what's your favorite UC website

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UCinNC
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Date Joined May 2007
Total Posts : 528
   Posted 3/18/2008 6:56 PM (GMT -6)   
I am compiling a list of websites/blogs about UC for my NYT writing. If anyone wants to contribute, please tell me your favorite websites either for a) reliable info about UC or b) good perspective on coping with UC. Thanks. Your thoughts are greatly appreciated.
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Cortfoam in AM, Rowasa in PM (is working wonders for me thus far)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/18/2008 7:03 PM (GMT -6)   
this site for sure!
Dx: Dec. 2006 with UC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 3/18/2008 7:06 PM (GMT -6)   
funny you say that, I was just realizing I should include this site.
by the way, I noticed that you spelled G-d that way. are you jewish? (I am, so I was curious)...
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Cortfoam in AM, Rowasa in PM (is working wonders for me thus far)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/19/2008 1:45 AM (GMT -6)   
Proudly. I'm of Ashkenaz ic descent which is one of the contributing factors towards developing IBS/IBD. One thing it does is swim in the Ashkenaz Eastern European gene pool. My grandfather has it and I know lotsa people with IBS/Crohn's/Colitis.

:)


Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/19/2008 5:18 AM (GMT -6)   
Definately Healingwell! Peter Waite, the owner and administrator is always up for free publicity :) But as a courtesy you should email him. www.admin@healingwell.com And of course there is www.ccfa.org - this is an important one since that website also raises money that goes toward research in finding a cure.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 3/19/2008 8:59 AM (GMT -6)   
When I'm looking for info, I look at HW and CCFA first.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/19/2008 9:33 AM (GMT -6)   
National Digestive Diseases clearing house (national institute of health)
http://digestive.niddk.nih.gov/ddiseases/pubs/colitis/

The American college of Gastroenterology
http://www.acg.gi.org/

Digestive Health smart brief (a free email newletter containing links to UC articles. The last one contained a link to the London Free times in Ontario and the Richmond times in Virginia). It's a FANTASTIC tool!
http://www.smartbrief.com/dhsb/#
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/19/2008 12:27 PM (GMT -6)   
http://www.jinipatelthompson.com/index.php
 
 
 
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 3/19/2008 7:31 PM (GMT -6)   
http://www.dragonpack.com/ibdsupport/parents/ Is a wonderful site for parents of children with IBD (we are not, but many of the families are Jewish). I don't know if you'd need permission to list that site due to the children mentioned on the board. MiSFiT is the forum leader.

Will your article cover UC in children? Feel free to contact me if you would like to know anything about life with 2 kids with IBD and I'm sure many of the mother's at Dragon Pack would be willing to share. There are some there with infants with UC. Can you imagine potty training with UC?

Good luck on your article! Let us know when it is published!!
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 3/19/2008 7:34 PM (GMT -6)   
CrohnniesChat http://www.tinkertech.net/crohns/message.htm
Crohn's Zone http://www.crohnszone.org/
ivillage.com www.ivillage.com
CarePlace http://ibd.careplace.com
United Ostomy Association http://www.uoaa.org/forum/
J-Pouch Group http://j-pouch.org/groupee/forums
Shaz's Ostomy Page http://www.ostomates.org/cgi-bin/yabb2/YaBB.pl
Ostomyland www.ostomyland.com
HealingWell.com www.healingwell.com
Crohn's Sanity http://www.crohns-sanity.org
IBS Group http://www.ibsgroup.org
Everyday Health www.everydayhealth.com
Healthboards.com www.healthboards.com
Daily Strength www.dailystrength.com
But You Don't Look Sick http://www.butyoudontlooksick.com
IBD Sucks http://qurlyjoe.bu.edu/webx?13@145.a91de8XGdZb%5E0@.ee6b280
IBDliving www.ibdliving.com
CCFA www.ccfa.org
DragonPack.com http://www.dragonpack.com/ibdsupport
Erica
Crohn's and Ostomy in 2004


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 3/19/2008 7:35 PM (GMT -6)   
I sorry forgot to add my note but these are all the sights UC and Crohn's that I am aware of-

I hope this helps!
Erica
Erica
Crohn's and Ostomy in 2004

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