Carlow - Update

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Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 3/19/2008 10:37 AM (GMT -6)   
Hey guys,

I mostly post on the ostomy board now but I'd thought I'd do it here too just in case anyone was wondering how I was doing. So after a two and half week stay in the hospital, I'm back at home again. The story goes that way back on feb 29th, I had an abscess and a clot in my portal vein start some unimaginable pain in my lower abdomen. I had to take an ambulance to my hospital where I had my surgery and from there I started a long road of treatment and vascular procedures to fix me. Lets just say it was difficult, long, and at times the hardest thing I have had to endure in my life. However, I can say that despite all this its been worth it. No more UC pain, no more accidents, no worrying. If anybody has any questions about surgery or the recovery process I'd be happy to answer them as best I can. Hope everyone is doing well, or working towards doing well.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Meds:
Prednisone (10mg taper)


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 3/19/2008 10:50 AM (GMT -6)   
Thanks for the update Carlow, it's always good to hear when people are on the mend!
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 3/19/2008 6:17 PM (GMT -6)   
Yes, Carlow, I was thinking yesterday that we were overdue some word from you! Gads-- sorry to read that you had to return to hospital for 2 1/2 weeks. So then you had to go on antibiotics to treat the abscess? Here's hoping you're definitely on the mend now from Phase 1 surgery ... Please keep us posted as your time/energy level permit. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/19/2008 10:13 PM (GMT -6)   
Hey Carlow, sorry to hear that you needed to return to the hospital. Sounds like you had a rough go, but glad to hear you are on the mend. Take care of yourself, and keep us updated!
Carol

Remicade - will have my 21th infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30692
   Posted 3/20/2008 3:26 AM (GMT -6)   
Carlow,,,OMG! What a scary ordeal you've been through! What a relief you're on the road to recovery and have no regrets regarding the surgery.

What would have caused the abscess? Did the clot cause that?

Thanks for keeping us posted as to how you're doing.

When will stage 2 take place?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 3/22/2008 3:18 PM (GMT -6)   
Alright, so I've been home for almost 5 days now and so far its been good. There's definite pain in my rear where I still have drainage tubes coming out of me (to help remove blood etc from my abscess). Fortunately the percoset is covering the majority of it. Car rides can be painful at times though. The hardest part is working on my lungs. While in hospital I developed a plural effusion and had to have a liter of fluid drained from my chest. It was really scary not being able to breathe several days prior to that and ever since I've been short of breath (no where near as bad). So, I've had to use a special device designed to expand my lungs...and walk walk walk. The walking isn't so bad, especially after being trapped in a hospital bed/room for almost 3 weeks. I lost nearly 25 pounds while there and so my muscles have also atrophyed, hooray. Anyhoo to answer some questions, Oldhat: yeah, that pumped me full of the Vanc and some other antibiotic to treat the abscess. Quincy: The abscess most likely produced the clot and the abscess (I suspect) was caused by them releasing me too soon and subsequently removing the drain that was removing the blood and waste etc from my original surgical site. So yeah, back at home still recovering. Probably going to be at least another week or two before the drains go...and maybe another week after that before I'm feeling somewhat normal. By then it will be time for my reversal. Something I plan on discussing with my surgeon when I meet with him next week!
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Meds:
Prednisone (10mg taper)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 3/22/2008 4:11 PM (GMT -6)   
Scary, indeed! You poor guy-- approached the surgery like such a good sport & then they messed you up. That's outrageous! Hope you'll be able to get the drains removed as rescheduled. Take care. / Old Hat
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