Just Diagnosed-General Questions

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Jake IA
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/18/2008 10:05 PM (GMT -6)   
I was just diagnosed with UC about a month ago. I am currently taking Asacol (400mg 2x3 daily) and Canasa suppository 1000mg, one daily. The reason I went to get checked out and get a colonoscopy was because of the bleeding, other than that I have no other symptoms. After taking Canasa for a week the bleeding stopped, but I am getting some uncomfortable (rotten) feeling in my gut and was wondering if this could be because of the Asacol? I have been looking through the forums and trying to get a feel of what is going on and what to expect. I still feel in the dark on the whole situation. I guess some questions I have are - Does exercise induce flares? (have not had one yet) My symptoms are minimal now, and since I just got on some meds, can I stop or slow the progression? What are some good natural ways to control this? Pretty much any helpful hints/tips/tricks/info would be greatly appreciated. I am visiting my doctor next week to see how the initial treatment has been working and will receive further information then.

quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 3/19/2008 2:46 AM (GMT -6)   
Hi..welcome to the forum!

The rotten in the gut feeling is probably because the inflammation is now in a much less state and lower in the rectum.

Is your UC limited or throughout?

Are you still taking the Canasa? Remember that once you feel much better...to taper them down rather than stop abruptly. What did your doc suggest you do?

You might consider to take probiotics to help keep the gut flora balanced.

I would suggest you get to like 5ASA meds...I've used them for over 19 years...although I prefer to use the retention enemas rather than the supps.

The suppositories can be used twice or up to thrice daily.

The uneasy rotten feeling could be reflux? By your gut do you mean nausea or cramping or urgency?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


macattack28
New Member


Date Joined Mar 2008
Total Posts : 9
   Posted 3/19/2008 2:48 AM (GMT -6)   
This is actually my first post.  I have had ulcerative colitis now for about three years.  I had bleeding to begin with as well and I was also put on Asacol.  I started having severe cramping and told the doctor and he told me that Asacol could not do that, however, that is when the pain started.  I then went through a lot and went to a naturalpath doctor which unfortunately did not help.  I thought I was out of options because I tried almost everything I could.  Then I did my research and asked my doctor about 6MP.  I was on this and prednisone for a while.  Then they slowly took me off of the prednisone and I am on 6MP and it has a world of difference.  I still occasionally have problems, but they are much better.  I don't want you to think that Asacol might be bad, but since you seemed to have the same problem I did I just wanted to let you know.  I hope the Asacol helps, hopefully your body is just getting used to it and you will feel better.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/19/2008 6:09 AM (GMT -6)   
Hi and welcome to Healingwell. Not that I know of can exercise induce a flare. It might make you more uncomfortable if you are already flaring. But usually I am pretty active and when I'm in remission, being active has never been an issue. Uc can be a highly confusing disease so I recommend you go thru all the old posts here, look at the resource section of this forum and also visit www.ccfa.org to educate yourself. We have a saying around here that knowledge is power - the more you know the less scared you will be and the more active you can become in managing your own health.

As for progression, not everyone has their disease advance. Some who have been diagnosed with proctitis will always have proctitis. It depends on genetics really........maybe even med compliance. The more faithful you are to your meds, the less likely you are to have your disease advance. Of course, this doesn't apply to everyone. I for one was not very compliant with my meds and what started as Proctitis spread to Left sided. Lesson learned! Plus by being compliant with a 5-ASA med (Asacol, Colazal, Pentasa, Lialda) it helps reduce the chances the of colon cancer - though our chances are ONLY slightly higher then the normal population. More the disease colon, higher the risk.

Anyway, please read up on Uc and please don't hesitate to let us know if you have further questions :)


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Jake IA
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/19/2008 4:02 PM (GMT -6)   
Yes I am currently still on Canasa until my next visit (1 week).
Thanks for your post macattack, I just found it weird that my discomfort came soon after starting the Asacol. I will ask about 6MP.
Everyone has been very helpful, I appreciate it.
Positively Positive


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 3/19/2008 6:33 PM (GMT -6)   
I was fine for the first 16 years since my diagnosis and then had to quit my running routne because of a back injury. Soon after, I had my first really scary flare. I am now running again, and all is well so far. In my experience (and everyone is different), I feel much better if I stay active. The asacal never made me feel bad at all, in fact I never felt any different at all. I would start keeping a food journal and see if certain things you eat give you that feeling. That has really helped me a lot. The older I get the less I can tolerate. I wish you luck and I hope you continue to very few symptoms
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 3/19/2008 8:15 PM (GMT -6)   
Asacol did not sit well with my son, at all! At least we think it was the asacol. He seems to do best with sulfasalazine. My daughter tolerates colazal quite well - those are other 5ASA's you could ask your doctor about instead of asacol.

Sorry about your diagnosis, but welcome to the board. It is a great source of support and information.
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


macattack28
New Member


Date Joined Mar 2008
Total Posts : 9
   Posted 3/20/2008 2:40 AM (GMT -6)   
I find it interesting that people I have talked to have had a problem with Asacol.  Its weird because before I was only having bleeding and after the Asacol everything got worse.  At one point I was going to the bathroom 15-20 times a day.  I could not go to school or work.  Thankful things are much better.  Hopefully everything works out, it seems that everyone has something that works best for them.  I hope you find it. 

SunnyFlorida
Regular Member


Date Joined Mar 2008
Total Posts : 53
   Posted 3/20/2008 7:43 AM (GMT -6)   
I have been on Asacol for over ten years, and I have had no effects from it at all.  The problem is that flare ups are different for everyone, and no one really knows what causes them.  I do agree with a lot of people here on the site that what you eat will aggravate a flare up, once you have one.  The worst foods for me are fried foods, caffeine, carbonated drinks, and alcohol.  Try to stay away from those, and see if it helps your gut to heal faster.
Diagnosed UC in 1997
Asacol 400 3 x 3 daily
Mesalamine liquid 60 ml once daily
Prednisone 40 MG daily


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/20/2008 8:17 PM (GMT -6)   
This disease is very individual - what works for one person may not work for another. Finding the right meds is a game of trial and error. For example, I started on Colazal - which did nothing for me, and then moved to Asacol - which started working for me w/in a week. Many others have had the opposite. Some do well on Pentasa - which releases higher in the intestines.

Some people do well on the 5ASAs - others can not tolerate them. Some people do well with Imuran or 6MP (the next step up in drugs) - others have negative reactions. Some people can use rectal meds and don't need oral meds - others of us need both. Still other are able to only use natural supplements because they have reacted to every other option.

I suggest making a list of questions for your doc. Start a UC notebook and write down what you think of - take it to your appt and show it to your doctor. A BM calendar is also a good idea - then you can see how things improve - or don't. A food journal allows you to see what foods could cause what symptoms.

That's probably enough info for now! Keep reading - ask questions as you need to. Feel better soon!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/20/2008 8:47 PM (GMT -6)   
Tell your doc how you're now being affected and that you wonder if it might be from the asacol....

I use natural products only for my crohns-colitis (CD affecting the colon) as I'm either allergic or non-responsive to traditional oral RX..I use natural anti-inflammatories such as bee propolis (avoid if you're allergic to bees), omegas 3-6-9, probiotics (are essenetial for all IBDers), vitamins B12, A, C-Calcium Ascorbate, and I drink chamomile tea and water everyday, on occassion I'll have 100% natural juices...I avoid all processed foods/beverages, anything out of a can/box, and fast-foods as well.

IBD is very individualistic you have to find what works for you.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/21/2008 9:22 AM (GMT -6)   
Jake IA said...
I guess some questions I have are - Does exercise induce flares? (have not had one yet) My symptoms are minimal now, and since I just got on some meds, can I stop or slow the progression? What are some good natural ways to control this? Pretty much any helpful hints/tips/tricks/info would be greatly appreciated. I am visiting my doctor next week to see how the initial treatment has been working and will receive further information then.
Exercise has never been a problem for me. In fact, I think it's been very beneficial - maintain a level of fitness, improve mood, feel more in control of your body, reverse bone loss from steroid use.
 
You're in a great position to work to heal your body before your condition worsens. I'd highly recommend you check out Jini Patel Thompson's book, Listen to Your Gut to learn about all types of alternative healing methods. Things that have worked for me personally are a good high potency probiotic to restore gut flora, l-glutamine for gut healing and fish/flax oil to reduce inflammation.
 
Here's a link to Jini's site:
 
http://www.jinipatelthompson.com/index.php
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 4/25/2009 10:35 AM (GMT -6)   
I just wanted to welcome you to the forum. I hope you feel better soon. I'm on Asacol and Rowasa enemas and they have both helped tremendously. I use Canasa sometimes too. It's good that you got on meds while the inflammation is still mild. I think that will most likely help it from spreading. And the sign that you're no longer bleeding is a great.

P.S. I'm in Iowa, too. =)
25 years old; diagnosed March 2007;
Currently: persistant rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen

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