Humira- working?!

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superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 3/25/2008 4:13 PM (GMT -6)   
Hi all, I have a happy update though I've been hesitant to post anything because I didn't want to jinx myself, but here goes..

I've been on Humira since early February and I think it's working. The last two weeks I have been on only 5 mg pred and yet no D, no blood, almost normal BM's and little gas or mucus. I've also cut out refined sugar and artificial sweeteners as an experiment- so I'm not positive which is working, but I think I'll stick with the both! This is the first time I've been able to get under 10 mg of prednisone since June. I go to 2.5 mgs April 1st. Wish me luck.
32 year-old female
dx-ed in 2007
Prednisone- down to 5mg
Humira
Asacol
probiotics, no sugar for a month experiment!


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/25/2008 9:19 PM (GMT -6)   
Excellent news Superdeejayanna! Keep us posted on how you are doing; positive news is music to our ears! :-) If Remi stops working, I might just go towards the Humira. Thanks for the update.
Carol

Remicade - will have my 21st infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/25/2008 9:50 PM (GMT -6)   
Excellent news.............

please don't get alarmed at what I am about to post here. We just had a friend's friend visit here for a month. Really nice couple. The husband played golf with my husband a few times and played cards at our house a few times also.

He has Chrons (she has UC). He is/was on Humira and was feeling the best he has felt in a real long time and so optimistic. So upbeat, happy and finally enjoying life after being ill for so long. They had a phenomenal visit and great time here.

On their drive home back north last week they stopped somewhere in Georgia and they ate at a place with a large salad bar. I guess with Humira you should avoid eating salads - fresh/raw vegetables??? He has been feeling so terrific and I guess really wanted a salad among other things. He got sick the following day and his wife drove the rest of the way home.

He felt like he had a bug of some kind and a bit weak. Long story short he went into a coma at home, rushed to the hospital and passed away a few days later. He got some kind of intestinal infection that he just could not fight off and the hospital could not save him. He was 62.

I am only reporting this as a warning "IF" it is true that there are certain things you MUST avoid when on Humira.

He was a newfound friend for us and looking forward to possibly relocating here with his wife. We are very sad for him, his wife and family.

Our goddaughter's best friend who has had a very severe case of UC has only been helped with Humira and is doing fantastically on Humira now for about a year. She was at the point her colon was going to have to be removed and the Dr suggested trying Humira as a last resort and it completely turned things around for her. She has 2 small children and this has given her her life back.

I am not trying to bring gloom and doom but please discuss with your doctor and be sure what you need to be aware of to avoid to not cause irreparable harm to your immune system.

We have a close friend who is in remission from breast cancer and while on the chemo therapy she absolutely had to avoid salads and raw fruits and vegetables as well. It is making me and my husband starting to think differently about this also now.

Maybe more experienced people out there can chime in and give some opinions on this.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month


superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 3/25/2008 9:56 PM (GMT -6)   
Thanks for the replies.

I have not read anything about avoiding certain foods, I don't eat much salad just because raw veggies are harder to digest than cooked veggies. I'll talk to my GI next time I see her.

I am concerned about my immune system, dealing with a little cold at the moment, but I wonder if Humira is worse on the immune system than pred or other immunosuppressants like Imuran (that I tried and could not tolerate).
32 year-old female
dx-ed in 2007
Prednisone- down to 5mg
Humira
Asacol
probiotics, no sugar for a month experiment!

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