UC'ers...How do you sleep?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jan 2006
Total Posts : 147
   Posted 3/26/2008 3:01 PM (GMT -6)   
I for one, cannot sleep with my hubby in our bed.  : (  I have to go to the guest bedroom after watching some TV and finish the night in there so I don't get touched, bumped in the night, nothing!  My gut area is so tender that I seem to feel any movement of any kind.  I have to sleep on my back propped up with several pillows.  AND..then there will be those days that the Pred. is going to start kicking in really well (just been back on it my third day today) and my legs will start getting swollen.  GRR!  There goes more pillows just for the legs.  WOW!  What we go through.  : (
Anyone out there like this too?  Got any tips, advice for sleeping comfortably???  HELP!  BACK IS ACHING! : (

Diagnosed with UC/Pancolitis Dec. 05-Flaring again Presently!
Imuran: 1 daily 50 mg.
Colozal: 9 per day
Prednisone: 20 mg 2x a day
Try to keep positive and have faith!

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 3/26/2008 4:18 PM (GMT -6)   
I stay up until at least midnight, then sleep in the guest bedroom. It was worse when I was on Pred, but I've always had trouble sleeping. Now that I have assorted UC-related and post-surgical joint and muscle pain, I may be up and down several times in the night. This way we both sleep better, and we know where to find one another if we want to.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
Co-Moderator UC Forum

Regular Member

Date Joined Mar 2008
Total Posts : 35
   Posted 3/26/2008 5:09 PM (GMT -6)   
Taben for back pain try "JOINT SUPPORT FORMULA" FROM AYUSHAKTI USA IN NEW YORK CITY . It gave me great relief...worth a shot

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 3/26/2008 5:57 PM (GMT -6)   
Sleep? What's that? (I'm a chronic insomniac) :) I still sleep in the same bed as my hubby but we have a semi-waveless waterbed with a 4" temperpedic mattress topper. I sometimes though have to put my comforter in between my knees when I sleep especially when my knees are hurting that day. But I don't really have much trouble sleeping in the same bed as someone - as long as he stays on HIS side! :)
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE


Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 3/26/2008 6:35 PM (GMT -6)   
We have a king size bed. We can reach out and find each other w/o being too close. Works well unless hubby snores! Then I move to the guest room - which I have made up to my liking. Also, if I'm very restless, I move to the guest room - or couch on occasion.

I have lots of pillows around as well. One for between the knees. One feather one for if I want that. Another memory foam one for if I want that. The wedge pillow to prop me up if my GERD is an issue.

If I really need the sleep, Benedryl helps to knock me out.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

Veteran Member

Date Joined Dec 2005
Total Posts : 3238
   Posted 3/26/2008 7:33 PM (GMT -6)   
I sleep upstairs and hubby sleep downstairs. A leaf could blow by the window and wake me up! I sleep w/ one of those little pillows from Brookstone that I kind of hug it. I've been having tummy pain lately and it really helps.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

Co-Moderator UC Forum

Veteran Member

Date Joined May 2007
Total Posts : 646
   Posted 3/26/2008 7:42 PM (GMT -6)   
I've never been a great sleeper, but since I've had kids I pretty much knock out fairly quickly anymore.  I think the UC actually runs me down and makes me more tired, actually.


Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs

Regular Member

Date Joined Mar 2008
Total Posts : 274
   Posted 3/26/2008 8:52 PM (GMT -6)   
LOL I have had some sleep issues since starting Entocort but after reading what you all go thru, my problems aren't so bad anymore!! Thanks !!! ;o)
Ulcerative Colitis Diagnosed May 2004
400mg Asacol 3 times per day.... increased to 6 400mg per day Mar.11
Entocort 3 pills once a day
Daily Vitamin for Women

Regular Member

Date Joined Jan 2008
Total Posts : 66
   Posted 3/27/2008 6:56 AM (GMT -6)   
Sleep...Whats that!!! I am on pred. so I sleep about 4 hour a night...broken up. It takes awhile to get to sleep...then I sleep for about 3-4 hours and then thats it. Get up take pred in morning and get some energy...but still sleepy.
We have a king size bed and he HAS to stay on his side...with a pillow in between us. Most of the time he sleeps downstairs on the couch. I think he prefers the couch.
I know I like the bed to myself...with my cat. He likes to snuggle tho and I hate to snuggle even with the cat.
 DX: 1993: sulfasalazine; 1998: Pancolitis UC. asacal 2 2X daily, cortifoam,; 2003: Protitis UC severe flare. asaca 2 2X daily, canasa, cortifoam, cortenema
2008: Proctosigmoiditis severe flare. asacal 3 2X daily, canasa/discontinued while on pred, cortifoam/discontinued, Prednisone 40 mg to be tapered each week
Back on Prednisone 30 mg for 2 weeks then taper to 20 mg then we'll see. Back on Canasa at night.

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 3/27/2008 9:39 AM (GMT -6)   
Guess I'm the exception to the rule. I'm asleep before my head hits the pillow. Usually have no trouble sleeping through the night, although I get up once or twice for bathroom trips with all the water I drink. I'm a side sleeper that has to have an extra pillow to hug. This may sound weird, but my ex got me started sleeping with a box fan running for white noise and it makes all the difference - particularly if you live in an apartment or have noisy neighbors close by. The white noise is very relaxing and it blocks out alot of ambient noise.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.

Veteran Member

Date Joined Dec 2006
Total Posts : 3670
   Posted 3/27/2008 2:10 PM (GMT -6)   
I sleep downstairs my husband upstairs. I'm in a constant flare, but sometimes it's worse than other times and that's when I go to the bathroom during the night. I've ordered a sleep number and should have in two weeks. I will back in the same room with my husband, but different beds.
I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 11:58 PM (GMT -6)
There are a total of 3,005,625 posts in 329,243 threads.
View Active Threads

Who's Online
This forum has 161787 registered members. Please welcome our newest member, melzissa.
260 Guest(s), 2 Registered Member(s) are currently online.  Details
Ss800, John T