am i being fobbed off?

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memmie25
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 3/26/2008 6:51 AM (GMT -6)   
hi as some of u may have read on previous posts, i am from england and am not very happy with my treatment. Today i finally got a call back from my consultants secatary after leaving lots of messages. I explained that i have only seen the concultant once in 2 years and asked if this was normal, she became rather snotty on the phone and replied that some people may only need to see their concultant once/twice in a life time and some may see him abit more often than that. I couldnt believe what i was hearing in the end she said she will ring me back 2morrow when she has looked through my notes.. i wont be holding my breath for a ring back. Is this right? once/twice in a life time??

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/26/2008 7:10 AM (GMT -6)   
Interesting! Don't be afraid to ask for a supervisor. I've gotten to the point in my life if someone on the phone is rude and/or refuses to help me I completely bypass them.

I guess if you were on no meds and completely symptom free you would not have to go often. But still anyone w/ and IBD will need extra colonoscopies over their lifetime. When in remission I still see my GI every 6 months.

Keep us posted.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


memmie25
Regular Member


Date Joined Mar 2008
Total Posts : 20
   Posted 3/26/2008 7:42 AM (GMT -6)   
hi thanks for the reply, im only on pentasa at the minute and they seen to be working most of the time anyway, but what gets to me is.. how do the hospital no that they are working? they have not contacted me and my gp as trie to fax them on several occasions and they are not even getting back to him. my dad also has uc and in under a different hospital and they are brilliant im thinking of moving to the same one.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/26/2008 7:45 AM (GMT -6)   
In the US, we generally see our GI doctors regularly. As Tab said, when in remission I go every 6 months. The specialist is the one who does our scopes and prescribes our medication. Our primary care doctors generally take care of our preventive and short-term needs, but if we have a serious chronic disease that's normally followed by a specialist. It provides a high level of care, but is also what makes our healthcare more expensive.

I know your system is different, and perhaps some of our other UK residents will come along and comment for you. What does really bother me, however, is when I see people having calls returned by secretaries or appointment clerks. When one calls the doctor with a question, he or she deserves to speak to someone with some medical knowledge and training - a doctor or nurse. Secretaries giving medical information just scare me to death.

And yes, don't be afraid to talk to a supervisor. And it that's the consultant and he won't hear your issues, your healthcare system is government operated. That means there is some government official somewhere whose job it is to receive complaints about doctors and their staffs. Don't be afraid to make your needs and concerns known.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


brynheulog
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 3/26/2008 9:13 AM (GMT -6)   
Hi I live in Wales and because my nearest GI is 1 hour away He has given me his mobile phone number for emergencies(although I have never used it)
I can ring his secretary if I have a problem and ask questions which she will ask him and will normaly come back to me within 2 hours. In the early days after diagnosis(Nov 2006) when ever I rang he would ring me back and has spent half an hour on the phone trying to explain things to be and to tell me what I need to do.
If you are not satisfied with yours you should change because you need an understanding GI and secretary. Do they have a specialist nurse at your hospital? Mine does not. You can ring them and they are much more qualified than the secretaries.
I saw my GI every month for the first 3 months then it went to 3 months and then 6 months but I have had to reschedule a appointment after only 3 months again as I am having trouble getting my current flare under control. Have had to wait only 2 weeks for this ap and I go next Tuesday. Hope he has some answers for me.
Good luck
Current medication
For ulcerative colitus asacol 3 x 2 daily 2 x asacol foam enemas 1 morning 1 evening(cuurrently doing them both at night) spasmonal 2 x 3 daily(anti spasm) probiotic 4 x daily
folic acid
omega 3 (helps with the depression)
For asthma ventolin inhaler serevent inhaler
I also suffer witn endometriosis

 


 


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 186
   Posted 3/26/2008 9:23 AM (GMT -6)   
No, not right by a long shot.  Once or twice in a lifetime??? Anyone who would make a statement like that doesnt know anything about UC and should not be giving medical advice.  It does not matter which country you live in if you have IBD or any other issue you should be able to see or at the very least speak with a Dr.  I would not trust anything this person is telling you.  I would fear that they are not medically trained enough to be reading thru medical charts and making decisions.  Definetely, for your own health, find someone else to call.  I wish I knew your health system better to give specific numbers/names etc, hopefully someone else can.  Everyone deserves to have access to treatment.
 
sore_guts
 
left-sided UC
400 mg Asacol 4 pills 3 times/day lialda 1 pill 3 times/day
making some very light attempts using Rowasa enemas just cant seem to do these
iron supplements 3 times 1/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 3/26/2008 12:24 PM (GMT -6)   
Some medical support staff can indeed be snotty. My own gastroenterologist (in major U.S. city) is well aware of that behavior & tries to correct it, but even so, it can add to patient's wear & tear. For example: I have phoned during office hours at medical center to schedule an appointment with the gastro and been asked by the receptionist: "Why would you want to do THAT?" If they have issues with a specific doctor, they may try to take it out on the patient as a way of getting even. Others may cause problems out of their boredom with the job, or because they feel their pay is too low. In any case, if an appointment is what you need, you have to persist in scheduling it & tell the doctor what happened when you get seen. The feedback will clue you in as to whether you should change doctors. Good luck! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

carpy
Regular Member


Date Joined Feb 2006
Total Posts : 41
   Posted 3/26/2008 2:19 PM (GMT -6)   
I am from the UK too, Northants, i see my GI once a year and have done so for many years now. My GI often says that if i have any problems to ring his secatery,i tried it once only to be told "what are you ringing us for ,see your GP! " . so now i go straight to my GP who does not seem to have a clue about UC . in my experience those who shout the loudest get the best treatment. sad but true.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/26/2008 4:16 PM (GMT -6)   
One of the front office people in my GI's multi-doctor practice got snippy with me once. I asked to speak to the practice manager. No one has been short with me since then. My doctor is great, but he doesn't have control over the office people because they don't work for him directly. So I went to the person who is responsible for them.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

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