First presentation symptoms:
Had these symptoms for 12 months before seeing a dr. about
it. Suffice it to say, that i was in deep denial. Felt fine, though when had to "go", would get tenesmus, a crazy cramping pain that was so debilitating that I'd have to "freeze" in one place sometimes until the pain passed then make a break for a restroom. Had super-duper crazy, debilitating pain when passing. It was so bad, i bet going through labor feels like that. Sometimes I just felt like giving up and I'd be better off if my gut burst, because it was too painful to pass. I'd breathe similar to the Lamaze technique just in order to do it. Bloody diarrhea, never had a solid BM until it was dx'd and took meds. Moderate lethargy, though i'm a night owl, so i could never tell what the fatigue was from. Lost cose to 25 lb. the last 2-3 months before bein dx'd. Very pale skin, sometimes quick pulse, which doc. said was from serious anemia. Last 3 months before dx, had nightly fevers of 99.0 to 103 F.Duration of them first symptoms [basically did these symptoms carry on until a diagnosis was made and medication was given or did you spontaneously go into remission. With this question include the time before presenting to the GP that you had symptoms also; was it an emergency department presentation]:
Symptoms carried on, unabated until dx and meds. Spontaneous remission sounds like spontaneous combustion...and as likely...Abdominal pain [nature of the pain- sharp, dull, burning, achy, general upset, other- was there pain on touching your abdomen; associated with eating]:
actually got pretty aware of the nuances of what my body was feeling. I'd get a :"warning signal" letting me know that the "apocolypse" was coming. I'd get this faint, vague sensation in my lower back which translated into...."get moving, and find a magazine and restroom..you have less than 1 minute." then the sharp, crampy pain came and went. then it was time to "go. Where was the abdominal pain [could you localise it with a finger; generally lower abdomen; around belly button; above belly button, other]:
the crampy pain before BM was in lower abdomen.Abdominal masses [e.g. mass felt in lower left/right abdomen]:
no masses feltBlood in stool [e.g. blood as if cut yourself; tissue type blood; mixed in with stool; one day blood the other day not, clots, other]:
Blood was mostly clotted together, mucousy looking sometimes, thick strands, and not free flowing as if fresh from a cut. generally around the outside of the waste matter and came at the end of the BM, on top of the pile. (you asked for the graphic-ness...)Stool consistency [people say diarrhoea but one definition may differ from anothers definition- literally water like, porridge like, constipation and diarrhoea mixed, constipation, other]-
never constipation, diarreah was liquidy, splurt-y (splurted out) sometimes like porridge, thicker than water though never ever solid in cohesive. also, i could the food waste was moslty whole like it was never digested. I could tell what my last menu had been. Admittingly, as uncomfortable as it was, i'm always so fascinated by medical things...i would take a Q-tip (cotton swab) and like a forensic detective, inspect what was in the bowl, poke at the food chunks...How many times during the day would you go to the toilet:
surrounding BM and in bowlFever:
nightly for 3 monthis prior to dx (99.0 -103.0 F)Other pains [back, legs, ribs]:
yes, with fever had flu-like symptoms..achy joints, elbows, knees, shoulders and chillsBlood tests [more specifically, was there a change in your ESR or CRP]:
Don't know abt change in sed rate, though i was severly anemic from long-term, chronic blood loss. Looking at some notes I took then, at the lowest, my Hemoglobin was 6.9 and Hematocrit was 23! about
a month after I began meds, Hemogl. was up to 7.6 and Hematocrit was up to 25.5. Went up from there bec. i was finally dogesting food and taking heavy iron supplements. Other abnormal blood results:
gotta get back to you abt thatExtraintestinal manifestations [eye problems, skin tags, fissures, fistulas, rashes, mouth ulcers]:
Developed Erethenum Nodosum when tapering off Prednisone. Weight loss [how much and over what duration of time; was you eating the same amount or even eating less or more]:
eating same amount, even more than usual, 25 lbs loss over last 2-3 months b4 being dxAnything else that might be an interesting point to note about your presentation:
MEDS:was on prednisone for abt 8-9 weeks, then when tapering off, developed Erethenum Nodosum (rash on front of lowere legs - big red welts, hot to the touch, pulsating and painful). Doc RX'd 6MP (Mercaptopurine) bec works similar to Cortisone but without it's side effects. Liver needs monitoring with it so had weekly blood tests. on 6MP for about
7 months. on 12 Asacol a day thorugh that all. Now, only on 8 Asacol a day and never felt better.
PRESENTATION: After first Colonoscopy and sigmoidoscopy, GI was mystified why colon was affected but rectum was clear. Ulcerated colon he said, begins at the rectum. A few weeks later, another colonoscopy revealed that colon was then infected.
Thank G-d, feel gr8 now and have no symptoms, except a slight gassy, bloated feeling if i forget to take meds that day.
thanks for asking!
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements
Post Edited (:)) : 3/23/2008 12:17:09 AM (GMT-6)