My hopes for this being a "blip" have been smashed :(

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/23/2008 12:01 PM (GMT -6)   
After the first BAD night, things were okay.  Then yesterday I saw the stringy mucous and the cramps are back...  Although not nearly as bad as the other night.
 
The bathroom trips have increased too.
 
So, since I already have the rowasa and canasa scripts, do I call the doc?  Okay - so, I know I should.  But I don't want to look stupid - I saw him 4-5 days before this flare started.  How's that for timing!?!?
 
I realized it's March too.  (Yah, it has been all month! ha ha ha)  I seem to usually flare in March....  Coincidence?
 
Grrr.... sob....  sigh...
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/23/2008 12:15 PM (GMT -6)   
Why on earth would calling the doc make you look stupid? We have no control over this DD, it does come and go as it pleases. If the Rowasa and Canasa are your usual remedies for flares, I'd go ahead and start on them. If you're not better in a week, or if you get worse, then call him. If it brings things back to normal, tell him about it at your next visit.

Hoping that you're soon back to your usual health. Flares suck.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/23/2008 12:22 PM (GMT -6)   
I would start them AND call the doc to let him know what is going on.  I always feel the doc should know what's going on with me as it's happening - but I don't wait to speak with him to start a treatment I already know I should do.   Just bite the bullet and start those Rowasas now!

KTM


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/23/2008 12:22 PM (GMT -6)   
Ah man! That stinks! I would definitely call the doctor. Better to nip this in the proverbial bud before it gets too bad. Hang in there!!!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 30373
   Posted 3/23/2008 1:23 PM (GMT -6)   
If you have the meds...use them as you probably should have a while ago...(sorry for the scolding).

Why call the doc...what is it he can do for you that you're not doing for yourself? If after a month you haven't improved...then call.

You should be improving after a week or so.

you can do it....

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/23/2008 4:00 PM (GMT -6)   
I've been using the Rowasa nightly since Wednesday. Amazingly I'm able to retain it most of the night - usually until about 5 AM. Today I started the Canasa as well. I was hoping the Rowasa would SNAP me back into shape. Nope.

I don't know what the doc could do for me right now, that I'm not doing for myself. I'm not scheduled to see him for a year, since I was doing so well... I know I can call anytime. I think I'll give it a few more days before calling the doc. This darn disease just throws me for a loop. I feel like I should know what changed from the Thursday I saw my new doc to the Monday when the flare slapped me... But I do know it's just the nature of this DD to be aggravating and irritating.

The stomach gurgles and cramps are the worst for me right now. I hope the Rowasa scares them off!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5164
   Posted 3/23/2008 4:10 PM (GMT -6)   
I agree with Quincy! We have our ups & downs; that's the fickle nature of UC. Give the Rowasa/Canasa a couple weeks at least to quiet things down. You just had some added stress from moving, right? That's more wear & tear on the body so no wonder you're feeling iffy. Rest up as much as possible & otherwise be nice to yourself. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/23/2008 4:30 PM (GMT -6)   
Aww darn Dawn! I'm sorry that you've hit a snag. You were doing so good too! I'm sort of in the same boat - beginning a flare. 'Tis the season it seems. Hang in there and I agree that you should give the rectal meds a chance to do their magic. If you don't see an improvement by a month then you can always request the steroid enema instead of going on pred. (worse case scenario)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/23/2008 6:38 PM (GMT -6)   
I think my body sensed that I wanted to start a yoga class! It seems that if it's not march when I flare, then I'm about ready to start getting back in shape! Figure that one...

The steroid enemas did cross my mind. I would most definitely try them before pred - and pred would have to be a last resort.

Okay - I'll re-evaluate after another week of the rectal meds. And maybe do that yoga class anyway! I think this one was set off by stress leading to lack of sleep - and for once, it wasn't work stres... Or maybe it was set off by my discontinuation (SLOW TAPER) of my Effexor. I have noticed increased anxiety at times - specifically the day or two before this flare slammed me... Coincidence???

I will be happy that I had a "remission" of about a year. Small blips in there - but really no awful symptoms like this. Cheers about that at least!

Off to cuddle with my heating pad... If I'm not using it to treat a bachache, it's a "tummy" ache!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/23/2008 11:38 PM (GMT -6)   
awww, you were doing so great. Here's to your tract getting back on track soon.

Did alot of research on sleep debt and deprivation - lack of sleep definelty taxes the body
and exercise can def. help infuse the body with good hormones and stimulate cells and organs - a good thing! Hope you get into the exercise and enjoy it!
You like Yoga? Have you looked into any Meditaiton/Relaxation classes? There's something called MBSR - Mindfulness Based Stress Reduction which seems to be effective for relaxing and more bodily balanced. It's not just "voodoo." A friend of mine took one and raved about the breathing techniques for relaxation and led me through some Guided Imagery and relaxation exercizes...it was so refreshing!

Keep us posted!
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30373
   Posted 3/24/2008 1:43 AM (GMT -6)   
Dawn...is period time around the corner?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/24/2008 8:05 AM (GMT -6)   
Um, I'm not sure... I take my pills for three months and then have a week off for my "period". I'll have to check the status of my pills when I get home...

Around that time I will have more frequent bms and a day or two of cramps - but not the red mucous that I'm seeing now.

Sheesh - I was rereading my posts above, I really need to spell check when I'm using my laptop - looks like the fingers were a wandering!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5164
   Posted 3/24/2008 9:22 AM (GMT -6)   
When you mentioned "stress leading to lack of sleep" that rang a bell for me! I've been wondering for a while if it's really situational stress causing the lack of sleep, or some toxins circulating in the blood from subtle change in colon chemistry that happens now & then.The reason I speculate on this latter possibility is that while in remission an occasional Rowasa at bedtime will put me to sleep within an hour-- if I've been somewhat insomniac beforehand. Maybe a psychosomatic effect? I just mention it here 'cause it has played out that way for me several times. The Rowasa seems to act like a relaxant. (Of course it could also be that lack of sleep triggers flares for us by changing the colon chemistry.) / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 3:42 PM (GMT -6)
There are a total of 2,953,309 posts in 323,989 threads.
View Active Threads


Who's Online
This forum has 162066 registered members. Please welcome our newest member, LoDesco.
411 Guest(s), 12 Registered Member(s) are currently online.  Details
Canada Mark, Michael_T, Girlie, Starlight*, Pratoman, Dadeen, Noah2112, Jerry_Delaware, CherryBlossom, InTheShop, OriolCarol, elvin