How do you know if 6mp/Imuran stops working for you?

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Red_34
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   Posted 3/23/2008 6:59 AM (GMT -7)   
What are/were your symptoms after 6mp/Imuran had kicked in that you realized that it wasn't working right?  I think I'm beginning to flare again because I woke up this morning with minor bleeding, solid bms - then mush x's 3, pain, cramping and urgency.  It's the cramping and pain that makes me think that I'm flaring again.  I have been on 6mp for 1 1/2 years but I still flare after going into short remissions.  Usually my remissions only last a few months and that's it.  I think I am going to call my GI on Monday and see if he wants me to start Colocort again or what. sad
 @--->--SHERRY--<---@
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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tjf
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   Posted 3/23/2008 7:03 AM (GMT -7)   
What dose 6mp are you on? 50 or 100? I wonder if your body needs a higher dose.

You know last week I thought I was starting to flare. I used Canasa for a couple of nights and now I seem (knock on wood) to be fine. Hopefully it is just a little blip. It wouldn't hurt to start rectal meds, huh???
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Mamas Boys
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   Posted 3/23/2008 7:22 AM (GMT -7)   
I don't know that the 6mp is not working for you.  For some - all it does is lessen the severity of the flares they get.  Just think how much worse these symptoms could be if you weren't on the 6mp.  I would definitely start the rectals again. 

KTM


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/23/2008 7:56 AM (GMT -7)   
I take 6mp 100mgs on Monday and Thursday and 50mgs for rest of the days. On my last Prometheus, I was still at the low end of metoblizing the med right so I went from 75mgs on Mon and Thurs to 100mgs. I've been on the higher dose for about 3 or so months. I have to go in for blood work in a week and I see my GI in a month. I was sort of hoping that 6mp would stop my flares not just lessen them so I think my expectations were a bit too high. Ah well, 'tis life with Uc I guess. I still have to call my GI and tell him about my flares to see if he wants to test me again on how I'm metabolizing it or not. It's just that when I start the rectal meds, I have to use the steroids and after being on them for so long that when I start them back up - it's like I never stopped (side effect wise). I can't tolerate mesalamines so my rectal med options are limited.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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jujub
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   Posted 3/23/2008 8:13 AM (GMT -7)   
Sherry, I sympathize with you. I tolerate Colazal but not Asacol, and mesalamine enemas affect me just like the Asacol - cramping and terrible D. I've never been on 6-MP, but was on Imuran for a couple of years. It made me a little better (in combination with Colazal and Entocort,) but I was still going 5-10 times a day with cramping and blood.

Checking your levels on the med sounds like a good place to start. Your dosage seems lower than what most take, so perhaps an increase will help. And I'm totally with you on the steroids.

Hope you get this under control quickly so you can enjoy a beautiful spring.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
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Mamas Boys
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Date Joined Oct 2005
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   Posted 3/23/2008 8:41 AM (GMT -7)   
I hear you about the steroids.  They're the pits!!  Let us know what the GI says.  Maybe he'll have some "magic pill" that none of us have heard of that will cure you forever!!  Well...wishful thinking. :)

KTM


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/23/2008 9:02 AM (GMT -7)   
LOL HA! KTM, if my GI has the cure all pill I will definately share the news!

Judy, actually I'm a higher dose of 6mp the most people here. 6mp and Imuran have a different dosing protocol. And yes, the mesalamines do the same thing for me - incredible stomach/colon pain and cramping with severe D. It took me several unsuccessful tries with Rowasa before my GI believed me that I just can't do it.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
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   Posted 3/23/2008 11:04 AM (GMT -7)   
Red - so sorry to hear you're in this miserable spot too! We need to schedule that pity party - soon... Flare friendly foods only...

Hugs!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
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Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/23/2008 3:42 PM (GMT -7)   
Flare friendly food???!! Well then that wouldn't be a very fun party then would it?? :) Can you picture us around a table with party favors and the party cake is chicken and rice!? What a travestly I say! :) No no no, if we must have a pity party chocolate cake is a must.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Mamas Boys
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Date Joined Oct 2005
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   Posted 3/23/2008 5:09 PM (GMT -7)   
With ice cream of course!! :)

KTM


dakotagirl
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   Posted 3/23/2008 5:30 PM (GMT -7)   
Chocolate cake has very little fiber - therefore, flare friendly! hahahaha
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/24/2008 4:58 AM (GMT -7)   
I like your thinking Dawn :)

Ok, so last night I went to use the bathroom (to go pee) before bed when I felt something funny - turns out that I have a hemmeroid. I haven't had one of them for 16 years after I gave birth to my son. It is internal so now I'm wondering if the blood was coming from that instead of the colon. How do you tell the difference between hemmie blood and rectal blood? Or you can't? The hemmie doesn't hurt, just slightly itches. But as for the rest, I know that is higer into the colon because where the pain is located. It's not an all day pain, just sporadic and definately when I go to the bathroom.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 3/24/2008 5:07 AM (GMT -7)   
I occasionally get external hemmies. I can tell it is a hemmie b/c I usually just have bright red blood when I wipe. Or just a tiny bit on the tip of the stool. Ouch! Those things hurt!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum

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