anybody on "just" pentasa?

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memmie25
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 3/25/2008 11:09 AM (GMT -6)   
hi am still not very clued up on u.c yet but am learning bits everyday with this brilliant site. My gp is not very clued up on uc either. when i read peoples post, alot of people have a list of meds they are on.My gp has only given me pentasa 1g, i was woundering is this a good sign that i only need one sort of medication or should my doc also be giving me other meds to help. My gp has told me on occasions that he is not very clued up on uc himself, so i am not very confident with him. i thought i should mention that i have mild/mod uc.

Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 3/25/2008 2:11 PM (GMT -6)   
If your GP isn't clued in then why hasn't he referred you to a GI specialist? Or, he could get clued in and read his big book of medicines.
Also, how were you diagnosed?

Anyway, how sick are you right now? What are your symptoms? If you're not having symptoms then your 1g of pentasa is doing the job. However, if you're still sick then you need more pentasa or a new medication. You should ask your GP for a referral to someone who knows more about the disease.

My first drug, pre-diagnosis, was pentasa. For me it did nothing.
Diagnosed with UC in August 2005. 
Suffered for my whole life before being diagnosed. 
Told to "Eat more fibre." 
 
Currently on:

Salofalk 1500mg x 4/day
Entocort
6mg x 1/day
Entocort increased to:
9mg x 3/day as of 2.14.08


mitch33
New Member


Date Joined Mar 2008
Total Posts : 11
   Posted 3/25/2008 2:42 PM (GMT -6)   

Hi I am recently diagnosed with 14cm proctitis and I have been prescibed Pentasa suppositories but still having symtoms but it has only been two weeks, So far this year I have seen my GP and then referred to a lower GI surgeon and I am now waiting for an urgent referal to see a gastroentroligist. I have suffered from bleeding and urgency since Nov 2007 and now have aneamia. How are you getting on?

 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/25/2008 3:26 PM (GMT -6)   
It's pretty simple, really. If the medication you're on is controlling your symptoms and you're content, you don't need other medications. I would urge you to consider a good probiotic, though, to replace the "good" bacteria and help keep your colon more healthy.

If your symptoms aren't controlled, then your treatment needs to be adjusted. That doesn't always mean more medications, sometimes just different ones.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


love in a mist
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 3/25/2008 4:31 PM (GMT -6)   
I've just been diagnosed too with proctitis, 10cm.. am on pentasa supps nightly but the GI decided to do a double whammy and also put me on asacol, I have to say within less than a week my symptoms have gone (which were mucous and some bleeding). it took a long time for me to get diagnosed, but last year the bleeding was alot heavier at times..
Vitamin B Complex, Ester Vitamin C 1000mg, Total EFA's, Prebiotic, Acidophillus, Solgar prenatal, phosphatidyl choline and weekly acupuncture.

Diagnosed with distal moderate proctitis up to 10cm on 18/3/08 - Asacol 400mg x 3, twice a day & Pentasa suppository x 1, nightly.


mitch33
New Member


Date Joined Mar 2008
Total Posts : 11
   Posted 3/26/2008 1:37 AM (GMT -6)   

Hi Love in the Mist

Does acupunture work for you in regards UC. I have been thinking of it myself were you referred or did you do it your self?

 


love in a mist
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 3/26/2008 6:31 AM (GMT -6)   
Hi Anita,
 
I referred myself to the acupuncture. I've had 6 sessions so far and do believe it has helped. I think I also have a bit of IBS problems too, and the whole focus has been on calming my digestive system down. I was also told to switch to 'cooling foods', so I cut out all spicy foods and chilli's and have concentrated on eating food as advised - the kind your gran would've made' - so just simple stuff. The combination of the changing my diet a bit and the acupuncture has definately helped me. I'm not great with needles, but I'm persevering!! I'd definately recommend it :-)
 
Rachel.
Vitamin B Complex, Ester Vitamin C 1000mg, Total EFA's, Prebiotic, Acidophillus, Solgar prenatal, phosphatidyl choline and weekly acupuncture.

Diagnosed with distal moderate proctitis up to 10cm on 18/3/08 - Asacol 400mg x 3, twice a day & Pentasa suppository x 1, nightly.

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