Who do YOU tell when you're flaring?

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dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/25/2008 12:51 PM (GMT -6)   
I'm curious as to what other people do when they flare...
 
I tell my hubby for sure.  Well, he'd find out one way or another.  This flare I've been giving him a bit more info that he probably wants - but it HURTS! so he needs to know.  I usually down play the issues, but that's not really a good idea - so I'm trying not to do that anymore.  If I'm feeling good for a few minutes - he knows about that too. 
 
Obviously the doc.  We don't live near any other relatives, so no reason to tell them.  But do you tell your parents?  Anyone who lives with you would need to know.  Do you tell co-workers?
 
I don't really want it going around the work place - only two co-workers know I have UC - but I'm in the bathroom so much now that someone HAS to notice.  I feel bad for the guy who faces the door that leads to the bathroom...
 
How do you bring up the subject?
 
 
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/25/2008 1:29 PM (GMT -6)   
up until my last flare, I really told no one, except my husband or a close friend, but I would downplay it. My last flare, my husband, family and close friends and close coworkers that I consider friends and my boss. I couldn't hide it and I am glad I did tell them, I was really sick and I would want to know if any of those mentioned above were not well.

I basically had to cancel everything for a month and I explained to them why because I did not want anyone to take it personally.........I did not have to and I know I am not responsible for how people take things, but I had to cancel some pretty major events w/family and friends.

How did I let them know.......I told a couple people and sent an email once word got out. I just said that I was going to be ok but am very sick and will not be able to make any plans or do anything for the next month or so until I am better......something to that effect. Tacky, maybe, but I was a flipping zombie.

Everyone was so understanding, except one friend, but she's delusional anyway.......so I tried not to take that personally (in retrospect I do not). She just could not get it through her thick skull that the last thing I wanted to do was to go sit in a movie theater w/her when having 25+ bm's a day...........
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 30mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 3/25/2008 1:58 PM (GMT -6)   
Who I tell depends on severity. My husband knows how I feel almost every minute of the day. I hold nothing back from him on his request.

If I am feeling bad enough to make an appointment with my GI and not just play phone tag with him it's usually time to tell my parents and my 2 best friends.

If whatever the first regimn of meds are don't work (rectals, asa's) then my social circle knows a little more (I don't lie about canceled plans, if i'm not feeling well the person gets the truth)

If the second round meds don't work (pred) I tell everyone and anyone who will listen to me whine. This is when inlaws usually find out and by now my mom has told everyone she knows that I am sick. So about half of the town i grew up in knows. My mom is a talker and very proud of how she says I "handle" my disease. She likes to tell people. I've become ok with this.

Work all depends on how long i have been there. This time around i haven't told many people at work. I am a sub and don't want UC to affect a possbile full time spot. I have told a few teachers (who don't talk to administrators anyway) one of whom what just dx'd with crohns. It was easy to tell a few other teachers who knew the one recently dx'd. They liked having someone else to ask questions. My last job knew from when i was hired. All i had said was i may need the washroom more often but it didn't affect that job at all so they were fine with it.


When i have to bring it up to someone knew I usually try to start with a joke of some sort.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, started at 60 mg 1/07, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08 now at 150mg imuran
waiting to be scheduled for remicade.
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 3/25/2008 2:13 PM (GMT -6)   
I eluded to it in another thread that I don't tell anyone other than my doctor because otherwise people drive me nuts constantly asking about it. I know they mean well but geez shut up you're not helping.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 3/25/2008 3:20 PM (GMT -6)   
My doctor is the first to know, then I tell my close friends and family
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/25/2008 3:23 PM (GMT -6)   
I always tell my husband (if he hadn't figured it out already). Then I usually fill in remaining friends and family if it impacts visits with them (for example if we are going out to dinner or if they are coming over, etc). I don't say too much at work because it isn't their business. I guess if someone asks why I go to the loo so much I would tell them.
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007

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