getting a flare under control

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brynheulog
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 3/21/2008 8:49 AM (GMT -6)   
Hi This is my first post been hovering for over a year.
My name is Sue I live in the UK and I was diagnoised with ulcerative colitis in November 2006 (10 cms left side) I don't think I have ever been completely flare free in the last 16 months.  Currently I am taking 3 x 2 asacol daily and 1 asacol foam enema in the morning and 1 asacol foam enema in the evening.  This is what has brought the flares under some control in the past
Unfortunately This time I have been unable to taper the morning enema as within 3 days of reducing them to every other day I start bleeding again.  Previously I have managed to  reduce to just taking 1 enema every evening and reduce my oral asacol to 5 tablets aday with out bleeding, mucus and usually only 2-3 bms aday although I have never been pain free or with out nausea dizziness and shaking after a bm.
On my last visit to my GI he told me I was overdosing on the enemas (I was only taking 1 per day) and the I had to reduce them to every other day for 2 weeks and then drop them altogether this I did and within 10 days I was bleeding and going to the toilet 5 times a day and feeling really ill again. So I have gone back to the medication listed above.
My questions are:-
1. How long should I continue 2 enemas a day after all the bleeding has gone
2. Does any bodyelse do mesalazine enemas every evening and have you been told your       are overdosing
3. I understand that left sided colitis is the hardest to control has anybody with this managed to come of the enemas completely (I don,t mind doing the enema in the evening as I go straight to bed after but in the morning I have to lie down for 1 1/2 hours to retain them  and this is a nightmare with a 4 year old and a 6 year old)
4. How long do the enemas have to be retained to do any good
 
Sorry this is so long but I am at the end of my tether as it is the easter holidays and once again it is dictated by my colitus as to what little we do
quincy I think you are very knowlegable on rectal meds perhaps you will coment
thanks again

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 3/21/2008 9:24 AM (GMT -6)   
Not specific to your questions, but maybe this will help?? When I can't get my bleeding under control I use a steroid enema, the one I use is Proctofoam. The other thing I noticed is that your taking Asacol #3 X2 a day, you could up that, I take #3 X3 day (as always, check with your doctor). Cheers.

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 3/21/2008 10:06 AM (GMT -6)   
I took 12 asacal a day. 4x3. I am currently taking 2 mesalamine enemas/day. Both at the same time. Never been told that I was overdosing on enemas. You can control left-sided without rectal meds, but you need to get it under control first. Then you can taper the rectal meds and hopefully remain in remission. It is really trail and error to see what will work for you. Best of luck. I would also recommend exercise and a very healthy diet if you aren't currently doing that. Probiotics seem to help me as well. Good luck and I hope you feel better.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female

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