chills with cramps

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dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/26/2008 11:23 AM (GMT -6)   
I have a call into the doc.  The cramps last night about did me in!  I couldn't retain the Rowasa for more than 25 minutes - and that was a struggle :(
 
I have noticed that the cramps yesterday evening and today have given me a case of the chills.  I was SO COLD last night.
 
Has anyone experienced that?  Besides when I'm cramping, I seems like I'm running a fever.
 
I'm afraid to eat because the cramps come w/in 20-30 minutes of eating.  But I KNOW I need the calories.  I am drinking a lot of fluids - water and decaf iced tea (unsweetened) - to stay hydrated.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
 
Asacol 12 per day,  Azathioprine 75mg, Aciphex, Effexor XR, Forvia and a Probiotic
 
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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/26/2008 11:48 AM (GMT -6)   
Do you have a fever? If not, did you mention that you are near your period or no? I know that when I was flaring and I would be near my period that the chills were horrible and I could never get warm. It's good that you have a call into your doc though. Here's a warm fuzzy ((hug)) and I hope this settles quickly for you.
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
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hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 3/26/2008 12:12 PM (GMT -6)   
i used to get chills with my cramps while flaring also. so it was nearly every BM which was a dozen a day.

no fun. :(

they definitely went away when the flare slowed down so hopefully you'll be there soon. you could try a heating pad.
29, happily married, stay at home mom to 2 year old son. due to have baby #2 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Prayer! asacol, probio, ground psyllium husk, prenatal, folic acid, cal-mag

may you live all the days of your life.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 3/26/2008 12:32 PM (GMT -6)   
Yes, chills have been a recurring part of my flare routine over the yrs. It helps to bundle up in layers you can easily get out of, as necessary. I also get relief from drinking something warm, even apple juice heated briefly. Pretend it's Halloween & you're going to have cider & doughnuts ... heh, heh-- just trying to cheer you up. Hang in there! / Old Hat (nearly 30yrs with left-sided UC ... [etc.])

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/26/2008 12:47 PM (GMT -6)   
Doughnuts! Yum!

The nurse called back. They are going to call in some Bentyl (sp?). Then she said the doctor wanted to start pred. I immediately said, "Do we have to? What about steroid enemas? I'd do anything not to do the pred again."

She's going to talk to the doctor and call back. I will not follow the pred path again. I sure hope this doctor will work with that. I would really hate to go through the hassle of finding a new doc, again.

I remember having cold sweats during a white-knuckler before - but not the deep chills after. Yes - layers are good! T-shirt with zip up hoodie is the fashion today. Hoodie goes on, hoodie comes off, hoodie goes on....

I should have listened to intuition and brought the heating pad to work :(

This flare is giving me lots of back pain as well. I saw the chiro yesterday and nothing was out - so we know it's the flare... I took a couple of pamprin and hope that will help for the afternoon.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 3/26/2008 1:03 PM (GMT -6)   
I had some bad chills too when I was flaring super badly, I thought it was from my cold, but it was a small cold and I knew it wasn't 'right'.

I am so sorry you are so sick right, now, I really feel for you.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ almost in remission
UC dx'd March 2000 (30 cenitmeters as of 2005-proctosigmoiditis)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd Sept 2007 - partial remission since 03/08
Prednisone 30mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 3/26/2008 1:33 PM (GMT -6)   
I get chills even when I'm not flaring...

Dicyclomine (Bentyl/Bentylol) will help....

EAT!!!!!

Request the foam steroid enemas before going on the pred.

What are your other symptoms?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/26/2008 4:58 PM (GMT -6)   
Nurse called back - holding off on the pred for now - just calling in the Bentyl.

I'll give it a few more days before I ask for the steroid foam. I wonder why he wouldn't prescribe it right away when I said no to the pred... I told him in my appt on the 13th that I never wanted to see pred again. Unless I'm in agony, that's my stance and I'm sticking with it. Evil crud.

I did eat some lunch. It tasted so good. I decided that if I was going to hurt anyway, and I wasn't going to throw up, then I was going to enjoy some food. Now to decide what to make for supper...

My symptoms are 5-10 bms a day, back ache, and cramps. Of course the fatigue is there. Then fever just before and during the first part of the cramps. Chills during the last part of cramps and after.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/26/2008 7:29 PM (GMT -6)   
Just wanted to say I hope you are feeling better!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Co-Moderator UC Forum


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4411
   Posted 3/26/2008 10:42 PM (GMT -6)   
Yes! I was extremely cold when I first got really sick with this DD. I would lay on my bathroom floor in between BMs with a space heater (which gets extremely hot) right next to me, running continuously. I don't remember having a fever though, or maybe just the chills part of a fever.

I'm so sorry you're feeling so crappy. I hope you feel better really soon. Glad you got some food down.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 3/27/2008 1:59 AM (GMT -6)   
Dawn...what is the dosage of the Bentyl?

No use in questioning why the doc didn't prescribe you the steroid enemas...call tomorrow and request them. Friday is around the corner..hence, the weekend and another week added to suffering.

Don't wait!

Good you ate!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/27/2008 9:01 AM (GMT -6)   
10 mg dose of Bentyl - every 6 hours. It didn't seem to do a thing :( Before I attempted my Rowasa last night, I took a second one - yes, not as prescribed. Still couldn't retain the Rowasa for very long. The 20-25 minutes I did was agonizing. I think I'm pretty good at waiting out the cramping pain as every cramp doesn't send me to the bathroom.

Does the bentyl need to build up in my system? How does this stuff work?

I called the nurse this morning and said I wanted the steroid foam enemas and I do not want oral pred. So, we'll see what comes of that. I'm hoping for good things as I'm seeing more and more red mucous in the toilet.

The fog is getting the best of me :( I can't seem to remember when I take pills outside of my regular ones... I might have to put sticky notes on the vials.

Flaring bites!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 3/27/2008 12:17 PM (GMT -6)   
Hi there....flaring bites is a perfect statement!!!

When you call the doc, ask if you can double the bentyl to 20mg. You'll feel a bit "relaxed"...

It doesn't really build up in your system I don't think.

Take it at least a half hour or more before you take the enemas....I agree that the foam could be a better thing for you.

hang tough..hopefully the bite will ease!
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/27/2008 2:01 PM (GMT -6)   
Okay - Rx for cortifoam is called in. I can't wait! Something has got to change and soon.

Nurse said to stick with the 10mg for now. But the minor help they are doesn't last 6 hours. Relaxed would be good. The pain/cramps is causing me to tense up and I don't think that helps.

I'm hoping the foam is my miracle drug.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/27/2008 7:49 PM (GMT -6)   
Pharmacy called. They don't have the Cortifoam in stock. Should be in tomorrow. I'm tempted to use it twice a day over the weekend. Kind of a jumpstart.

The inflammation is progressing. There is more mucous and the mucous/blood is darker and darker.

I'm wondering what symptoms leading up to this I missed. I'm really miserable. This flare has progressed faster than I remember the others progressing. Although I think I've blocked out the worst of those.

I'm taking the blue Pamprin with my Bentyl. It's maily acetaminophin. I am hoping that the other ingredient will help as well. Maybe reduce the swelling. I look to be about four months pregnant - and that's not possible.

I'm not going to try the Rowasa again tonight. I can't take much more of the pain - so I'll try a Canasa or two. That's better than nothing.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


mythreesons
Regular Member


Date Joined Feb 2008
Total Posts : 21
   Posted 3/27/2008 8:23 PM (GMT -6)   
When my flair was the worst I had chills and night sweats Bms all night. I never had a reel fever but it felt like I did. The chills were the worst. I was the kind of guy that would take my kids Ice fishing in a sweat shirt, now with UC and 50 pounds lighter I have the heater on in the car on 50 degree days. When the night sweats come the covers come off until the chills then they go back on add those night time BMs and it's not the best way to get a good night sleep. the Prednisone and asacol seem to be working and now I'm on Imuran too so I hope that gets me in remission. I do think it's getting better for me though and I hope it will be the same for you.
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