Thanks for everyone's kind thoughts. We came back from the doctor. Her bloodwork is fine (mostly has been all along). The results of the metabolizing part won't be back until next week but they have been pretty good too. The doctor expects them to look good which will probably mean that she is not responding to 6-mp anymore (if at all since he is unsure if it is the 6-mp or the residual prednisone that was working).
He is concerned that in her last colonoscopy (around Halloween), there were signs of dysplasia. He had planned that she would be better now to do another colonoscopy to check again (without so much inflammation).
The doctor talked about if 6-mp isn't working she could start Remicade. However because of the dysplasia, it puts a whole other perspective on things. He doesn't want her to start Remicade if it looks like she will need to see a surgeon. He is not pushing for surgery but he is open, honest, and proactive. He didn't want to alarm us but he is being forthright.
For now, Bratcat is on prednisone. None of us want her on it (including the doctor) but he wants to get her under control soon and see what the colonoscopy shows.
So as of today, Bratcat's brother has a CT scan on Monday and Bratcat has a colonoscopy on Tuesday (still have to make the appointment). And so it goes.
BTW, she stopped the doxycycline after 3 pills. She felt icky as soon as she started so chose to stop them. Since then she has been "not feeling right". But since her schedule was kind of wacky and busy and she was fighting a sinus cold, we weren't sure what was causing the "icky".
Also the doctor ordered stool samples to check for c-diff. I love being a mother!!
--Mom of bratcat (16 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.
Post Edited (Bennie) : 3/26/2008 3:32:48 PM (GMT-6)