steroid enemas

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 3/26/2008 6:26 AM (GMT -6)   
i also am wondering if she can cut back the rectal meds, she is using so many and is definately absorbing cortisone through them. if you are well for a few months can these be cut back to a couple of time s weekly- i know everyone is different -and i will ask the dr at next appointement , but would like to know other experiences
next dr appointemnt is early june if all stays quiet.
thanks
Mom to 19 year old daughter diagnosed 11/07.
asacol 2 3x daily-discontinued
colazal 3 3x daily/switched to 4 4x daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
canasa suppostiories 3x daily /switched to court supp 1-2x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 3/26/2008 7:54 AM (GMT -6)   
In my experience you can cut back on the enemas, but if you experience any signs that you are going to flare again, you go right back to where you were when you cut back. Be careful and cut back slowly.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/26/2008 8:57 AM (GMT -6)   
I was on the steroid enemas for a long time and I would typically stay on them for 6-8 weeks and slowly taper. But if at the 6 week mark and I was still having symptoms then I would stay on them until I had no other symptoms - waited another week and then taper. Taper reallllly slow off the steroid enemas especially if she has been on them a long time. She may notice a slight backlash of symptoms when tapering and that is normal. But if the symptoms persist for more then 3 days after a taper then it's best to start back to where before the symptoms started. My taper scheduled went something like this: skip an enema for one night a week for about 2 weeks, then skip an enema every other night, wait another week or two, then every 3 nights and so on.
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/26/2008 9:00 AM (GMT -6)   
I agree, w/Sherry, taper them if no symptoms and if an increase in symptoms, slow the taper.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 30mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5165
   Posted 3/26/2008 10:02 AM (GMT -6)   
A patient who has been on steroid enemas for over 3 weeks definitely needs to taper off them so that the endocrine system can readjust, especially adrenal glands.
Read the enema package insert then consult your pharmacist & gastro for more specific recommendations. I got off mine thru alternating nights to start for a couple weeks, then every 2 nights for a week, then 2 per week, etc. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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