Posted 3/29/2008 10:33 AM (GMT -7)
wow, scary..........isn't fentanyl one of the drugs now used in the "cocktail" for colonoscopy's? I believe that's what I was given along with another drug or two for my last colonoscopy..........No wonder it worked so well.
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission (approximately 10 of those years without any meds)
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema every 3rd night, will try to spread it out more. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 
In remission since Jan 2008, can't believe it.............

Posted 3/29/2008 2:12 PM (GMT -7)
munchkindd - Yes, fentanyl is one of the "cocktail" drugs used often for c-scopes. I was given it last time.

Judilyn - Yes, I hate when media people skew results/don't fully explain the context of the results.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

Posted 3/29/2008 5:16 PM (GMT -7)
Judilyn  - thank you for being the voice of reason.  Articles like these scare me into not wanting to take meds at all.  Thank you for putting the numbers into perspective. 

 
sore_guts
 
left-sided UC
400 mg Asacol 4 pills 3 times/day lialda 1 pill 3 times/day
making some very light attempts using Rowasa enemas just cant seem to do these
iron supplements 3 times 1/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 

Posted 3/29/2008 5:35 PM (GMT -7)
You're more than welcome, sore_guts. This kind of thing is my pet peeve. Alarmist stories just to sell your product can really hurt people.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 3/30/2008 2:38 AM (GMT -7)

anyone who can read objectively can see that the figures are just that- actual deaths in a time period, not per x amount of people taking the drug. The media does tend to present things in an alarming way. However, the actual study was in The American Medical Associations Internal Medicine publication- there's no sales going on there! I don't think this study is an "alarming story", nor is it to sell a product... but it is interesting. Certainly you can agree,
Judy- Remicade has been your "wonder drug"- I myself have had gallons of it pumped thru my bloodstream- don't tell me it hasn't crossed your mind "Hey, what exactly is this stuff possibly doing to me???". The implications of being on a newly approved, extremely powerful, immune suppressant long term ought to raise red flags in one's mind! How else is one supposed to make an informed decision?


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 

Post Edited (Eva Lou) : 3/30/2008 3:42:38 AM (GMT-6)

Posted 3/30/2008 7:25 AM (GMT -7)

I agree with Eva Lou.  This study is pretty straightforward, which is the reason I find it so alarming.  Relatively few people use Remicade, so its appearance on this list highlights the extreme danger is represents.  Acetaminophen is probably the mostly commonly used medication, although I expect that the deaths cited here mostly resulted from abusers of opiate/acetaminophen combinations.  Most regular users of Tylenol are not at any risk.    

 

As I stated previously, all of the drugs on this list are deadly only when they are abused, except Remicade.  Only Remicade (and the other immune suppressors) are deadly when used as prescribed.   


M-39, UC Diagnosed June 2007

Other stuff:  Migraines/headaches, high blood pressure, essential tremor

Previous Meds: Colazol (caused pancreatitis), antibiotics, Prednisone (several cycles 20mg/day)

Current Meds: Remicade beginning in Oct ‘07, various vitamins, Imitrex, Lortab, Lisinopril

Posted 3/30/2008 9:10 AM (GMT -7)
I absolutely considered the risks before ever starting Remicade. For me, it was a choice of that or a life that wasn't worth living anyway. I made my choice, and I won't waste time second-guessing myself. Yes, immunosuppressants have a greater risk of death than other drugs because they make many people who take them vulnerable to possibly life-threatening infections. I think we're all aware of that.

My comments were primarily in relation to Tylenol, which is a relatively safe drug. The way they handled the numbers makes it look really dangerous. If all the newer NSAIDS hadn't come out, I'm sure aspirin would be at or near the top of the list, too.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 3/30/2008 9:18 AM (GMT -7)
nah, you can't second guess it. I don't regret using Remicade one bit- it made my life liveable again for a good year and a half! Even after it put me in the hospital with strep pneumonia & whole bunch of other infections, I still went back for numerous infusions. Although I was a bit nerved out every single one, I gotta be honest! If it was still working for me, I'd continue with it as long as I could. Uneasily so, but still......
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 

Posted 3/30/2008 9:28 AM (GMT -7)
Eva, my experience has been much different. I've been on Remi for two years. I've had one cold, and that's it. I think it may be impossible to overcome my immune system! I have no trepidation about taking the Remi, only fear that it will stop working for me.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 3/30/2008 1:05 PM (GMT -7)
now Judy, does your doctor talk about reducing your Remicade dose, or trying to increase the time between infusions? I'm really not sure how they handle that- another post got me wondering.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 

Posted 3/30/2008 2:03 PM (GMT -7)
Nope, it's a maintenance drug for me along with my Colazal. I once went two weeks over my time with the Remi, and had started to have flare symptoms already. It took me five years after my initial diagnosis to get into a decent remission. I was so sick I couldn't have a life. So I'm not really pushing to taper the Remi either. Colazal, Imuran and Entocort together only got me down to about 10 stools a day, bleeding at least three days each week, and pain, pain, pain. I'll take Remi as long as it works and as long as I can, then if there are no other drugs available that will work for me I'll have to have surgery.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
In remission since April, 2006. Remicade has been my wonder drug.
 
Co-Moderator UC Forum

Posted 3/30/2008 7:41 PM (GMT -7)
i read that list and even though it was scary to see those names, those numbers were alot lower than i thought they would be. I mean, over seven years 5000 is really not that much, because there are so many other reasons it could have happened, rather than just drug killing a perosn in and of itself. It kind of made me think about how people who die of Aids don't really die from Aids, but rather from the complications that arise from it, and how it makes it so hard for them to fight off any infection.

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