Posted 6/9/2008 12:35 AM (GMT -6)
I too have just been diagnosed with ulcerative proctitis, after a colonoscopy.; 10 cm~ currently moderate to severe.
I was hospitalised for 3 days while in the UK last Xmas with suspected ulcerative colitis (I had a sigmoid scope but was too inflamed for full investigation)- symptoms at that time where bloody diarrhoea, bloody mucous, weight loss, fever, slight anemia and given the following meds- 40mg prednisolone (tapering over 8 weeks), asacol 400mg (6@day), pentasa suppositories 1g daily. Within 8 days the bleeding has stopped.
After Xmas I moved back overseas to Asia, where unfortunately they do not have the same meds and within a few weeks my symptoms stared to com back gradually. I was prescribed oral pentasa (initially 2g, then 3g and now 4g daily) which I have read is more suited to crohn`s disease as it is released in the small and large colon, whereas oral asacol is released in he colon only, therefore making it more suitable for colitis and proctitis. As my condition was worsening (more bleeding/ cramping) I was prescribed prednisolone enemas (daily), which I found very difficult to retain due to the frequency or motions/ gas/ general inflammation. Then I was also prescribed pentasa enema. According to the attached link enemas are generally not effective to read proc*** as 90% bypasses the rectum. And now I`m back on oral pred (started at 40mg, now on 30mg)~ my bleeding has lessened, but the cramping remains, but the side effects are horrible- puffy chipmunk face, eye sight affected at 40mg, fluid retention on knees, weight gain (hungry most of the time).
So, I firmly believe that the `treat both ends` method of attack is vital for proctitis- specifically asacol and pentasa suppositories. Luckily I`m heading back to the UK for the Summer, so will be able to get both of these meds and will post my findings~ fingers crossed for remission.
I would also recommend avoiding insoluble fibre, too much dairy, gluten (affects the mucous), nuts, tomatoes, fruit and vegetable skin, seeds, nuts, alcohol, ice-cream, coffee; especially during a flare/ active symptoms. During a flare, I find that white rice and steamed root vegetables are easier to digest. I`d recommend getting hold of the following book- `The New Eating Right for a Bad Gut` James Scala / Ph. D.