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greenlady
New Member


Date Joined Mar 2008
Total Posts : 2
   Posted 3/25/2008 5:39 PM (GMT -6)   
I am 26 years years old and have been diagnosed with UC for 2 years now. I am currently experiencing a flare-up and have been now for 3 months. Is that an usual long time or is this normal? I am taking 20mg of prednisone, lialda, mesalamine, vsl#3, and vitamins. I am also wondering about what exactly you call a flare up? I am a bit confused because I hear these stories of people running to the bathroom and dealing with all this pain. The only symptoms I have ever had are blood, loss of weight, and less than solid bm's. Is it going to get worse with time?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30676
   Posted 3/26/2008 3:27 AM (GMT -6)   
Hi..welcome to the forum!

Where in the colon is your UC...throughout or limited?

Are you on the mesalamine rectal meds? enemas or supps?

How long have you been on the pred....have you tapered from a higher dosage?

Remember that many on here have extreme symptoms and have been very sick for varied amounts of time.

Flares vary in symptoms for many of us...some with low rectal inflammation can have more symptoms of pain/gas/bleeding, etc than someone with inflammation throughout.

My initial symptoms were explosive bloody diarrhea up to 20 times a day before diagnosis and just after I started my meds for about a month. Then the symptoms started to decrease. The severe rectal pain upon bms (I call them white-knucklers) as well as the continual rectal throbbing was quite disconcerting. I have always had gut cramping of varying degrees...some definitely food related.

Bleeding was only for the first few years...then nothing until last summer when I went off my hormonal meds. I did flare and started bleeding for the first time in 15 years...but the bleeding only lasted for about a week once I started back on the hormone replacement and increased the rectal meds to nightly to treat the flare. Was a weird experience for me.

Because I treat flares very early and the inflammation is pretty much now only in the lower part of the rectum, my only noted flare symptoms are increased bms over a few days and the noted white-knuckler rectal pain when having bms (and rectal throbbing throughout the day). I'll start the nightly rectal meds immediately.

There are some UCers who don't experience much pain...others do and have to be on serious pain meds. I use the antispasmodic dicyclomine and Tylenol for gut/rectal cramping and pain.

Welcome again.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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