Cytomegalovirus and UC

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

johnh5703
New Member


Date Joined Mar 2008
Total Posts : 6
   Posted 3/24/2008 12:52 PM (GMT -6)   
Just got back from Mayo Clinic in Rochester last Friday.  Today, I get a call from my GI there.  Said I tested positive for Cytomegalovirus (CMV) in the CMV special stains made from my colon biopsies taken there.  I will also now be taking an antiviral drug to knock the CMV in my colon out.  The thinking is that this is at least a contributing factor why I have been unable to get this latest flare up of colitis under control at maximized therapy (prednisone 40-60 mg), Humira, canasa suppositories).
 
Has anyone had any experience being diagnosed with CMV in their colon?  Has anyone had any experience after antiviral therapy to share the results from this treatment and whether or not their UC went promptly back into remission after the 21 day antiviral treatment period?  Have also consulted with the surgical team there for 2 stage J-pouch surgery as a distinct possibility in the next 4-6 weeks after the Humira leaves my body.
 
_____________________________________________________________________
 
37 year history of UC, left-sided, flaring since Oct. 07.  Prednisone (at 15 mg. now, Imuran 225 mg, Humira) 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30681
   Posted 3/24/2008 3:23 PM (GMT -6)   
Hi...WOW, how awful for you, but good the doc did a test to find it.

It seems most people have been exposed, but since you're on immunosuppressants, it makes sense it took over.

I would say it's possible that's why you're experiencing problems getting into a remission...but once you have it, you'll always have it..right?

I hope you get on the mend soon....healing thoughts sent your way.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, July 17, 2018 4:20 PM (GMT -6)
There are a total of 2,982,521 posts in 327,010 threads.
View Active Threads


Who's Online
This forum has 161830 registered members. Please welcome our newest member, finsurf.
482 Guest(s), 7 Registered Member(s) are currently online.  Details
gernet, vminas01, Staying Tuned, Jo-nock, Garion, InTheShop, Tall Allen