Anyone out there taking meds and have no side effects and are in remission

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3590
   Posted 3/27/2008 1:11 PM (GMT -6)   
I'm taking a poll...
 
Anyone on meds and are not having any side effects and are in remission? If so, what worked for you as far as meds and how long have you taken them for?
I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07
Had Cipro and Predison for 10 & 5 days, 7/3/07
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Had a shot of steriods for my ear inflammation 8/31
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
On Standard Process supplements, trying a new protocal from a
natural path as of 9/10/07
!
 
 
 


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 3/27/2008 1:28 PM (GMT -6)   
I *think* I'm in remission. I just had a minor blip the other day but now I seem to be fine again. I am on Colazal and 6mp but since I've been on them for so long, I no longer have side effects. Sure I had them when I first started but once my body became accustomed to them, they went away. I have been on Colazal for 3 1/2 years and 6mp for 1 1/2 years.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Fibromyalgia-'06~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 3/27/2008 4:08 PM (GMT -6)   
I've been in remission for two years on Colazal and Remicade. No bleeding, no mucous, no pains, no ulcers in my colon.

Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum


curly girl
Regular Member


Date Joined Feb 2007
Total Posts : 58
   Posted 3/27/2008 4:12 PM (GMT -6)   
I'm currently taking 9 asacols per day (tapering down). I had a month long flare up in August. I've been in remission since then. Prior to August, I was in remission since my intitial diagnosis.
Diagnosed with UC January 2007
Responding well to Asacol 2 pills 3 times per day
Asacol upped to 12 per day until the flare is under control - starting to tapper 1 pill per week
Canasa added nightly until the flare is under control


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 3/27/2008 4:38 PM (GMT -6)   
I've had side effects from the Prednisone and whenI was on Imuran for two weeks it was hideous, but the rest of the meds have been fine. I take 4 Lialda every morning and have had no side effects. I have a Remicade infusion every six weeks, again, no side effects.
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, tapering attempt, down to 10/5 mg. alternating daily. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums
12/1 - 12/29/07 weekly Venofer (iron) injections; <S>9 mg Entocourt EC</S>; Xanax as needed; Lexipro 10 mg, <S>Rowesa;</S> <S>Asacol; Colazal</S>; Bad reactions: Imuran (2/07)


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 3/27/2008 4:53 PM (GMT -6)   
I was in remission for 8 months last year with no side effects. I was on 50 mg of 6mp.

Ah, the good old days... I remember them fondly.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.


Midnitenz
Regular Member


Date Joined Mar 2008
Total Posts : 31
   Posted 3/27/2008 7:19 PM (GMT -6)   
I am on 4 tablets of Asacol and 2 tablets Mecaptopurine per day and have been in remission since 2003 so 5 years...........

tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 3/27/2008 7:26 PM (GMT -6)   
I'm back in remission now, and have been for about 6 weeks. My meds are in my signature and should be pretty current. I can't think of any side-effects, either. I'm even back to drinking my daily coffee with no problems. Hooray!
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics


Charmin
Regular Member


Date Joined Feb 2008
Total Posts : 53
   Posted 3/27/2008 7:42 PM (GMT -6)   
Does true remission mean you can eat anything you want? I guess with or without medication.

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/28/2008 12:12 AM (GMT -6)   
Dx last January - been in remission since July/August - was on prednisone for 2 months, then 6MP for 5 months - now only 4 Asacol 2x a day. Feel great, no side effects, can eat whatever, no major abnormal reactions to foods.
(until last week, had heartburn-like symptoms possibly from Asacol, currently testing that theory)
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


Knitty_Cat
Regular Member


Date Joined Jun 2006
Total Posts : 105
   Posted 3/28/2008 5:07 AM (GMT -6)   
Yep, I do 4gm oral 5ASA daily and two 5ASA foam enemas a week. Last flare was April last year. I have never noticed any side effects from the 5ASA drugs.

The oral 5ASA did a lot of the work but adding two enemas a week seems to have really kept me in remission (I started those last June/July). I love rectal meds!

I can pretty well eat what I want, although I do keep to a balanced healthy diet and eat lots of fibre rich food. That seems to keep my stomach settled and happy (I have never been able to connect food to flares, fibre just gives me better bms).
Left Sided UC
Maintenance Meds: Salofalk tablets (Asacol) 2 tablets 4 times daily (4gm total) plus 2 Salofalk foam enemas per week.
Flare Meds: Salofalk enemas and/or Colifoam
Oat bran 60grams daily, Metamuscil and multivitamins


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 623
   Posted 3/28/2008 6:01 AM (GMT -6)   
I'm in remission on Azathrioprine and have been (with a "bump in the night" now and again, controlled by rectal med additions) for about six years.

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 3/28/2008 7:27 AM (GMT -6)   
I am in remission and have been since July 2007 when I had a minor flare during the first trimester of my pregnancy. Prior to that, I was in remission for almost two years.

I have always taken only the medications listed in my signature line. I have never experienced any side effects from these meds. During a flare, I typically use an 8 week taper of Prednisone. I experience very few side effects from the Pred either - usually just some insomnia and a hot flash here and there.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 3/28/2008 9:41 AM (GMT -6)   
Yes I'm on Remicade and have been in remission for 3 years. No side effects!
Carol

Remicade - will have my 21st infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 233
   Posted 3/28/2008 11:51 AM (GMT -6)   
Im in remission with no side effects from drugs or colitis at this point.  Imuran is what worked for me.  I had taken prednisone for a long time before that and tried to maintain remission with Asacol or Rowasa. 
 
I've taken Imuran for a few years now FAITHFULLY. 
 
Michele
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5175
   Posted 3/28/2008 5:37 PM (GMT -6)   
Hi, THEREAREMIRACLES! I'm in remission since Oct. on 3 Colazal daily after catching a flare-up in descending colon quickly last July. Prior to that mini-flare I had been in remission for 20 months, a record for me-- thanks to reduced-dosage Colazal plus an occasional (generic) Rowasa. My gastro convinced me several yrs ago that it's safer to be on med than winging it. I cannot stay on full daily dose Colazal longer than 10 weeks, though, because my eyelids start to puff/itch. Julee70 recalled having a similar reaction at one point. The best course of action is to find a knowledgeable IBD gastro who will see you through the rough times/help you determine the safest & most effective med(s) to take longterm. How are you doing with the burning butt? / Old Hat

UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 3/31/2008 3:42 PM (GMT -6)   
My son is tapering off of Prednisone, down to 10 mg. per day.  He has also been on 6mp for about one month. HE IS DOING GREAT.  So great, I don't want to jinx it.  We just got off of a spring break cruise and he ate anything he wanted. Chicken caesar salads, pizza, lots of "good foods" like prime rib, grouper, and ice cream with butterscotch sauce at every meal. It was awesome.  He looks tan and handsome, instead of pale and skinny.  He is also taking tons of supplements from a PhD nutritionist that I have not listed in my signature.  I don't know which piece of the puzzle is doing the trick, but I will take the positive improvement.
UC Mom
Son diagnosed 10, 2006 at age 15
Prednisone
6MP (just started 50 mg per day)
Culturelle Probiotic
Multi Vitamin


digezy
New Member


Date Joined Jul 2006
Total Posts : 15
   Posted 4/1/2008 12:12 AM (GMT -6)   
I have been in remission for 1 year almost to the day and I am only taking 250 mg of Imuran a day. I was also getting Remicade every 8 weeks or so, but have since stopped that as well. I am currently experiencing no side effects whatsoever.
Diagnosed with UC in 2002
Colazol 3X3
Rowasa X 1
Imuran 100 mg
5th Remicade infusion December 4, 2006
 


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 4/1/2008 7:48 AM (GMT -6)   
Yep, 3 Colazal a day and 1/2 Rowasa every other day. No side-effects
gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 4/1/2008 11:03 AM (GMT -6)   
I'm in remission. 2 Lialda/day. No side effects.

I do not eat what I want and am very careful about what I put in my mouth. (To avoid gas and cramps) I haven't had any of the big D (or constipation) in a while. The bleeding has stopped thanks to a month on prednisone.

munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 4/1/2008 1:22 PM (GMT -6)   
I'm in remission too, taking 6 azulfidine every day and rowesa enema every 4th day. No side effects......
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission (approximately 10 of those years without any meds)
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema every 4th night, will try to spread it out more. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 
In remission since Jan 2008, can't believe it.............


SwollenColon
Regular Member


Date Joined Nov 2006
Total Posts : 190
   Posted 4/2/2008 8:44 AM (GMT -6)   
Yep, Imuran and Entocort

UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 4/3/2008 8:13 PM (GMT -6)   
4 colazal/day and probiotic, remission since last spring, occassional joint pain, anemia, minor headaches, i dont however tend to think they are side effects just secondary uc symptoms.


 
 
__________________________________________________________________________________
- 29 y/o male residing in Northern Virginia, US
- Indeterminate UC diagnosis in April, 2006 - symptoms came on sudden and drastic resulting in a year long battle to get things under control - symptoms are now stable
- Approx 8 mths into the ordeal a very painful fistula appeared - it is now stable but not completely healed
- Plan to get tested for Crohns in the short term future
- Completed 3rd Prednisone taper on 4/13/07 - tapered from early January 07 through mid-April 07 after being hospitalized from a bad flare with severe anemia & joint pain
- During Apr-May 07 suffered through 2 mths of a non-stop migraine which went away after remission was achieved- attribute this possibly to long-term Prednisone use
- Joint pain has cleared up but do have occassional minor arthritic pains
- Currently in remission and enjoying life again
- Started on 9 Colazal/day but have tapered that to 4 and plan to hold here indef.
- Supplements include daily multivitamin, Fish oil & Primal Defense Probiotics 2x/day
 
 


meandmycolon
Regular Member


Date Joined Dec 2006
Total Posts : 20
   Posted 4/3/2008 9:49 PM (GMT -6)   
Hi.  I haven't posted in about a year.  I'm thinking remission as well, I am on canasa supp., 4asacol a day, 6mp 75mg., probiotic, vitamin, fiber and prozac.  I haven't been this well in four years.
 
I was curious about your rocephin shot for bloating and digestion.  I am having trouble with horrible bloating and gas for about 2weeks and can't tie it to any one thing.  Can you tell me more?  thanks.
 
meandmycolon
asacol, mp6, canasa, fiber, probiotic
pancolitis 2004
middle section of colon never repairable
rectal section colitis dx2006
'
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