I might not have UC?!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 3/19/2008 4:24 PM (GMT -6)   
I just had a GI appointment today and in the course of the conversation with my GI he revealed to me that he doesn't think I have a clear cut case of Ulcerative Colitis. 
He was looking at my scope results and biopsy results.  What they didn't see in my scope was a lot of blood or bleeding.  What they did see however were "a bunch of white dots all over my colin".  (Sorry for the lack of scientific verbage, I asked him to dumb it down so I could understand)  So it is a form of colitus. 
What we are doing now is scrubbing all forms of medication except for the pred and dropping me down from 30 down to 0 over the next month and a half 5 MG a week and then from 10 to 7.5 and 7.5 to 5.  I'm going to hold at 5 until my next visit on the 29th of April.
 
He said that there is a possibility that it could just go away.  And from what I've read about minor colitis it can be "cured" by something as simple as a diet change at times.  If I don't have a flare then we're just going to hope and pray that I'm done with this messy busniess. 
 
Please thoughts and comments.  I'm really really hopeful here but at the same time scared that it might all fall through on me.
Diagnosed UC 12/2007
 
 
Folic Acid 1mg x 1/day ~ On going
Asacol 400mg x 6/day ~ Failed (Allergic)
Prednisone 30mg x 1/day ~ On going recent change 2/26/2008
Sulfasalazine 1g x 3/day ~ 2/26/08 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/19/2008 5:14 PM (GMT -6)   
I can only cross my fingers for you and hope that you DON'T have Uc. What an awesome present that would be eh??
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Jsanders505
Regular Member


Date Joined Mar 2008
Total Posts : 94
   Posted 3/19/2008 10:32 PM (GMT -6)   
That is AWESOME!!! I wish you the best and hope you don't have it. I am on my 8th year and can't take it anymore!!! what a blessing. DONT FORGET about US IF YOU DON'T HAVE IT, GO FIND THE CURE OR SOMETHING!!!! haha

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 3/19/2008 11:06 PM (GMT -6)   
Aww..that is great news for you!! My fingers are crossed for ya!!
                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 25 20 units daily, Novolog 10 8 5 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


Geeve
Regular Member


Date Joined Oct 2005
Total Posts : 54
   Posted 3/19/2008 11:16 PM (GMT -6)   

Good luck with that!!! 

I believe your doc - I had UC in transverse and descending colons; took so much Asacol I set off airport beepers.  When it was under control, I started eating cabbage (raw or cooked), apples, and carrots on a regular basis.  Also supplements of grapeseed extract (powerful antioxidant helps your system fight off viruses so intestines can heal).  I haven't had problems in over 3 years. 

Of course now I'm older (over 50) and have high blood pressure.  One battle at a time!  LOL

Geeve


quincy
Elite Member


Date Joined May 2003
Total Posts : 30391
   Posted 3/20/2008 2:35 AM (GMT -6)   
Hi..what exactly did the doc say (what it's called) that you had?

Did you get a copy of the results of the report? I would suggest you do so.

There are different reasons for colon inflammation...I don't think any are actually minor. Some such as microscopic colitis can be helped with diet. It would be great if that will help you.

Interesting situation you're in....I'd much prefer an actual diagnosis rather than it might just go away.

My thoughts on it....kind of iffy somehow.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, April 23, 2018 11:39 AM (GMT -6)
There are a total of 2,954,631 posts in 324,137 threads.
View Active Threads


Who's Online
This forum has 162176 registered members. Please welcome our newest member, sksk111213.
373 Guest(s), 9 Registered Member(s) are currently online.  Details
Michael_T, Sr Sailor, Girlie, Manzanita2, rrandal1, up4thefight, dontscopeme, InTheShop, Shelly1978