Ditto.............hubby (and I) get so discouraged over this. Seems like I never have the bed made!! The open floor plan in Florida makes it "out there in the open" and a pain to always be looking at an unmade bed...lol. Sp I just shut the door and I don't see it.
Most times I just neaten it up and pull it together so he can easily slip into it and not be fooling around with all the pillows etc to unmake it. More important for him to get the rest.
His doctors say the same thing - goes with the disease - I'm sure all his meds add to it to. I find when we have things to do, errands to run, seeing friends for the most part his psyche kicks in a bit and he has more stamina. Afterwards he is pooped out though. If he is in the house with nothing to do then he is resting in bed or on the recliner on the lanai.
As a younger person with families and jobs and other obligations it has to be so difficult to try and push yourselves when the body is not willing. Every day I hope and pray some major breakthrough will happen to help all of you out there trying to live your lives with this literal PIA.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month