don't sleep during the day. I have tried Ambien, but it only works for about 3 hours. Does anyone have any ideas? I'm going crazy.....

barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 474
   Posted 3/17/2008 5:23 AM (GMT -6)   
Yes, I know all about this. There isn't a whole lot you can do unfortunately. When you get below 20mg, it does get easier to sleep. Just make sure you take the pred first thing in the morning. And avoid sugary/caffeine drinks in the evenings.
Abatacept Trial since Feb 2008 (Induction Period)
Back on Pred - 5mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg
Predfoam Enema - Had to stop as not allowed during trial
EPA Fish Oils, Various Homeopathic meds
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/17/2008 6:04 AM (GMT -6)   
Also avoid anything that causes mental and physical stimulation at least 3 hours before bed. Insomnia is the worse! Hang in there - the steroid jitters are horrible :(
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/17/2008 7:12 AM (GMT -6)   
I'm sorry to say that I can't add anything except my sympathy. Pred affects most of us this way. And since it also tends to make us irritable, it becomes a vicious cycle as the sleep deprivation makes us even more cranky. Try to lie down and rest even if you can't sleep. And if you can't lie down, then just get up and do something you find relaxing. Worrying about not sleeping only makes it harder to sleep.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 3/17/2008 8:41 AM (GMT -6)   
For me, the sleep issue was better with time. I felt jittery and awake most of the time initially, and then things started to settle in. Hang in there. Take advantage of the time!
15 cm left sided colitis
Now tapering Cortenema and alternating with Rowasa.
Lialda 4.8 gms since Feb '08
Lialda has been amazing!
I think I'm in remission. :)


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/17/2008 8:50 AM (GMT -6)   
I'm in the same boat right now too. I'm on 40 mgs prednisone and doing a 5mg taper every 2 weeks. I am also usually wide awake around 3 am. I've tried Ambien too, but it doesn't help me sleep through the night. My GI recommended half a pill of Benadryl to sleep, but I haven't tried that yet. What I generally do right now, is just get up at 3 rather then stay in bed WIDE awake and get frustrated that I'm not sleeping. I get up and get on the computer, read, or watch a little TV. Usually doing something like this takes my mind off the fact that I'm awake and I relax and in an hour or two get sleepy and go back to sleep. The problem is then I have to get up a few hours later and go to work. You would think I would be exhausted, but then I take my morning dose of prednisone and it revs my system back up for the morning. I do start dragging late afternoon. By the time I get home from work, I eat a little dinner and lay down early. I usually fall asleep by 8 - 9 pm. It's a horrible cycle right now. Sleep 8/9 pm to 3 am. Back to sleep 5 am - 6:30 am. Work. Etc... but, rather than fighting the cycle I figure I will sleep in little chunks here and there and wait it out until I get on a lower dose of prednisone. And if you are tired and can rest in the middle of the day, then by all means do. Hang in there, it will get better.
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 40 Mgs
6-MP - 50 Mgs
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 400
   Posted 3/17/2008 10:10 AM (GMT -6)   
As KSU said, make sure you take all your Pred for the day the first thing in the morning.

Also, don't exercise within a few hours of sleep time.
12 Asacol
100 mg Imuran


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 3/17/2008 10:28 AM (GMT -6)   
Sleep issues are one the few side effects I get when on pred, I agree with the poster who said to take it first thing in the morning. I avoid caffenine anyway because it bothers me.

Try booze.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/17/2008 12:18 PM (GMT -6)   
thanks everyone! I guess I will just try to enjoy the "high" for now... I already screwed up today and didn't take my prednisone until 10:30! I like what you said Kspace...enjoy the time... i will try. Jitters are just starting. Prior to the prednisone I was in the hospital for 13 days on IV steroids for 11 days! It is almost like this drug doesn't give you the brain power to realize that you were just diagnosed with a life long illness....

Thanks again.
Charmin

uc_free
Veteran Member


Date Joined May 2007
Total Posts : 646
   Posted 3/17/2008 12:24 PM (GMT -6)   
When I was on Pred I had no problem falling asleep at night . . . the problem was that every morning I was up at 3:30 am like clockwork - it was HORRIBLE. Like others said, I do feel your pain! Ride with it for now and know that it is something you simply cannot control.

For me, after I was off the stuff, I couldn't STOP sleeping for about five months (I had been on the pd for about 5 months with taper and all)! Even after 10+ hours a night I'd still need a nap during the day. Don't worry, your body will catch up, so use this wakefulness now to catch up on some cleaning and loose ends that you've always been too exhausted to deal with!! After the taper, you'll be too tired if you're anything like I was.
Tara

Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/17/2008 12:43 PM (GMT -6)   
If you take pred very first thing in the am then you shouldn't have sleep issues with it at night.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


laurar
Veteran Member


Date Joined Jan 2006
Total Posts : 730
   Posted 3/17/2008 12:56 PM (GMT -6)   
A few suggestions:

1) Yoga. Helped me alot when I had horrible insomnia and steroid jitters.
2) See if your doc will prescribe Trazodone. It helped me sleep 5-6 hour stints while on high doses of Pred. (without it I could barely sleep 3 hours)
3) Someone already mentioned this, but take your pill in the morning right when you get up.
Diagnosed Ulcerative Pancolitis

Probiotics
Fish Oil
Vitamin C
Slippery Elm
TURMERIC!!!


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 3/17/2008 1:34 PM (GMT -6)   
my only other advice is to just stay up, read a book, watch a movie whatever, laying there is bed staring at the clock gets frustrating fast
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/17/2008 2:02 PM (GMT -6)   
I can't recommend accupuncture strongly enough for pred issues--including sleep, crying (over everything) and being a total jitterbug. I'm on 40 mg right now and still managing about 6-7 hours a night of sleep, which is amazing for me. I go three times a week and the night after the day I go is always the best. I also don't do anything with caf. after 3 pm. I also try not to go to bed until i'm tired and to not set an alarm as much as possible--so that if i do manage to sleep nothing interferes with it. I explained this to one of my bosses, making it clear that when i come in late I will stay late and they were really understanding. This also helped the work anxiety that would keep me up at night.
Asacol, 4 pills 4 X a Day
Rowasa at Night
Canasa in the Day
Prednisone 40 mg--I'm flairing right now.
VSL #3
Kariva (birth control)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/17/2008 3:37 PM (GMT -6)   
I wrote a whole prenatal parenting curriculum while I was not sleeping at night.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/17/2008 3:46 PM (GMT -6)   
thanks again for the ideas. i really need to not make lists in my head, but rather just get up and do them! also the going to work late plan is great -- my work will be fine with that. only problem is that I have three school aged kids who start early.

barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 3/17/2008 10:38 PM (GMT -6)   
I cleaned closets @ 4:00 a.m. yeah
Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 3/17/2008 11:47 PM (GMT -6)   
Are you guys taking the Ambien CR? Controlled release is supposed to help you sleep through the night- 12.5mg Ambien CR works for me w/ 40 mg Prednisone.
32 year-old female
dx-ed in 2007
Prednisone- down to 10mg
Humira
Asacol
probiotics, no sugar for a month experiment!


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/18/2008 4:05 AM (GMT -6)   
No I'm just taking Ambiem (not Ambiem CR). I'm getting second remicade today and I will ask for it. Thanks. At least I'm posting this at 5 AM and not 3 AM!! I won't mention that I fell to sleep at 1 AM..... Think I will go do some laundry.

TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 3/18/2008 12:27 PM (GMT -6)   
My doc told me to take Benadryl to help me sleep while on prednisone.

LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 3/18/2008 2:54 PM (GMT -6)   
I think mine was just regular Ambien too and not Ambien CR. I need to try the Benadryl since that's what my GI recommended too.

Amazingly, last night I fell asleep at 11 pm and slept until almost 6 am. Wow! What a difference a day can make. I don't feel nearly as jittery and actually felt a bit rested this morning.
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 40 Mgs
6-MP - 50 Mgs
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine

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