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Veteran Member

Date Joined Jul 2007
Total Posts : 714
   Posted 3/18/2008 5:12 PM (GMT -6)   
Since you were diagnosed with UC what is the longest length of time you've gone in the day without actually thinking about your bowel, UC or some related matter.
I've been diagnosed for 12 months now and it just dawned on me that in that time I've probably never gone 60 (waking) minutes without at least thinking something about UC. Is this "normal"? "semi-freaky"? "needs to visit with Dr. Phil - freaky"?
And if it is the norm isn't that like sooooooooo soooooo unhealthy on the mind long term? Imagine the toll it takes on the mind especially if you view UC in a mind-numbing negative way.
But the weird thing is depsite UC dominating my mind I've never ever dreamt of it. I dream about a lot of my fears - death, loss of my good looks, Yankees winning the World Series but never about UC? Does anyone dream much about UC?
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
"There is no reality. Only your perception of it"

Veteran Member

Date Joined Mar 2007
Total Posts : 4509
   Posted 3/18/2008 5:59 PM (GMT -6)   
I've noticed that the time I spend thinking about UC has been shrinking more and more everyday. When I was first dagnosed I thought about it almost every waking second, and it has gotten less and less since then. I'm feeling close to remission now, too. If you're feeling sick, then I think it's hard not to think about it.

I often have vivid dreams that I remember, but I don't remember if I've dreamnt about UC or not. If I have, it doesn't happen often. I did have a dream the other day that someone was trying to hurt/kill me, and they shoved a sharp metal thing (maybe a knife?) into my stomach. When I woke up, I thought it was odd that it was my stomach (maybe because I am now so aware of that area of my body or may be just a coincidence). I have never actually gotten to the point of being hurt in a dream before that has always been me almost getting hurt/kills, running away from something, etc.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 3/18/2008 7:44 PM (GMT -6)   
After a period of remission, I find myself thinking of it less and less - unless I feel a "twinge" in my guts - or unless I'm in the bathroom. I don't think about it as much - the proof is in the fact that I'll forget my AM meds...
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
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potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 3/19/2008 1:56 AM (GMT -6)   
I use to dream about finding restrooms. I would look everywhere for them in my dream, I thought it would drive me crazy but once I got better I quit dreaming about it. I was like you I thought man this cant be normal, think about it all day then actually dream about it at night. I havent had that dream for awhile now.

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nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
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Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 3/19/2008 6:21 AM (GMT -6)   
The less I "feel" it the less it enters my mind. If I don't have that constant pain and other symptoms, I tend to forget that I even have Uc.

As for dreams, in all these years I have had only one. I can't tell you what it was about because I can't quite remember but it was so weird! I know it had something to do with bleeding massively while going to the bathroom.
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Regular Member

Date Joined Jul 2007
Total Posts : 402
   Posted 3/19/2008 6:38 AM (GMT -6)   
I agree with many of the comments above. When I am in remission, I really only think of UC when I take my pills. The daily pill regimen serves as a constant reminder. When I am flaring, though, I think of UC all the time - obsess over it, even. It's like Sherry said, the less I feel, the less it enters my mind.

I think this ability to let it go has come with time. When I was first diagnosed, I thought about my UC non-stop, even when I felt good and had no symptoms. I've just become more comfortable with my diagnosis over time and have learned to put it down.

I've never dreamt about my UC... although I rarely dream. If I do dream, I rarely remember them. So, I guess I could be dreaming about it and just not remembering the dreams.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 3/19/2008 8:51 AM (GMT -6)   
Once you're in remission, you'll go long periods without thinking/worrying about it - and what a relief that is. However, even in remission, my lifestyle and eating habits have changed permanently, so I guess you could say it's always with me subconciously.
Diagnosed with ulcerative colitis spring 1999.
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.

Veteran Member

Date Joined Mar 2007
Total Posts : 4509
   Posted 4/2/2008 12:00 AM (GMT -6)   
I had to dig this post up, because I had a horrible UC dream a few nights ago, that is still sorta haunting me. It was one of those dreams that seems so real you wake up wondering if it really happened.

I dreamnt that I woke up in a hospital bed and my colon had been removed. I had an ostomy bag, but no one had told me I was getting one and there were no nurses or doctors around. The bag wasn't secured onto my body it felt like it was going to fall off or something. No one checked on me the whole time I was there. I had to get up to try to find a nurse and the few nurses I found were in the hallway of the hospital smoking cigarettes (yes, in the hospital, lol) and they were really rude to me.

It was so scary. I immediately checked my tummy upon waking -- just to make sure. =)
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

Veteran Member

Date Joined Dec 2007
Total Posts : 1028
   Posted 4/2/2008 7:32 AM (GMT -6)   
I never dream about it, but I too think about it all the time. Even if I am feeling well, I still make sure I know where all the bathrooms are. I still check myself and make sure I am feeling well enough to drive longer distances without having to stop. I still watch what I eat, I still exercise, I still think about the effect it is having on my marriage and my kids, and the worst.....I still worry constantly about it coming back.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female

Veteran Member

Date Joined Jan 2007
Total Posts : 1015
   Posted 4/2/2008 8:22 AM (GMT -6)   
i went years without thinking about it. I had a nice long remission (about 5 years) of which the last three i don't think i thought about it at all. The first couple years of remission i still thought about it everyday but then I saw a shrink and learned to put it out of my mind and focus on the rest of my life. It worked! Hopefully I will be able to do that again once i reach remission.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 5mg pred, 150mg Imuran
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.

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