OT - Oh boy, now I'm freaking!

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Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/18/2008 12:16 PM (GMT -6)   
This doesn't have anything to do with Uc but I just a call from my primary and she is referring me out to a rheumatologist because my ANCA blood test came back positive.  Now my mind is racing to figure out which which condition I NOW have.  I'm scared  sad   I know some of you have been following my journey to help me find out what is wrong with me so I thought I would let you all know. 


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/18/2008 12:21 PM (GMT -6)   
I wish I could give you a hug in person! Electronic ones just don't seem to do the same...

Hang in there!

((((Sherry))))
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 3/18/2008 12:29 PM (GMT -6)   
Hi Red, it's okay... don't freak out yet. First, the test should probably be repeated to confirm it. Many times, these tests randomly come back false positive. Don't rely on one single test. The doctors have to put everything together. I don't know enough about the relation of ANCA to UC, but maybe it's all related. Freaking out will do you no good... (easier said than done), do some research on your own and have some questions ready for your rheumatologist so you can help him/her help you. We're all here for you!
15 cm left sided colitis
Now tapering Cortenema and alternating with Rowasa.
Lialda 4.8 gms since Feb '08
Lialda has been amazing!
I think I'm in remission. :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 3/18/2008 12:33 PM (GMT -6)   
Hi Sherry....UC will come back with a positive ANCA as well...
 
I found this site to confuse you further....as you see it's a complicated process.  You have lots going on...maybe the rheumie will be able to narrow it all down to one thing.
 
 
Try not to overreact at this point...as strange as this sounds, you should show positive considering all that's going on.    
 
Hang tough!  I hope you don't have to wait too long for your appointment...the waiting and guessing is the worst!
H xx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 3/18/2008 12:33 PM (GMT -6)   

Sherry, I will be praying for you...things will get better and I agree that one test isn't enough to confirm a problem.

We're here for you.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/18/2008 12:38 PM (GMT -6)   
You're all right - ok *taking a deep breath*. I will not try to freak out anymore. Even when I was first diagnosed with Uc, I never had a positive ANCA test and I had a couple since then to rule out Lupus. This is the first time it has come back positive. So of course all the other things going on has my mind swirling. My appt with the rheumy is April 7th so the wait time isn't too long.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/18/2008 3:37 PM (GMT -6)   
Big deep breaths! Repeat 10 times. You hang in there and keep us posted!!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 3/18/2008 5:00 PM (GMT -6)   
Hang in there, Red. Hope everything works out okay.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/18/2008 5:20 PM (GMT -6)   
Darn, you're just having a crummy week, aren't you? I did see that the test can show positive in chronic IBD, so hopefully that's it. The last thing you need is another fancy diagnosis!

Hang in there.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/19/2008 6:42 AM (GMT -6)   
Yeah, I read that a positive ANCA test can be from an IBD but because of my other symptoms my primary is referring me out to a rheumy doc. So I am hoping that is what it is. On the other hand, I've been sort of suspecting Lupus for a while now. I sincerely hope that is not the case and I will jump for joy if it's not. One of the main symptoms of Lupus is nose sores (which I had) and a butterfly rash across the base of the nose and cheeks (which I had) and Raynauds (which I DEFINATELY have). But I just don't know....I'm just so confused at the moment. :( When I find out more, I will let you all know. Thanks for the kind words and reassurances.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 3/19/2008 7:35 AM (GMT -6)   
Sherry -- I'll be sending good thoughts your way. Take care my friend....you are one strong lady!
Carol

Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 3/19/2008 9:24 AM (GMT -6)   
Hang in there Sherry. Sending good thoughts.
Janice
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)

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