still with pain

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lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/28/2008 5:15 PM (GMT -6)   
Hi,  Still trying to find out what is causing pain in upper abdomen.  Had a CtScan of upper abdomen  and everything came back normal.  Yesterday had an ultrasound of lower abdomen, will get results back next week.  I feel swollen around my waist, hurts and nausea.  This stuff around my waist started about a month ago.  I don't know if it has something to do with uc or is this something else.  I was tapering very slowly off entocort but now I'm back to more bm's so I uped the entocort again.  I get so discouraged with this stinken disease.  I just see no end to it.  I see people in remission for a year.  If I went into remission for a month I would be happy.    I've been seeing my Gastro Doc for 2 years.  My family wants me to go to someone else.  I don't want to pick a dr. out of the phone book.  Anyone out there from around Lakeland Florida who might know of a good Dr. who specializes in this colitis. Thanks. 
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety


quincy
Elite Member


Date Joined May 2003
Total Posts : 30676
   Posted 3/28/2008 6:26 PM (GMT -6)   
Hi lenie...sucks to be continually going through this...good the CT scan came back normal, but not so good because nothing is definitive yet.

Are you still on the canasa...if yes, how often are you using them? You can use them up to 3 times a day.

Regarding the pain, etc....have you looked at food choices..sometimes an adjustment or cesation of some foods will help.
 
Are you on any digestive enzymes or probiotics as well?
 
The other thing....could be IBS as well....which can be food related.  Your doc could consider to give you an antispasmodic to see if that helps.
 
What other symptoms are you having...bm frequency, urgency, bleeding, diarrhea..etc?
 
Hope the ultrasound results brings forth some insight as to what's going on.
 
hang tough....can you call the doc or even your GP to prescribe an antispasmodic..I use Bentylol which in the US is Bentyl..or dicyclomine.
 
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 3/28/2008 5:29:36 PM (GMT-6)


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 3/28/2008 7:09 PM (GMT -6)   
Hi quincy...good to see you out there. I'm not having spasms, this is a continuous ache across my front, just under my waist. I was tapering slowly like you said but when the bm's were getting more frequent (7 a day) I jumped back on the 3 entocort. I was down to one. The canasa I was down to every third night, but I jumped backe to every night. No mucus or blood..so that's a good thing. I don't take enzymes or probiotics. I do take vitamins. I hope the ultra sound comes back good. I don't want anything else wrong. Big Good News....I had breast cancer in 2005. I just had a mammogram and everything was good. Good things do happen! Glad to see you and thanks for being there.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety

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