College and UC

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Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 3/17/2008 9:03 AM (GMT -6)   
I'm interested in any suggestions or helpful advice concerning being a college student in a dorm.  Did people let the college know about their UC/Crohns and do you think it would be better to be in a suite with 4 guys & 1 bathroom or a hall bathroom?  I know these are really weird questions, but I'm just trying to ease my nerves with my son going off to school for the 1st time in the fall and I know what it's like when he's having a flare up and I can't imagine him going through one in a dorm away at school.
 
Thanks!
Mother of 18 year old son
Remicade
6MP 100mg


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 3/17/2008 9:30 AM (GMT -6)   
I did the 4 guys to 1 bathroom situation my first year at Ohio State and is sucked, and that was before I had UC
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/17/2008 9:56 AM (GMT -6)   
I cannot answer your question about which set up would be best but I would encourage your son to visit the Office of Students with Disabilities, or at least check it out online. Every campus has one and that dept. can act as a resource for your son should he be too sick to attend classes. They also might have private rooms for people who need them.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 3/17/2008 10:58 AM (GMT -6)   
I'm a freshman this year at Winona State. When I was signing up for dorms I had my GI write a letter about my condition and the nature of the disease and I also wrote a personal statement (more to make them pity me :) ) I said I wanted a dorm with a bathroom right across the hall and they actually granted my request. Even though there are only 2 stalls in our bathroom on my side of the hall there is almost never people in both the stalls. Freshman here are really aren't eligible for suites (eligibility for them goes by number of credits earned) but this set up is actually pretty nice. If the college refuses to make any reasonable accommodations they can get in some big trouble so I don't see why they wouldn't. Also, I wouldn't suggest a bunk bed. It sucks sooo bad to have to climb out of a bunk when you're about to poop your pants.
Wish him good luck for me!!
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

Post Edited (sbauer07) : 3/17/2008 1:04:28 PM (GMT-6)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/17/2008 11:08 AM (GMT -6)   
The offices of Students with Disabilities covers all disabilities, not just those related to learning.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/17/2008 8:16 PM (GMT -6)   
I had undiagnosed crohns in college. I stayed in a dorm with 1 big bathroom per floor with about 6 stalls per bathroom plus showers and sinks. It really wasnt so bad. There are so many people going in and out, showers going, and hair dryers going, that no one really is aware of who is doing what. Everyone has to poop in there so its not like you are just visiting someone and stink up there bathroom. Especially since you have a son, the boys were kind of shameless about pooping and would brag about who stunk the place up the worst. I also found one private one stall bathroom in each dorm that were for visitors using the lounge. If I knew I really was going to stink it up but had a minute or two to get to the toilet I would use the lounge bathroom instead since no one ever used that one. My junior and senior year I lived in an on campus apartment. Junior year it was 5 girls and 2 bathrooms and Senior year it was 4 girls/2 bathrooms. One of the bathrooms had the shower, the other was just a toilet. There was never really a time that both were being used. However, I think 4 guys 1 bathroom might be a problem since they would all have to shower etc... it would be even worse if any had a girl staying over that had to shower there too. Finally, my school had 1 or 2 dorm rooms that had their own toilet inside. They were reserved for students with medical conditions. Only problem is, if you have one, by default everyone knows you have some issue... I was friends with a guy who had one and I didn't know they were reserved... so I said "wow! Sweet room, how did you get so lucky?" and he said "oh I have a medical condition and needed a private room" (aka no roommate)... I never did ask what condition he had and now I wonder if it was an IBD... anyway, best of luck to your son! Don't worry too much...we all adapt.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


euryalus
Regular Member


Date Joined Jan 2005
Total Posts : 24
   Posted 3/17/2008 8:59 PM (GMT -6)   
Hey, I graduated from college about 2 years ago. When I was a student, I went to the Office of Students with Disabilities and explained my situation to them. They were extremely helpful and gave me a private room next to the bathroom. There was also a private bathroom down the hall from my room. They only required a note from my doctor to verify the information for their records. It's definitely a good idea to talk to somebody in charge of housing at the school. If they know what's going on, I'm sure they'll try to find suitable accommodations for your son so he can worry more about his studies :-)
-Sulfasalazine (6 daily) + 1 Canasa nightly
-Primadophilus Reuteri


chicagoatc
Regular Member


Date Joined Sep 2006
Total Posts : 133
   Posted 3/17/2008 9:24 PM (GMT -6)   
  For sure file with the Office of Disabilities!!  Even if you feel like you're being "over the top".  No one told me about this until after I already had a bachelor's degree (that I suffered through class for).  Now that I'm in nursing school one of my teachers saw I was in trouble both grade-wise and health-wise (both were dependent on the other) and encouraged me to file "just in case".  She said it makes it easier for THEM to make accomodations for us in case we need it.  A teacher can have all the compassion in the world for you and your illness but their hands may be tied legally (in order to be "fair to everyone") unless the paperwork is complete.  I wish your son luck! :)
 
Becky
29 years old; diagnosed since 1997 (but I've had it forever)
Current meds:
-Prednisone 7.5 mg!
-Re-trying Imuran; I'm at 100 mg now...but it's making me so tired!
-Asacol 12/day
-Failed Remicade (8/06-8/07)
-Calcium + Vitamin D(for my steroid-affected bones)
-Prenatal vitamins (for the extra stuff, not for pregnancy)
 


Jsanders505
Regular Member


Date Joined Mar 2008
Total Posts : 94
   Posted 3/17/2008 11:48 PM (GMT -6)   
I would def opt for the hall. Four guys and one bathroom sounds miserable.

Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/18/2008 3:16 AM (GMT -6)   
I lived with 4 girls to one bathroom and it was pretty gross. We had to clean it ourselves (and that never happened). I think a bathroom down the hall with people going in and out would be much less obvious and less stressful. If one of your other three roommates are in the bathroom, you are screwed even without UC.

Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 3/18/2008 6:34 AM (GMT -6)   

Thanks for all the input.  He has said that he didn;t want the "suite" setup and now I guess I see why.  I'm just freaked out b/c he is in a flare right now and I can't imagine him going through this in a dorm.  He is on Remicade and obviously that has lost it's effectiveness. I don't know if he just needs to bump up his infusion or we have to look on to the next step (whatever the heck that is).  I really HATE this disease (and I don't even have it).  I truly do sympathize with all of you who are going through this. It's very life altering. My son says it makes you stronger. (It's alway reassuring when your children handle crisis better than you).

Thanks again!!!!

 


Mother of 18 year old son
Remicade
6MP 100mg


blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 3/18/2008 7:24 AM (GMT -6)   
yeah, its a sucky disease. I was able to get through college ok with it, but there were rough times. I lived in a suite with three other guys the first year, and it had a sectioned off bathroom. I just made sure all of them knew about my stomach condition to some level. I didn't go into details, but I was frank and to the point and basically said 'its like food poisoning that doesn't go away'. They never had a problem with it. One of those three guys became my roommate for the rest of college, in an off-campus apartment. By that point I was in remission, but he was pretty tolerant all the same of the bad days I had.

blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 3/18/2008 7:26 AM (GMT -6)   
oh--and get yourself registered with the schools disability office. If the school is receiving any state or federal funding I believe they have to adhere to certain rules regarding disabilities. I was allowed early registration to avoid morning classes (for some reason the 9 am hour has always been a killer on my stomach, regardless of the sleep I've gotten). I was allowed to plan a lot of night classes, since my stomach is usually better at night, and the teachers had to, if I asked, offer alternate test and exam dates and project due dates. Luckily that never became an issue.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 3/22/2008 7:42 PM (GMT -6)   
I agree with everyone else--sign up with the college's Disability Services. They're supposed to be your advocates and they can help with getting a private room.
p.s. Another piece of advice for your son: Don't procrastinate! I know that's a common thing to say, but it's better to get work done ASAP (when you're feeling well) that way if you get an unexpected flare-up, you won't have much to worry about!

hannah's mom
New Member


Date Joined Feb 2008
Total Posts : 5
   Posted 3/25/2008 9:22 PM (GMT -6)   
hi. i too am a mom of a college junior with u.c. (which incidentally began the second month of her freshman year). i found the school's campus health center to be very helpful. they are aware of her illness, treatment and connected with her GI back at home. i wouldn't do it any other way. also, the bathroom situation shouldn't be a problem. inform the housing dept. at his school, the nurse and his advisor as soon as possible. the more faculty/staff involved the better. i truly believe most school's are more than ready to help in anyway possible. best of luck. college is stressfull enough let alone going through it with a chronic illness. it has been very difficult for my daughter and me (i think more so, me) hard to assess miles apart. i wouldn't recommend your son going far from home. just my thoughts.

serendipity24
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 3/26/2008 12:55 AM (GMT -6)   
So glad you're going with the hall bathroom! And as a suggestion, if you have time to make it to the floor above or below you, nobody knows you there so it's not like you'll walk out of the stall and see your friend from down the hall. Just a thought. I got diagnosed in the middle of my sophomore year of college. Luckily, health services was literally a 2 minute walk, and that was really convenient and helpful for blood level checks and stuff. I was in Massachusetts when home was in Ohio, so while the distance may have bothered my mom a little, it didn't matter at all for me if I was 100's of miles away or in school in Ohio--I wouldn't have gone home any more often. And I had a great GI doc in Ohio at the time who was very reachable by phone and email. It was as smooth a process as it could have been. Even my teachers were very understanding during the time I was missing so much class (as a pre-vet major)! Hope the flare gets under control before school starts, but I'm positive things will go well!! Get some sleep!
Rachel

23 yrs old
Diagnosed with UC: March 2004 with probable IBS component

Currently taking:
Asacol 4pills 3x/day
Prograf 5mg/day
(Prograf is my miracle drug! It doesn't seem to be well known, but it's fantastic!)

Previously Tried:
Prednisone (works, but such awful side effects!), 6-MP (gave me acute pancreatitis), Entocort, Cipro (antibiotic), Bentyl, Canasa suppositories, a couple different enemas

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